-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
"Rifampin is a very old antibiotic that for many years has been used for the treatment of chronic infections such as tuberculosis. It is very effective against Bartonella/BLO. In particular, it is very useful for the neurological and psychiatric manifestations of Bartonella/BLO�severe anxiety and mood swings, panic, seizure-like episodes, memory loss, �spaciness,� confusion, disorientation episodes, and many other symptoms. Expect a herx-like reaction during the first week or so; then significant progress often occurs during the second or third week on rifampin.
It is best used in combination with certain other antibiotics. Frequently, those combinations include rifampin with doxycycline or rifampin with clarithromycin. The combination of rifampin with doxycycline is especially helpful when a patient with Bartonella/BLO is also infected with either Ehrlichia or Lyme. The dosage of rifampin is 300 mg per day for the first week; increase to 600 mg once a day after the first week. It is advisable to use rifampin in the evening (not at bedtime) on an empty stomach, three hours or more after a meal. It may be used in the morning an hour before breakfast also.
Rifabutin is a medication in the same family as rifampin and is reportedly very effective against Bartonella also. Apparently, it can be combined effectively with azithromycin. I do not have enough experience with its use to recommend it at this time. "
I had a huge herx when starting Rifampin...bigger than anything I had to date. I had to stop Rifampin after 3 weeks, unfortunatley, due to high liver counts.
I have just started Rifabutin (aka Mycobutin) and am crossing my fingers. I've upped my liver support (Milk Thistle and Acetyl N Cystiene.)
Good drug. I'm now taking it with Doxy.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Big time. My worst symptoms were dizziness, tinnitus, brain fog / drunk / drugged feeling, and depersonalization.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
posted
I have depersonalization/ cognitive issues as my main symptom, digestive issues being #2. Both are highly reported with Bart. I have been on Rifapin for about 3 months. I started at 450 mcg and just increased to 600 mcg. I totally herxed with Rif, which is very rare for me and I think I'm herxing again when I increased. My GI symptoms have absolutley improved since starting. Cognitive issues maybe a little, but not a lot. depersonalization is ususally the last to leave for people and bart takes a long time (as with most co's), to kick. So i really would expect to take a while before I really can say yes or no.
Posts: 844 | From CA | Registered: Apr 2010
| IP: Logged |
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic