canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Had an LLND in Cali tell me BABS causes GI Dysmotility
And this is dead on with what I'm dealing with
GI Dysmotility Syndrome: A vague, descriptive term used to describe diseases of the muscles of the gastrointestinal tract (esophagus, stomach, small and large intestines) in which the muscles do not work normally (hence the term dysmotility).
Other terms that are sometimes used for dysmotility problems are gastroparesis when the stomach is involved, and chronic intestinal pseudo-obstruction when the intestines and stomach are involved.
In patients with dysmotility syndrome, food does not move normally through the stomach and intestines, there often is distention of the stomach and intestines as fluid collects, and there frequently is pain.
The disease may involve any part of the gastrointestinal tract and is due to abnormalities in the muscles of the intestines or the nerves controlling the muscles. The dysmotility problem can be mild or severe.
There are medications that can be used for treating these diseases, for example metoclopramide or cisapride, but these usually are of benefit in the milder cases.
Because of the rarity of these diseases the management of patients usually is turned over to "sub - subspecialists," gastroenterologists with special expertise in disorders of motility.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
ahhh this sounds like meeeee.
Posts: 341 | From NY/FL | Registered: Apr 2010
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
There is NO way ANY Dr. can definitively say one infection is causing one symptom set and another infection a different symptom set.
It is SO annoying and I wish they would stop.
It literally is IMPOSSIBLE to pinpoint what is causing what as we cannot even pinpoint through the lack of adequate diagnostic testing what we are even infected with to begin with!
These Drs spouting off that "oh that's a Babs sx" or "that's a bart sx" Is just totally egocentric babble!
Rant over..
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
i kinda agree with above except i am a little less angry but this disease can do that to ya.i have heard that gastro symptoms could be bartonella ,babs,lyme or parasites.i know my llmd says children often complain of stomach aches with lyme and she uses amoxx with them and it helps. i have terrible gi issues and actually the first med that touched it was diflucan,then amoxx.now i am trying parasitic meds.azithro,doxy did not do much for stomach except doxy always leads me to a raving yeast episode.
Posts: 125 | From western mass | Registered: Sep 2010
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posted
I have terrible GI symptoms too. Again, not sure if it is Bart Babs Lyme or Parasites. Or other?
My LLMD also says the majority of kids with lyme present with GI symptoms (wheeras it is less prevalent in adults) I got sick at 10 so I guess it makes sense I have GI issues (I am 25 now).
Nothing ever really has helped my tum. I am on tetra and nystatin now...
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Never heard of "dismotility syndrome" or that Babs causes it. I thought it was always Bart.
heard of bells palsy of the gut, lack of paristalsis tho. Would that be the same thing?
I had/have a definite "slow, redundant colon" but it all was cured with iv rocephin. One week off rocephin it pretty much all came back.
Too bad I needed such an expensive treatment to keep me regular.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
djf,
While I agree - docs and llmds have more data and clinical experience than we do.
So I do think some things CAN be pinpointed.
For example Bart Streaks for Bart or cherry angiomas for Babs or white tongue for yeast.
But you're right - it's all up in the air
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Could also be dysautonomia, aka, dysfunction of the autonomic nervous system. Messed up blood pressure (too low at certain times) can cause those symptoms.
Anyways, coffee helps my dysautonomia symptoms, and it also helps move the GI in healthy people even, as I'm sure most people know. Yes, it's caffeine, which isn't always considered healthy. But oh well.....
Posts: 4590 | From Midwest | Registered: Jun 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Hoosiers,
Could be. for me - i can tell it's nerve damage. Bartonella and Babesia have been runnin rampant in me - and I'm just now seeing the gut results because of it.
I didn't have these issues when I was on abx's and the infections were kept at bay.
I guess long story short - gotta treat the infections
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Cane, I stumbled across this in my research.
posted
Choline/acetylcholine is a big factor in G.I. motility. And babs and lyme both rob the body of phosphotidylcholine.
I am pretty sure the old standby drug (Reglan) used to speed up G.I. function has either been removed from the market or had a black-box warning added because of cardiac side effects.
Things which stimulate the gallbladder may be used to speed up G.I. transit time slightly. Also herbs for constipation -- chinese rhubarb works very well in either capsule or tincture form.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Where can a person obtain phosphotidylcholine if one is allergic both to eggs and soy (the only two sources of this that I know of)?? Is taking choline enough by itself, or are there other things one needs to do?
I have severe gi dysmotility and it is due to Lyme/Bart/who knows what other coinfections...
Thanks,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
anyone with GI trouble must treat the Lyme, ABX treatment was good for me. but what helped on top of that was Tumeric it was a big help for all my GI stuff, like slow moving stomach,constipation and pain in a week of taking it turned my whole heath picture around
so again. if GI troubles are a big issue for you you must try Tumeric
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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posted
I have esophageal spasms with Lyme. When I am NOT on antibiotics, my spasms always return. That cannot be a coincidence!
Posts: 10 | From birmingham,alabama | Registered: Jun 2010
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