seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
A neuro I saw wants me to have comprehensive neuropsychiatric testing done. What does this mean? Does anything good ever come out of it?
I mentioned my concentration has been down some from in the past because I feel so ill lately. I struggle so much with physical symptoms/fatigue that I can't think as straight.
I don't struggle for words at all though. I still am smart enough to research things and follow through. I feel like before I used to be smarter though. When my physical symptoms are less, I'm there again. Those days aren't too frequent though.
Is there any upside to this testing or am I just burying myself? I have tried reading about it, but it's tough to understand.
The one big problem I feel I have is lack of emotions anymore. That really upsets me. i feel like all this stuff deadened me over 3 years. I guess it's not that atypical when you're life's turned to hell.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I feel your pain and have no obvious answers. Sorry.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Depending on the outcome it could help with insurance approvals for meds and therapies and even if you apply for disability.
The tests will show if the lyme is affecting you cognitively. Many of us have done them. I don't think there is anything wrong with doing them and you can gain greater insight about how the lyme is affecting your cognitive functioning.
I did them and found them quite fascinating and also saw just how messed up my cognitive functioning was.....more than I had realized.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
My group disability was cut off over a year ago Abxnomore so this would have no use there. However, self-knowledge of deificits and how I'm impacted may have use to me. I know I'm not who I was before falling ill in so many ways. It may hurt to see that, but knowing is important.
What bothers me most is I'm unable to have conversations with people much when I try to keep eye contact for decent amounts of time. If their arms/head bob, I get dizzy. It's like my equilibrium is just fried. I can't explain it. i don't want to be in a psych ward. lol. Stimuli destroys me. I am not bad otherwise. Unfortunately life IS stimuli.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
My SSDI approval was based on the results of mine.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
[QUOTE]Originally posted by seekhelp:
If their arms/head bob, I get dizzy. It's like my equilibrium is just fried.
I've had that long ago. The Dr in the office was repeatedly nodding her head and I remember it making me so sick to look at her.
Are you treating for Babesia?
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
way back-after some tx but not enough my 2nd llmd had me tested...he insisted it be by a lyme literate doc in nyc...then after a year of tx he had me txed again it showed improvemetn. i think he wanted to show the meds worked. he showed it some but everyone is different.
since i had a previous head injury from car accidnt it was hard to sort out what impairment was from that and what from lyme
i had 3 done all together and with my recent cognitive, depression problems the new psyc ppl are wanting to see my old neuro psycs.
ive said this before but it is impt:
the brain injury association ppl can often help. acquiring a brain injury from a disease is something they deal with. they have programs resources and money to help. it is worth checking out.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Seek you mention group disability. I presume that is not social security disability. Have you applied for social security disability?
I understand the reaction to stimuli. I had that too, many of us do and it's awful. Have you ever done IV? I understand the feeling of lack of emotions, too.
I don't know what LLMD's you have seen and what kind of treatment you have had but those symptoms usually resolve with good treatment.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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