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» LymeNet Flash » Questions and Discussion » Medical Questions » Why am I still so sick?

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Author Topic: Why am I still so sick?
JunkYardWily
LymeNet Contributor
Member # 24271

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for the last couple of weeks ive developed a new symptoms of headaches and head pressure. i feel not good. i dont understand what is going on. october and november i felt 80%. now about as bad as when i started.

ive been in treatment for 15 months. ive tested cdc negative for lyme. ive tested igenex negative for bart. ive tested igenex negative for babesiois. my cd-57 one year ago was 160. ive tested low for testosterone. ive tested normal on almost all blood tests done for various other things.

could it still be yeast? im taking one difflucin and 4 nystatin a day and consume no sugar tho i was using a lot of sugar alchol as i thought it was ok.

do i have lyme? my llmd insists i do and wonders why im not better yet. keeps telling me its a matter of time.

am i going to get worse? if i become too much worse i wont be able to continue my job and will lose any way of paying for treatment or living expenses.

im extremely disappointed worried and frustrated.

[ 02-01-2011, 12:48 PM: Message edited by: JunkYardWily ]

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sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
glm1111
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Have you tried treating for parasites? After 4 yrs of abx I was still sick. When i started using antiparasitics and salt/c it turned things around for me. Something maybe for you to consider?

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
JunkYardWily
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Member # 24271

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im worried about the release of heave metals from such treatment. ive heard from others here about that happening.

why would i have so much fluctuation?

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sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I was also going to suggest parasites.

I took heavy metal binders when I killed the parasites.

--------------------
sixgoofykids.blogspot.com

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lululymemom
Frequent Contributor (1K+ posts)
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Have you taken any cyst busters? They are crucial for turning the corner with this illness.

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IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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BoxerMom
Frequent Contributor (1K+ posts)
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Head pressure always points to Babesia for me.

Igenex doesn't have the best test for Babs. I was negative through Igenex, but positive through Fry Labs.

Would your LLMD do a trial run of antimalarials to see if you herx or improve?

Keep an eye on new symptoms. I found that once I hit the 80% mark, my remaining/returning symptoms pointed much more clearly to which pathogen was still giving me trouble.

You will regain your health. You're just not quite there yet.

--------------------
 - Must...find...BRAIN!!!

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gwb
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Are you detoxing? Could be ammonia in the brain too. I had that and took Neuro-Antitox CNS/PNS� for it and it got rid of the head pressure:

Neuro-Antitox CNS/PNS� - for those suffering primarily from problems in the brain, meninges, and peripheral nerves from Lyme toxins and heavy metals. Indications include, but are not limited to � cognitive disturbances, dizziness, and vertigo, disturbances in vision, neuritis, neuralgia, numbness, palsies, and headaches. Ingredients � Silphium and Salvia Azurea as well as the sarcobioenergetic potencies in P6, 12, and 30 of cerebrospinal fluid, dura mater, cerebellum, optic nerve, substantia nigra, cerebral cortex, cranial nerve VIII (vestibulocochlear n.), myelencephalon, temporal lobe, occipital lobe, quadrigeminal plate, lumbar plexus, brachial plexus, periodontium.

Interesting information on Ammonia:

*Ammonia

It is possible that at least one of the potentially many types of neurotoxins produced by Borrelia burg. is ammonia. I postulate that the various and many neurological symptoms seen in LD are the result of small amounts of ammonia affecting localized areas of the brain, as opposed to the brain swelling due to liver problems, which affects the astrocytes of the entire brain.

The way I see it is that Bb release NH3, which is converted to glutamine, by way of the glutamine synthetase pathways, leading to localized swelling of astrocytes. Depending upon the severity of infection and tissue environmental issues, including pH, temperature, oxygen levels, emotional state� the amount of ammonia could cause variable and cyclical worsening of symptoms.

The Bb in joints and musculoskeletal tissues may be creating symptoms due to the conversion of NH3 to nitric oxide (NO), which is well documented as causing multiple pathological processes, including sepsis, hyperactive inflammatory processes, and joint pain. Direct resonance testing has revealed that the liver and heart are often testing positive to accumulations of NH3, which is not being converted into urea or nitric oxide.

Once the ammonia levels are cleared and the Bb microbes are reduced, supplemental L-arginine can be taken in the morning to �wake up� or energize the brain. (L-arginine should not be taken in the presence of ammonia. Research reveals that NH3 + arginine and manganese increases nitric oxide (NO) up to 53% in astrocytes, leading to increased brain swelling). Armed with this knowledge, health care professionals would be wise to instigate a protein poor diet for Lyme patients, during treatment to minimize aggravations from arginine.

The �Direct Resonance Testing,� molecular vibration phenomenon is not theory. Complex molecules may contain thousands or even millions of atoms. How they bind together creates an electromagnetic "signature," which is extremely precise and specific to the type of molecule. It is this molecular resonance that enables a doctor to perform a simple, quick test to determine the presence of ammonia in the brain or any other tissue. The same can be done as a quick screen for Bb, using a fixed Bb specimen.

Using "Direct Resonance Testing" This is a simple test that can help screen Lyme patients for the presence of ammonia in various regions of the brain. I have found virtually every Lyme patient tests positive to having ammonia in specific locations of the brain. (Jernigan Nutraceuticals sells vials of Ammonia for $10.00) To perform a direct resonance test the doctor will need a vial of pure ammonia.

A muscle strength challenge should be performed to identify a strong muscle, preferably using the deltoid muscle with the patient's thumb pointing towards the feet. The muscle should "lock" immediately when challenged, without being spongy. Once a good strong muscle has been identified, hold the vial of ammonia over various areas of the brain, testing to see if the previously strong muscle goes weak when the ammonia is held over any area. Due to the temporary neuromuscular interference caused by the harmonic resonance of ammonia in the vial with the ammonia present in the brain, the strong muscle will go weak.

The best effective treatment can be identified by adding the corrective substance, be it the liquid botanical supplement, Blue Sage, the Neuro-Antitox II Formulas (Jernigan Nutraceuticals) or prescription Cholestyramine. To determine the best corrective substance, hold the vial of ammonia and a corrective substance over the same spot where the strong muscle went weak. If you have found the proper corrective substance the former weak muscle test now will go strong.

In summary, I know of no other testing method that provides such immediate confirmation of localized NH3 as the Direct Resonance Test. Localized ammonia is present in virtually every chronic LD patient, either from the spirochete or other indirect mechanism. We have found ammonia wherever Lyme spirochetes reside in the body, but primarily over the liver, heart, teeth, and cranium.
Hope this information helps you,
Sincerely, Dr. Sara J

Source:http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html

Gary

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JunkYardWily
LymeNet Contributor
Member # 24271

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six/glm-i think im a very good candidate for parasites as i grew up swimming in a lake every day. i think ill go over getting a scrip for anti parasites next time i go to llmd

lulu-i was briefly on flagl and did very poorly on low doses. i just got a scrip for tidimax and will be stating that very soon.

boxer-ive heard this several times and therefor got the test done. i did a full panel from igenex with dark microscope and everything and was negative. i also got a scrip from my llmd for malaron. he said that even if you dont have babisia there are other things similar infections that it could help with. unfortunately my ins wouldnt pay for it and it is waaaaaayy to expensive to for me to pay out of pocket. ill look into fry labs.

gary-how have you been, havent seen you in a while. would i all of a sudden get ammonia poising? is that possible? where did you get Neuro-Antitox CNS/PNS from?

thank you guys for all your suggestions

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sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I would definitely try babesia treatment. Clindamycin/quinine is very cheap and then there's artemisinin and zith.

--------------------
--Lymetutu--
Opinions, not medical advice!

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JunkYardWily
LymeNet Contributor
Member # 24271

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i tried clindamycin/quinin for a day with intense dizziness and loss of balance. also dr b's guidelines speak against this form of treatment. ill give art and zith a try i guess.

just seems strange to be babesia since i havent shown any other symptoms of it besides these recent headaches.

--------------------
sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
lululymemom
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When I herx on Bart treatment, I get the really intense top of the head frontal headaches that go into the eye.. It comes with alot of lightheadedness.. You may want to try the BW Formulas.. Just be sure to use binders, they seem to help with the herxes.

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IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2027 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
JunkYardWily
LymeNet Contributor
Member # 24271

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what is bw formulas? i did a google search for it with no luck

--------------------
sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
BoxerMom
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Byron White formulas. A-Bab, A-Bart, etc. Lots of threads here.

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 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
   

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