beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Well, I'm really full of questions today.
If you become symptom free, and then off abx, and relapse 6 months later, do you think it's because I wasn't treated aggressively enough?
If you are symptom free-does it mean the buggers are dead, or just beat down, but still hanging around?
Wondering whether to change LLMD's-my DH feels if this one got me well once, I should stick with it.
Posts: 1276 | From maryland | Registered: Jan 2009
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Did you effectively treat all co-infections and did you also use a cyst-buster at some point as when you attacked them, they protected themselves by converting to the cyst form.
And...were you symptom-free for at least three months when you stopped the meds?
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
I would look into coinfections, starting with Babesia if you haven't been treated for it and have symptoms of Babesia and/or intense symptoms. Babesia is the fastest growing coinfection at this point, and many people report marked improvement after treating for Babesiosis.
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I was on bactrim for a year, and I rotated in malarone.
I used tinidamax 3 days/month for about 6 months.
Posts: 1276 | From maryland | Registered: Jan 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I took one week of malarone/zith, then 1 week bactrim/zith for almost a year, then pulsed that for another year (1 week a month).
Posts: 1276 | From maryland | Registered: Jan 2009
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If you are symptom free-does it mean the buggers are dead, or just beat down, but still hanging around?
- Hard to say for sure. Either way, if you feel good that is a big plus!
Sounds like you received pretty good treatment. Maybe you could PM the dosages to me??
I think your dr could get you well again.... What are your current symptoms?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
quote:Originally posted by beths: I took one week of malarone/zith, then 1 week bactrim/zith for almost a year, then pulsed that for another year (1 week a month).
Did you take Malarone for only one week? From what I undersand, Babesiosis needs months of treatment.
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
no, I alternated the above
Posts: 1276 | From maryland | Registered: Jan 2009
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Maybe it would be better to treat Babesiosis continuously?
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