seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I finally had one day where I had a bit of energy. I made it through a large outlet mall with my wife and child. Not easy, but I did it. I'll pay for it the next few days, but oh well.
I barely made it back to the car. At the end, I got very tired and started to feel off balance. Felt like I had to hold on to the walls and the outside sidewalks were icy. My wife thought I was screwing around when I had to walk so slow.
I usually hit a point where my equilibrium goes bezerk and when that will be I don't know.
i guess it wasn't perfect, but I usually would've gassed out 1/4 way through. It was nothing more but a lucky day, but.....you take what you can get when life sucks every day. lol. The frightening thing is what I considered a good day would scare the hell out of a normal person if they had to experience walking like that at the end. They'd probably want to go to the ER.
My ears are just shot in so many ways though ENTs can't find a problem. I can't fathom it. How can someone who can't walk straight not have a problem for goodness sake?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
seek, for proper balance (vestibular) testing, you need to skip the ENTs and go to a neurotologist (CNS+ear). They can offer MUCH more than the standard ENG test.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
But can they really help you if you have issued Dawn?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Seek - I'm glad you had a somewhat decent day. You deserve it. I hope there are more to come...
When I was well enough to go out and do stuff, I would always take some klonopin with me. Even a half or a quarter of a pill would often allow my CNS to better handle the types of situations you describe. It still wasn't all that great, but it allowed me to at least participate in life.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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Glad you got to enjoy a day! Hopefully this is a window and it will keep getting wider for you..
Posts: 829 | From MD | Registered: Dec 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Yay Seek! I'm happy for you Posts: 5237 | From here | Registered: Nov 2007
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Not easy, but I did it. I'll pay for it the next few days, but oh well. ![[Frown]](frown.gif)
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