posted
After this abx. first time treatment, I will be tested. If it's neg, is it true I'm not in the clear? Do I wait for symptoms/watch it?
Is it true, if the tests come back pos again, I never had Lyme. Because if I did abx. would have treated it!
Thx.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Oh sweety, it takes much longer than that. I wish I could tell you different. From what I understand, we will always be carriers. We need to treat at leaste 2 months past being symptom free to put it into a good remission.
Plus the tests are very unreliable anyway. It is better clinically diagnosed. Did you find a tick? How long were you on antibiotics? Are you seeing an LLMD? If not I would advise checking out Seeking a Doctor thread here.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Well, all depends on how soon you were PROPERLY treated after contracting Lyme. If you contracted any co-infections that can throw a kink in your "recovery".
There is NO known test that can say you are clear of lyme. Your LLMD (if you have one) wouldn't bother to retest to see if positive/negative after an initial round of antibiotic treatment.
Only would if doing an antibiotic challange to increase a possibility of GETTING a positive test result.
There are test a llmd can do to test body's immune stuff, inflamation markers, or your CD57 but no test can definitively say you are lyme cured.
Do you have a llmd? Did you get tested for Bartonella, Babesios, etc. Do you have symptoms of them or still have lyme symptoms?
One is to treat for two to three months past the resolution of symptoms.
Read Dr. B's guidelines from the ILADS website.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- " if the tests come back pos again" (end quote)
It seems you are saying that you already had a positive lyme test. You never need another lyme test, then.
You do need an ILADS-educated (or ILADS-current) LLMD.
Just as lyme diagnosis is a CLINICAL diagnosis. Wellness, also is based on how you FEEL.
Of course, if you are not feeling well, your LLMD is best to assess why, whether lyme or other coinfections, or nutritional problems, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
The Complexities of Lyme Disease - A Microbiology Tutorial by Thomas M. Grier
(An excerpt from the Lyme Disease Survival Manual 2000, Duluth, MN, USA)
17 pages
Excerpt from page 2:
The division time of Borrelia burgdorferi is very long. Most other pathogens such as Streptococcus, or Staphylococcus, only take 20 minutes to double, the doubling time of Borrelia burgdorferi is usually estimated to be 12-24 hours.
Since most antibiotics are cell wall agent inhibitors, they can only kill bacteria when the bacteria begins to divide and form new cell wall.(35,59-62) This means: Since most antibiotics can only kill bacteria when they are dividing, a slow doubling time means less lethal exposure to antibiotics.
Most bacteria are killed in 10-14 days of antibiotic. To get the same amount of lethal exposure during new cell wall formation of a Lyme spirochete, the antibiotic would have to be present 24 hours a day for 1 year and six months! . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thx. Lymetoo, Sorry about the medical questions being in wrong place.
Oh, boy, some good information! Thx. All.
Flutterby: Oh, sweety (that's cute!) Ok, I saw now tick, that I recall! Although the tests show recently postitive Bartonella only , (no co-infections detected) from Neuro Dr., he referred me to Infec.Dis.Dr
She retested and it shows the same. She, in my observance, is not LLMD. I know where I can go though, through this site and others I've obtained info on a couple of places that are LL.
2003 I looked at blood work. Get this! I showed same results!!!!! Now what really upsets me--- Dr. did nothing; no retest, no mention of it, no antibiotics. Why didn't I see it? I figured he knew best!
Funny too! I worked in the med field! I worked with this Dr. who was my Dr.
I was fired from the job due to 3rd. absent day of work and didn't call in.
I exhibited horrible symptoms back then. Was it Lyme, I believe!!!
Starting in Dec. 2009 I noticed achiness in legs, and low body temp. This Nov. 2010 is when I was in ER. Severe headache, weak, couldn't walk well, joints hurt and aches like I had a severe flu.
I know my body and I've been with this one Neuro Dr. since 1997 being testing for MS, Lyme, Lupus.
If this disease is so questionable, why the heck do they then even test for Lyme, why!??????
With neg testing up to year 2003, he again, in this year did another test where I saw a pos. band and one equiv for Lyme. Didn't show serious signs until 2009, then went to Neuro and insisted something was wrong, I was about in tears. I tested pos for neuropathy.
Neuro sends me to Inf. Dis. Dr. because I have something else that he has no knowledge: herpes and it effects nerves. He said it does not! I said your wrong! Inf. Dis. Dr. claims, yes, it does! Don't believe I'll be seeing him again!
Hope this isn't too long. You need to know what's happening so you understand.
That's how it's been! But,my concern, perhaps I recently got bit becuz I am around horses, volunteering. Who knows! Because the sickness really began Dec. 2009 and I started with the horses four years ago.
confused! Doxy 100mg. x 2 a day! big deal!
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
PLEASE, make an appt. ASAP with a LLMD. You are not on a dosage of doxy that is going to help if you have been infected for that long.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
quote: Although the tests show recently postitive Bartonella only
If you have Bartonella, you're not on anything that's going to treat it. Actually, 100mg of Doxy won't treat much of anything.
Please get to an LLMD - the longer you wait, the more likely the damage continues and can become permanent. Be your own advocate and take charge of your healthcare.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Oops, mistake. I have Pos Borrelia, not Bartonella. Is this a co-infection.
LLMD---looking into this. I realize the low dose is insufficient. I called Dr. office this past two days and they have gone home early.
She is suggesting IV port, so perhaps this is good? Sounds like she may not write me off yet. I may have to write her off though.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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