posted
After three months of oral abx treatments I got my new igenex results. They changed a bit but too many IND bands to be positive according to LLMD. IGM 31 IND 39 IND 41+ 58+
IGG 23-25 IND 34 IND 39 IND 30+ 41+ 58++ My first one in dec was IGG 41IND 58+ and IGM 41+
Now I have no clue what all that means even reading the charts but the office just said I had more bands but still isnt conclusive of lyme!! So for all the new pain an crying I am going through they have me on a 72 hour off all abx to see if it stops...
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
Fyre, the tests were only 200 and then you send the bill into your insurance and they pay 80%. My llmd does not want to start IV without enough proof to me of Lyme since I have only one month allowed by insurance and will have to pay 1500 a months for the rest.
5Vforest--do you think I have lyme with thos IND results? Its strange how much my tests changed in just three months. from only 3 bands to ten--four important ones being IND?
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
I was about to give up since I am in so much muscle pain. I cannot even get up off a chair anymore and now my arm muscles are the same. I thought the abx was destroying my body (which is basically is) but the LLMD feels that it is a herx reaction since I am just on my second week of zithromax. All the rest of the time I was only on omnicef.
The PAA told me to take a 72 hour rest off all abx and see if it stops. I have been no stop crying for days now and someone on here told they also do that whne they herx. THough I was losing my mind.
I am giong to try and keep on going since I know I am killing these things. I bought a portable sauna, gonna try and use it tonight and maybe stop some of this horrible pain? Any suggestions would be so helpful on getting through this herx without having to stop the abx. I want them DEAD!!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I'd say you have lyme...no question. Band 39 shows weak positive and that is considered the most specific band of all.
Zitro doesnt' cause muscle aches. hang in there.
I'm not a doctor BTW
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
The LLMD feels it is babesia that has now been stirred up and in my muscles. I did not have this problem in the beginning, just neuro..I cannot even stand up anymore or use my arms, the muscles are so weak and hurt so bad, in addition to all my joints cracking and pain. Dont know what to do to stop it. I really dont want to stop the abx like they suggest if I am killing these things!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
I think maybe I have to agree Lymetoo...wonder why the PAA at the docs office makes me feel otherwise.
My llmd comes back next week from vacation and she is goin to ask him what to do next? I guess you can get well on oral abx since I am in "herxing" hell right now. Wish I knew what to do to stop the pain in my thigh muscles and knees, and uppers arms lol and everywhere else!!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
Hopefully, you will feel better tomorrow! Keep us posted!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Talk to your LLMD about IM magnesium shots. Tell him you want to try them. They will help with the muscle pains. No amount of orals or magnesium oil can match what IM shots do. If you don't get relieve and I would be surprised if you don't, then you'll need a muscle relaxer to get you through.
Continue to take oral magnesium along with the shots.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I think they are telling you it's not considered CDC positive to help qualify you for paid IV by insurance. Your tests show lyme by LLMD standards.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Abx I am already on methly 10 mg shots that are a horror for me. The burning pain is unreal for about 20 minutes after each shot. I have black and blues all over my legs. I am on magnesium taurate from the doc twice a day..do you think that may not be enough? What is this muscle thing anyway? He said babesia but I didnt have it to begin with?
I wonder why he didnt offer them to me? He knows the muscle pain I am having. I dont see him agin till april and that is only a phone consult with the PAA? UGGh if I had the money to start again I would look into someone new. I actually got a call last week from the office to tell me that I "still had lyme"???? I am only under treatment for 3 months?
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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