posted
I and my doctor strongly suspect lyme and am just awaiting test results. I likely have had it 15 years and have had that many diagnoses too.
The past year has been particularly bad after another tick bite with a rash that I blew off as me scratching too hard and bruising myself. I am guessing I either re-infected or have had some other disorder and now with lyme on top.
Anyway, the neuro symptoms are out of control. Funny spots/weird lines/discoloration in vision, migraines with aura, vertigo, dizziness, poor coordination, poor memory (just this morning forgot to bring in the milk and bacon I bought, rediscovered seven hours later, sigh) ... most scary to me though is my poor concentration. I am a grad student and just can't comprehend or read with the speed I could only a year or two ago. I am terrified that, even with treatment, this is permanent damage. Has anyone recovered from the neuro problems?
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
Mine come and go. I had the same fears as you. I am a little more at ease with the situation, tho certainly not enjoying it.
On a good day everything is clear. Quite often, I'll fix lunch, coffee, whatever, completely forget about it.
From what I've read Lyme tends to affect the white matter more than the gray matter. White matter is what connects all the functioning parts together.
In computer terms (my thing), white matter is the network cables. The info and processing is still there even though right now we have some cable issues.
White matter changes, so this should not be permanent.
-------------------- Ticks suck. Posts: 140 | From Alabama | Registered: Aug 2009
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posted
The idea used to be that neurological damage could not be repaired, but from that I understand it is now believed that neuro damage can be repaired, just more slowly than other damage.
Posts: 252 | From NJ USA | Registered: Mar 2004
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posted
Yes, I got better from those issues. It took the longest for my memory to come back. I played games and did other things to give myself a mental workout to get the memory back.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Thank you so much for the replies. Oldman, yes, this is my biggest fear. The skin problems, headaches, IBS I'll take but please don't take my brain! dsiebenh and sixgoofykids, it's good to know it can heal.
I appreciate hearing your experiences. Just the idea of lyme is new to me (I went to a ND out of frustration that no one would test me for celiac - ha) and I'm glad to know others have had similar issues.
**Edited to say I'm not glad you have suffered these problems, just that I'm not alone or crazy.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Me too, I had similar symptoms and have been treating since Sept. I am 90% better already. Hang in there. I feel for you.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I had similar symptoms too. I've been treating 9 months now and they are almost 100% gone today. They are reversible!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Feel like connections to me and my life are cut. Always thought depersonalization, but could connections be damaged and I have ocd, so I believe I can be anythng because I don't feel any connections. sometimes having seconds like I feel back to me, than it passes, last thurday was 2 hours, last month was 4 hours. Sleep and shake cause of the anxiety it causes. My herbal doc says I'll have blips of seconds and it will be longer and longer until I get myself back. On antibiotics, it just snapped back, this isnt snapping. When it snaps back its just me and my life. Don't know if it lyme, psych, both, anxiety (dp), just want to be in my skin again. Anyone?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
You mention IBS issues, mine have cleared up greatly since I went nightshade vegetable-free and gluten-free. Some also find benefit in dairy-free.
Posts: 252 | From NJ USA | Registered: Mar 2004
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
It does get better, as you have read here.
It takes time, keep working on it, stay positive!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
Thanks for the replies! fflutterby and bcb1200, your experiences give me hope.
lyme in Putnam, I hope you can find an answer. I've struggled with OCD myself, and the feeling of being disconnected on and off as well (if I'm understanding correctly).
dsiebenh and steve, thanks for adding your comments too. I had already cut dairy, most gluten, and meat before seeing the ND and have found improvement with the IBS. I still get pain and burning after two months of Prilosec, though, so all I can figure is that it's the lyme or whatever it is I have.
I'm smiling now--staying positive!
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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