posted
I have been on this combo for 7 months, introducing Doxycycline back in Septmber because I began getting worse on the combo alone. I believe it's because Bart came out and this is why I made more progress when the Doxy was introduced.
Posts: 319 | From Mass | Registered: Feb 2010
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penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
I'm on Biaxin and Amantadine for also at least 6 weeks and not seeing too much progress but tolerating it better than Minocycline.
Just came back from my LLMD appt who said to keep staying on it.
I'm frustrated because it doesn't penetrate the BBB as good as Minocycline and I need it to, but can't tolerate it so I'm just not really getting to the brain right now.
I guess I am looking for a more aggressive approach (like incorporating Doxy or something) while on the Biaxin so I am being more efficient in treating this whole thing.. but have to take my LLMD's word?
I have some Doxy (not too many pills) from my GP's prescription back when he thought I had lyme but told me to stop because the lyme test came back negative. I wonder if I can take those too to see if I get any progress.
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
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posted
Alot of people on here have said that Biaxin penetrates the BBB.......
Posts: 995 | From somewhere out there | Registered: Oct 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I believe the only macrolide that crosses the BBB is roxithromycin. I don't think biaxin does. I don't know about amantadine.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Amantadine isn't an antibiotic and has no bug killing properties. It simply raises cellular pH and makes the Biaxin works better. Biaxin does cross BBB a bit.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I think you should stay on a protocol as long as you are gradually improving on it. I have been on Doxy for about a year and a half because its the only thing that has given me any improvement.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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