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» LymeNet Flash » Questions and Discussion » Medical Questions » I'm done!

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Author Topic: I'm done!
jo3
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I'm officially done-after some 13 yrs with this wicked illness, 5 years of non-stop treatment,over $8000 a yr. in medicine,tests and the such, with absolutely no improvement, I am done.It's OK to be done-I'm not giving up-I'm just not going anywhere and just resigning myself than I am not going to get better.
Numbers aren't everything but my CD 57 has gone up 15 points and I'm only getting worse.
I have been given every possible medication, treated for all possible co-infections,scanned for possible MS-you name it- and by the best as well.
My doctor has refused to accept it and time after time, gives it the good ole college try- well, this time, he said that I may just be right. I've now been put on Biaxin, Ceftlin, Flagyl and Claphoran-I've been doing shots daily for about 2 yearsand my doctor can't figure out why I'm not getting any better.I'm on a ton of supplements and have done the whole naturalist method too-nothing.

So we'll give it 3 more months of these meds until I see him again-and then I don't know what's going to happen. I even asked him if I can be on meds for the rest of my life...he didn't answer.


I'm not just giving up like I have before because I'm sick of being sick-I'm giving up because there's nothing else out there for me.

Posts: 247 | From san antonio,tx | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Stillwater
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Jo,

I'm very sorry for your resistance to treatment. I don't know your story, only what you've written here.

Can I ask if you've ever done IV ABX?

Same doc for 13 years???

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skigal
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How long have you treated for Co-infections?? Babesia, Bartonella, Ehrlichia, etc. Babesia in particular requires long term tx.

Also check out parasites, heavy metals, yeast, hormonal status, vit D etc.

Do not give up!!

Posts: 269 | From VA | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Elaine G
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Check for mold, also.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
payne
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how many differant LLMD's have you tryed?,
sorry, jo3-
its gotta be frustrating to throw in the towel and still be valued and respected for your knowledge with lyme, with your # I see you have been there and done this... I see you as a warrior laying down your sword, but, please pass your striffs onto us in hope, The Lord Blesses, those who care - I can only ask Him to encourage you to still be apart of US, Human beings trying to survive, against all odds...
Much understanding in your stand, Thank you.

--------------------
TULAREMIA/rabbit fever ?

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Shahbah
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jo3, can you tell us what are your symptoms?
Posts: 723 | From Montreal | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
steve1906
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Hi jo3, sounds like you�re really down, maybe depressed; sorry.

Thirteen years is a long time, + five years in treatment and still sick.

I�ve been on and off meds for about three years, mostly off. I�m one of those people that believe if the antibiotics don�t work in a reasonable time, then I stop.

That�s just my opinion; I know many disagree with me.

I would really be interested to know what your symptoms are today, and if you have improved at all.

Hang in there, try the three months of meds and see what happens.

--------------------
Everything I say is just my opinion!

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Karensky
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Recently I have reread the IDSA guidelines again...I hear groans

coming from most of you...but hear me out...what if they are

correct in saying the bacterial infection is killed by the initial

ABX course and what lingers afterwards is a "post" lyme

syndrome or other diseases or co-infections that produce the same

or similar symptoms and just take a long time to resolve because

the body's immune function has been greatly compromised and

needs time to heal ?!

In another words...maybe long term ABX treatment does not

work to relieve the symptoms because the targeted bugs are no

longer in the body...has blood testing shown after a long course

of ABX treatment , that the same bugs still remain ?

Perhaps it is the yeast , the parasites , the

heavy metals , the damage of the intestinal system such as

"leaky gut " , IBS , SIBO , dysbiosis etc... that are now the culprits

wreaking havoc and need addressing...so all the above questions

are pertinent..

I would be curious to know how many peeps , after , long

term ABX treatment show the various bacteria in subsequent

blood tests...I am not suggesting that I believe these ideas...only

wondering aloud if they may have some merit...since so many

fail to get better after years of ABX treatment...sthg's up with

that...I haven't had my blood tested since all the ABX I've been

on...It's expensive...but I'm curious to know what will show up...

I run the risk of heresy...in posting this...but I am really just

trying to find answers like everyone else and though I initially

rejected this idea...I am now not so sure...please chime in on this

...and jo3...it has been a long journey...but all those that make

it to better health eventually all say they are so happy to be well

again...and that takes as many years as it does...whether 1 , 2 ,5

10 or 15 - 20...I just spoke to a friend overseas who was sick for

10 years...but is in normal health now , after a 3 week and then

a 6 week IV course...then just "waited" ...bed or couch ridden for

years...but eventually improving day by day...with no other

treatment...of course everyone is different...just hoping you will

find this inspirational...cause...we really just don't know how

long it's going to take to get well...hang in there...you're worth it

please don't jump all over me for what I have said re: the IDSA

etc...but I would very much welcome a discussion on it since I

am a bit lost myself these days on what to think anymore !

blessings to all who are struggling with this !

--------------------
"Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero

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steve1906
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I have never believed in long term abx.

I'm talking in terms of anything over a year or so.
To me there are just not enough people getting better after years of abx.

I'll also say, how does anyone know when they start feeling better, if on meds for many, many years that it�s the meds that helped them.

This is just my opinion!

If more people were getting better, faster, then none of us would be here.

No one has the RIGHT treatment plan unless you catch Lyme and co�s early.

--------------------
Everything I say is just my opinion!

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lululymemom
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My daughter didn't start feeling better until 2 months after antibiotics were discontinued.

She is doing much better now just on herbals.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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Karensky
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Well see...thats just the experience I am having...which is why I am

pondering this at all...I stopped ABX in November since I felt THEY

were damaging me...I felt better...then I had a relapse like episode

after which I started herbs and other supplements...all of which

made me feel stronger and less toxic...when I tried a recent "detox"

program , however , that triggered again the unpleasant and

painful and neurological side effects I experienced on the ABX...

so I stopped that and now I am feeling so much better...so...4

mo's now...no ABX...and I feel better than I have in the last 3

years ! I hope it stays that way... [Smile]

Thx for the feedback...I was a little worried I may not be doing

the right thing by quitting the ABX...but if I feel so much better...

how can that be wrong ?!

be well everyone... [Wink]

--------------------
"Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero

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miles2go
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jo3, Don't give up. Giving up is a far worse place to be than not giving up. There are other things to try like teasel for instance. Read "Healing Lyme Naturally." And people are constantly doing research and discovering new treatments.
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little_olive
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Wow Jo, that's a lot of energy into something with no results. I'm sorry to hear you haven't improved on the treatments, but I think it's wise to look into other avenues. If it's not an infection you could be missing what's actually going on in the mean time.

Did you ever test positive for any of these infections or was it a clinical case? I test scarcely positive but still show a response to the treatments, at least.


little olive

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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jo3
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Thanks everyone-hey Steve-I'm really not down-I've finally accepted all of this and don't fight it anymore- it is what it is!I have been checked for hormones,vit. D., heavy metals,yeast and have been treated for all. This is my 2nd LLMD and quite frankly, it's like finding another husband, do I really want to look for another one? Have to go through my life story? Oh no, I'm too lazy for that!! Besides, there aren't any doctors in Tx so that means I'd have to travel-which i already do...to Louisiana!
My worse symptoms by far are the neurological ones-confusion,lack of focus,memory failure and downright stupidity! This is followed by fatigue-but I take a pill for everything-to fall asleep, to wake up, to help me with memory, depression,my aches and pains,palpitations-as someone said, you can get by more or less with the meds, but what happens when I stop them? I've tried that before-when I couldn't find another doc after mine was run out of the state-and the symptoms stopped for a while but slowly came back.
I went the natural way with Buchner's protocol-didn't do much good and I spent lots of money on stuff.
The doctor did mention something about the Post-Lyme syndrome-in the meantime, I take this last set of meds and wait and see how I feel-but I think after this, I'm just going to stay on the "symptom" stuff, eliminate everything else and see how it all plays out.
There comes a time when you have no choice but to give up-what else is there? i am not being depressive nor deliberately playing victim-I don't play that role-but I am not going to go out and search for another doctor who will give me the same stuff only to end up in the same place. Too much money,too little time,no more desire left inside to try or care.

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glm1111
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Treating with antiparasitics is KEY in getting rid of this disease if you are not getting well. Do a search on here for the extensive info about parasites and the role they play in Lyme disease.

The filarial worm co-infection is definitely something to consider also.

Check out

www.lymephotos.com

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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sparkle7
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I wrote a big post but it disappeared for some reason... Were having thunderstorms here. Maybe that's why?

Anyway, ditto to what Gael said. I agree with her 100%.

Abx aren't always what we need.

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raw vegan runner
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jo3...I hear you. I was infected 18 years ago nd have been treating for 5 years and I have finally said enough also.

Like others, I felt like the abx were poisoning me and were making everything WORSE. I'm sorry, but when I come on these boards and read about people on abx for YEARS and just suffering so....sorry, I just can't go there.

The turning point for me? I stopped taking EVERYTHING. I took NOTHING for 2 weeks and just gave my body a break. Continued gentle detox but that was it. Now, I feel MUCH better and am gently rebuilding my immune system and treating for yeast.

AM I totally cured? Probably not. But I am now doing the Low-and-Slow approach. I simpy refuse to completey trash my body anymore. How can I expect to heal if I am beating it down with 4 or 5 different meds with such bad side effects?

I understand that some have parasites, yeast, etc, etc and have to go at it ful throttle but...I just don't see enough evidence that MOST people are recovering using this toxic method.

I am not against abx, I believe they have their place. Long-term, multiple brands, super high doses...I can't buy it. You have to look at when the risks outweigh the benefits.

I also wonder how much of the post-treatment symptoms are a direct result of the meds we took/take and not actually the disease itself...just something to ponder...Think about it, if you are experiencing an exacerbation of symptoms, ie Herxing, which is a result of the med causing die-off, whose to say this isn't something that could linger...not a herx, but actual *damage*?

Just thinking out loud...

jo3 you are not alone...I think there are many of us getting to the point you are at...

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momindeep
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I have also pondered the wisdom of long term abx. I have posted this before, and can ONLY relate my observations of my daughter this past decade.

My daughter lost her gall bladder because, I believe, of IV abx. Can she live without it?...yes, but it has been a major challenge getting her to a place that is normal again...caused a whole different set of problems.

The gut is what HAS to be functioning correctly for absorption...a healthy gut is significant to achieving health...and as years went by I can see the truth in this more and more and many posters here acknowledge this.

Fast forward ten years. My daughter has her digestive track and gut under control now...she did/does anti-parisitics, yeast support etc...and now that that is resolved, or at least under major control, her progress towards health is no longer a snails pace, but a sprint.

The approaches she uses that are different now are:

GF diet

No perscription abx

Gut support

Very minimal detox...some gentle herbs and an occasional colonic and lemon water

Energy testing

Utilizing both a LLMD and a LLND

Bottom line in my opinion, the gut is a key factor to whether we achieve wellness. Perhaps, if doctors focused on that FIRST...like preparing the body for treatment and then came after Lyme and co???

Years ago, her first LLMD, just shot abxes at her full force...didn't work...

Just my thoughts...and I have thought the same things as you RAW VEGAN.

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Karensky
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Raw Vegan and Momindeep ,

I am thinking along the same lines exactly as you 2 !

The "gut' issue is where I am at now , after years of ABX and

so many other "supplements" I have come to the conclusion , that

for what ever reason...it is my GI tract that needs to be healed

now , first and foremost...as I believe this issue is what is

preventing me from any further progress...I believe ABX have

their place in treatment...but I question the long term use of

them...good luck everyone...ultimately...we have to listen to our

bodies and be patient...healing can be a long process...

PS...really great to have you all chime in on this...to know I am

not alone with these thoughts... [Smile]

--------------------
"Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero

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lou
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If taking no abx works for you, go with it. Time will tell if this was the right decision.

I am still taking them because when I stop, the symptoms come back. There are very good documented reasons why this will occur.

It may be that autoimmunity plays a part, but my feeling is that it is infection-driven.

Sorry, I am not going to give any credence to IDSA. They have harmed too many people.

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steve1906
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raw vegan runner, thanks, I don't have to reply to this post now. I total agree with you and have written the same note, time and time again.

Jo3, If I was you I would finish the meds for 3 months. Then I would take a little break, and work on each remaining symptoms with herbs, and other natural treatments.

(ONE SYMPTOM AT A TIME). You been sick a long time, I hope you find some time that works for U.

Keep us updated! Good luck.....

--------------------
Everything I say is just my opinion!

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Shahbah
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Oh, thank you all for these wise observations!!!
I too think that abx just made me worse and worse, and I did not believe in herxing, as when you herx you are supposed too feel better afterwards, but for many of us we just keep going downhill...
I too KNOW that my major issues come from my gut wihc then sends inflammation to my brain...
The gut is responsible for the whole body: immune system, neurotransmitters, nutrients adsorption...
I think my problems come from a gut bacteria and research is linking gut issues with neuro diseases more and more... Abx just destroy our gut flora, no wonder why bad bacteria spread more, (and we keep thinking it's a herx?!...). For example, people with lupus are adviced not to take abx.. there must be a good reason to that...

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lululymemom
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I totally agree with Shahbah. You should feel better after the herxes and they should be short lived. We sometimes mistake side effects of the drugs for herx reactions.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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hopeful4
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No doubt you�ve given this your all. It can be so disheartening. I�ll share with you a recent experience I had in hopes that something I pass along may be helpful to you.

You stated that:
�My worse symptoms by far are the neurological ones-confusion,lack of focus,memory failure and downright stupidity! This is followed by fatigue-but I take a pill for everything-to fall asleep, to wake up, to help me with memory, depression��

This sounds a lot like me. I have been ill since 2000, and was diagnosed and began treatment in 2005. Here is what recently happened to me, and maybe is something for you to consider:

Recently I started to see a new PCP (primary care doctor) with a holistic practice. (My LLMD is in another city from where I live.) My new PCP felt that he could help to make my body healthier so that it could fight the Lyme better. He tested me for a couple of things no doctor has ever mentioned before.

First, he discovered that I have Hashimoto�s thyroiditis, an autoimmune disease in which my immune system is attacking and destroying my thyroid gland. (I have been on hypothyroid meds for 5-6 yrs.) He also tested to see whether it was the Th1 or Th2 that needed support, and therefore what supplement would help to bring balance back to my immune system (while also identifying what would hurt my immune system.) The Dr. who trained my Dr. wrote a book called �Why Do I Still Have Thyroid Symptoms� by Dr. Kharrazian.

Next, he identified a defective gene that I have, MTHFR. My methylation cycle is not working well. Therefore my body is not detoxifying properly, and he has given me methyl folate to help it.

These two diagnoses and treatment will help me with the things that you mentioned above: fatigue, memory, cognition, depression, etc.

Also, I must stop eating gluten. Gluten, in my case, causes a flare-up of the immune system, creating more inflammation, and impedes the metyhlation cycle. Also to help the immune system, I must go sugar-free.

I don�t know whether you have already been tested and treated for these conditions, but they are something worth considering. I am already noticing some improvements with about 4 weeks of treatment so far.

Best wishes for your recovery and healing.

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steve1906
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16 Interesting Facts About Antibiotics

Antibiotics are the first line of defense against many infections. Since penicillin was introduced in the 1940s, scientists have developed more than 150 antibiotics to help stop the spread of infectious diseases.

The ability of antibiotics to cure previously fatal infectious diseases has led to the notion that they are �miracle drugs� with �powers� that widely exceed those which can be attributed to their actual pharmacological properties. In most developed countries, antibiotics are the second most widely used class of drugs after simple analgesics.

But although these drugs have saved millions of lives, the misuse of antibiotics has caused problems.

1 Virtually all types of antibiotics act only on replicating bacteria.

Antibiotics are generally active against multiplying bacteria, but are much less effective against non-replicating (latent) bacteria.

2 Antibiotics can't distinguish between the "good" and the "bad" bacteria

There is a delicate balance of billions of bacteria inside our digestive tract. Bifido bacteria in the large intestine and acidophilus in the small intestine and vagina protect against infection by yeast and other bad bacteria. Also "friendly" bacteria found on the skin protect against bad bacteria, yeast and fungal infections.

Continued use of antibiotics, especially broad-spectrum antibiotics, can seriously disrupt the normal ecology of the body and render anyone more susceptible to pathogenic (disease causing) bacteria, yeast, viral and parasitic infection.

3 The worst thing one can do is to take only a few of the antibiotic prescribed

Shortened course of antibiotics often wipes out only the most vulnerable bacteria, while allowing relatively resistant bacteria to survive.

Naturally, you'll begin to feel better quickly. Then most people either forget to take pills, or stop taking them intentionally because they think the infection is gone. When this happens, the weakest bacteria are killed first.

But when pills are not taken long enough, the heartier bacteria are not killed. Not only do they survive, but since they have "seen" the antibiotic, they can change their structure so that antibiotic will not kill them in the future.

4 How antibiotic resistance happens?

Bacterial resistance to antibiotics is produced by changes in the bacterium�s DNA, called �Mutations�. One bacterium with a mutation can survive the antibiotic and reproduces millions more with the same resistance within the space of a day.

Antibiotic resistance results from gene action. Bacteria acquire genes conferring resistance in any of three ways:

In spontaneous DNA mutation, bacterial DNA may mutate spontaneously. Drug-resistant tuberculosis arises this way.
In a form of microbial sex called transformation, one bacterium may take up DNA from another bacterium.

Penicillin-resistant gonorrhea results from transformation.
Most frightening, however, is resistance acquired from a small circle of DNA called a plasmid that can flit from one type of bacterium to another. A single plasmid can provide a slew of different resistances.

In 1968, 12,500 people in Guatemala died in an epidemic of Shigella diarrhea. The microbe harbored plasmid-carrying resistances to four antibiotics!
5Antibiotics are not completely metabolized in the body and are released as active compounds into the environment

Many antibiotics are stable chemical compounds that are not broken down in the body, but remain active long after being excreted. At present, antibiotics make a considerable contribution to the growing problem of active medical substances circulating in the environment. Only little is known about the occurrence, fate, effects and risks associated with the release of antibiotics and other drugs into the environment (after being used in human).

6 Bacteria subsisting on antibiotics

Scientists found several strains of bacteria in the soil wich can not only tolerate antibiotics, but can actually make a meal of the world's most potent antibiotics5. This phenomenon suggests that this unappreciated reservoir of antibiotic-resistance determinants can contribute to the increasing levels of multiple antibiotic resistance in pathogenic bacteria.

7 The dosage is a very important factor in antibiotic effectiveness

If the dosage of the antibiotic is not adequate, it will not be effective for treatment of the infection and bacteria are more likely to develop resistance. This is because the bacteria can continue to grow and develop ways to disrupt the antibiotic's effects.

According to the Centers for Disease Control and Prevention (CDC), 18 million courses of antibiotics are prescribed (by doctors, i.e.!!) for the common cold in the United States per year, despite the almost universal belief in medical circles that colds are caused by viruses. In addition, an estimated 50 million unnecessary antibiotics are prescribed for viral respiratory infections. These and other un-needed antibiotic prescriptions, in addition to the many "correct" ones, are responsible for the increasing resistance of many strains of bacteria to many widely-used antibiotics: especially in hospitals.
8Who prescribes antibiotics inappropriately? Foreign, extra-busy and older MDs

When it comes to inappropriate antibiotic prescribing, all physicians are not created equal. Canadian study7 found that the doctors most likely to prescribe antibiotics in error are those who've been in practice longer, see more patients or trained outside Canada or the US.

The study found that international medical graduates are a shocking 78% more likely than Canadian- and American-trained MDs to give antibiotics inappropriately. That correlation, however, doesn't appear to be explained by poor knowledge. Some countries, Spain foremost among them, simply have more liberal attitudes about antibiotics use.

The study also found that doctors who see an average of 34 or more patients per day are 20-27% more likely to give antibiotics where they're not appropriate. The research also showed that for each year a physician is in practice, their rate of inappropriate prescribing increases 4%.

9 Virtually no new classes of antibiotics have been discovered in recent years.

The discovery of new antibiotics has slowed significantly. Developing new antibiotics has become too expensive for pharmaceutical companies for the expected profitability. At the same time, the government has reduced investment in infectious diseases because they have largely being viewed as treatable diseases.

The combination has led to a decline in interest in antibiotic discovery. The antibiotic development pipeline has dried up. This means that for at least the next 10 years no new antibiotic classes will come to market.

History of introduction of new classes of antibiotics1

Year introduced Class of drug
1935 Sulphonamides
1941 Penicillins
1944 Aminoglycosides
1945 Cephalosporins
1949 Chloramphenicol
1950 Tetracyclines
1952 Macrolides/lincosamides/streptogramins
1956 Glycopeptides
1957 Rifamycins
1959 Nitroimidazoles
1962 Quinolones
1968 Trimethoprim
2000 Oxazolidinones
2003 Lipopeptides

10 Antibiotics may act as growth/obesity promoters in humans as an inadvertent result of antibiotic pollution

The growth promoting effects of antibiotics were first discovered in the 1940s. The twentieth-century increase in human height and the obesity of the population is roughly observed since the mass consumption of antibiotics 40-50 years ago2.

11 Green tea boosts the bacteria-killing activity of the antibiotics

Green tea can help antibiotics be three times more effective in fighting drug-resistant bacteria, even superbugs, according to a study by researchers at Alexandria University in Egypt.

The results surprised the researchers, showing that in almost every case and for all types of antibiotics tested, drinking green tea at the same time as taking the medicines seemed to reduce the bacteria's drug resistance, even in superbug strains, and increase the action of the antibiotics. In some cases, even a low concentration of green tea was effective.

12 Antibiotics may interfere with immune system development

Children who are given broad-spectrum antibiotics before two years of age are three times more likely to develop asthma than are children who are not given such antibiotics3-4.

13 Antibiotic "spectrum of activity" and "potency" are not the same

A broad spectrum antibiotic is one that can kill many different types of bacteria. A narrow spectrum antibiotic is one that kills only a small variety of germs. Many people refer to a broader spectrum antibiotic as a stronger antibiotic, but spectrum and strength are not exactly the same.

If an organism is sensitive to narrow spectrum antibiotic like penicillin using a broader spectrum antibiotic will not result in any better cure. Antibiotics may have a similar spectrum of activity, but they may vary in pot ency.

14 Antibiotics are life-savers

Antibiotics have saved countless lives worldwide. When antibiotics were first used to treat bacterial infection they were hailed as the greatest lifesavers of all time. Before penicillin was discovered, infections were a leading cause of death. In 1900, the three leading causes of death were pneumonia, tuberculosis (TB), and diarrhea and enteritis, which (together with diphtheria) caused one third of all deaths6.

And at the same time...

15 Penicillin is the #1 cause of life-threatening anaphylactic shock

Penicillin and cephalosporin antibiotics have the highest allergic reaction rate of any other drug. Approximately 1 in 5000 exposures to a parenteral dose of a penicillin or cephalosporin antibiotic causes anaphylactic shock8. Anaphylactic shock (also called anaphylaxis) is a rapid and severe allergic reaction, and one of the scariest health emergencies. It starts when the immune system mistakenly responds to a harmless substance as if it were a serious threat.

16 More antibiotics are used on animals than on humans

More antibiotics are in fact used on animals than on humans. The WHO says more than half of global production is used on farm animals. In the last 30 years the use of penicillin-type drugs in farm animals has increased by 600%, and of tetracyclines by 1,500%. The main use of antibiotics in farming is in pigs and chickens.

http://www.emedexpert.com/tips/antibiotics-facts.shtml

--------------------
Everything I say is just my opinion!

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Shahbah
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hopeful4, how can a defective gene be helped? I don't really buy this idea , i agree with methylation problems but not genetical issues,otherwise we should be born with these problems...but we are not, so there must be some other organical issues that abx cannot address or just seem to make worse, especially in autoimmune conditions...
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steve1906
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It's up to everyone to decide what's best for them:

Why are Antibiotics a Serious and Growing Health Risk?


Antibiotics, those "cure-all" pills that we've all been taking since we were kids, are a true double-edged sword. While they have saved many lives when prescribed for bacterial infections-things like pneumonia, tuberculosis and meningitis-antibiotics are vastly overused and wreaking havoc inside our bodies.

Part of the problem is that, as a culture, we expect our doctors to prescribe an antibiotic to fix our (and our children's) cold, flu, earache and more. At the first sign of a sniffle, many of us still run to our doctor for a prescription, and some may request-or even demand-one.

But, while some 40 years ago antibiotics were thought to be the magic miracle pill and doctors prescribed them for everything from colds to acne, today we know that antibiotics are useless against viruses.

Viruses are the most frequent cause of infections. Upper respiratory infections, measles, mumps, chickenpox, shingles, glandular fever, cold sores, flu and gastroenteritis are common examples of a viral infection.


The Baby with the Bathwater
Antibiotics, however, do kill bacteria, and they do this quite well. The problem is that they not only kill the bad bacteria that may be causing your illness, but they also kill ALL bacteria, including the good kind in your digestive tract that your body needs, leaving barren territory for all sorts of trouble to brew.

You may already know the names of some of the friendly - acidophilus and bifidus. You can buy these in supplements called probiotics. Antibiotics upset the balance of these good bacteria in your intestines, paving the way for an alarming number of diseases to flourish. One of the most common is a systemic fungal infection.

Yeast are also a normal inhabitant of your digestive tract, but when the friendly bacteria are destroyed, they changed into a pathogenic form and create havoc if left unchecked. They can move into your bloodstream quickly and cause a very serious and very common infection called candidiasis.

If your gut is a perfectly balanced, or even fairly well balanced, environment, you are well on your way to enjoying a healthy, disease-free life. If, on the other hand, you were to look inside your gut to see it overridden with pathogenic bacteria, and yeast with very few friendly bacteria, disease will be just around the corner.

Antibiotics and the Superbug

How many of you have taken one round of antibiotics, found that you are still sick, and then taken a second and even third round?

When antibiotics were first used they could kill off most any strain of infection-causing bacteria. But all bacteria are highly intelligent and future strains of pathogenic bacteria mutated to become stronger and meaner.

These new, genetically changed bacteria are resistant to even our strongest antibiotics, and newer generations of these antibiotic-resistant bacteria are multiplying. The result is that we are now forced to create even more potent antibiotics to kill these more virile bacteria. In the end we humans lose the vicious cycle.

Now that we know that pathogenic bacteria have an astounding ability to adapt and will continue to overcome even our most powerful antibiotics we must find another way to fight back.

The key to build your own natural immunity and protect against these pathogens is to change your inner environment so no unfriendly bacteria would want to live there. And the way to do this is to make sure you have enough good bacteria present to keep the bad bacteria at bay.

The Baby with the Bathwater
Antibiotics, however, do kill bacteria, and they do this quite well. The problem is that they not only kill the bad bacteria that may be causing your illness, but they also kill ALL bacteria, including the good kind in your digestive tract that your body needs, leaving barren territory for all sorts of trouble to brew.

You may already know the names of some of the friendly - acidophilus and bifidus. You can buy these in supplements called probiotics. Antibiotics upset the balance of these good bacteria in your intestines, paving the way for an alarming number of diseases to flourish. One of the most common is a systemic fungal infection.

Yeast are also a normal inhabitant of your digestive tract, but when the friendly bacteria are destroyed, they changed into a pathogenic form and create havoc if left unchecked. They can move into your bloodstream quickly and cause a very serious and very common infection called candidiasis.

If your gut is a perfectly balanced, or even fairly well balanced, environment, you are well on your way to enjoying a healthy, disease-free life. If, on the other hand, you were to look inside your gut to see it overridden with pathogenic bacteria, and yeast with very few friendly bacteria, disease will be just around the corner.

Antibiotics and the Superbug

How many of you have taken one round of antibiotics, found that you are still sick, and then taken a second and even third round?

When antibiotics were first used they could kill off most any strain of infection-causing bacteria. But all bacteria are highly intelligent and future strains of pathogenic bacteria mutated to become stronger and meaner.

These new, genetically changed bacteria are resistant to even our strongest antibiotics, and newer generations of these antibiotic-resistant bacteria are multiplying. The result is that we are now forced to create even more potent antibiotics to kill these more virile bacteria. In the end we humans lose the vicious cycle.

Now that we know that pathogenic bacteria have an astounding ability to adapt and will continue to overcome even our most powerful antibiotics we must find another way to fight back.

The key to build your own natural immunity and protect against these pathogens is to change your inner environment so no unfriendly bacteria would want to live there. And the way to do this is to make sure you have enough good bacteria present to keep the bad bacteria at bay.

The Baby with the Bathwater
Antibiotics, however, do kill bacteria, and they do this quite well. The problem is that they not only kill the bad bacteria that may be causing your illness, but they also kill ALL bacteria, including the good kind in your digestive tract that your body needs, leaving barren territory for all sorts of trouble to brew.

You may already know the names of some of the friendly - acidophilus and bifidus. You can buy these in supplements called probiotics. Antibiotics upset the balance of these good bacteria in your intestines, paving the way for an alarming number of diseases to flourish. One of the most common is a systemic fungal infection.

Yeast are also a normal inhabitant of your digestive tract, but when the friendly bacteria are destroyed, they changed into a pathogenic form and create havoc if left unchecked. They can move into your bloodstream quickly and cause a very serious and very common infection called candidiasis.

If your gut is a perfectly balanced, or even fairly well balanced, environment, you are well on your way to enjoying a healthy, disease-free life. If, on the other hand, you were to look inside your gut to see it overridden with pathogenic bacteria, and yeast with very few friendly bacteria, disease will be just around the corner.

Antibiotics and the Superbug

How many of you have taken one round of antibiotics, found that you are still sick, and then taken a second and even third round?

When antibiotics were first used they could kill off most any strain of infection-causing bacteria. But all bacteria are highly intelligent and future strains of pathogenic bacteria mutated to become stronger and meaner.

These new, genetically changed bacteria are resistant to even our strongest antibiotics, and newer generations of these antibiotic-resistant bacteria are multiplying. The result is that we are now forced to create even more potent antibiotics to kill these more virile bacteria. In the end we humans lose the vicious cycle.

Now that we know that pathogenic bacteria have an astounding ability to adapt and will continue to overcome even our most powerful antibiotics we must find another way to fight back.

The key to build your own natural immunity and protect against these pathogens is to change your inner environment so no unfriendly bacteria would want to live there. And the way to do this is to make sure you have enough good bacteria present to keep the bad bacteria at bay.

The intestinal tract should normally be comprised of 15 percent beneficial bacteria and 85 percent neutral, but with the onslaught of antibiotics, chlorine in our water, birth control pills and steroids, all of which upset this balance, most of us have more like 85 percent bad bacteria and 15 percent good or neutral.

How to Reduce Your Need for Antibiotics ... and Protect Yourself in Case You Must Use Them

Fortunately for us, our bodies are remarkably intelligent and quite capable of keeping us healthy if we give them the right "tools." The key to fighting off illness within your body (this includes not only bacterial infections but also viruses too) is to balance the good and bad bacteria in your gut.

Probiotic supplements have recently become increasingly popular in the United States for this reason, but there's another way to get good bacteria in your system-and it's quite tasty! Cultured foods, things like kefir (a fermented milk drink that tastes like tart yogurt) and traditionally fermented sauerkraut and other vegetables and are the best sources of probiotics around.

So whichever method you choose (choosing both the supplements and the cultured foods is best), be sure that your body is getting a steady source of good bacteria. Once your gut is balanced and healthy, you'll have to worry much less about illness in the first place, because at this point your immune system will be functioning at its optimal, disease-fighting level.

IMPORTANT NOTE #1: It is absolutely essential to eat probiotic foods and drink probiotic beverages like kefir if you must take an antibiotic. They are a much smarter "antibiotic", as nature, which is far smarter than humans, has equipped them with the innate ability to know which bad bacteria to attack, and which bacteria to leave alone.

If you consume them during antibiotic therapy, they will continually replace the good bacteria that the antibiotics wipe out. Then continue eating them for a minimum of three months to ensure that you renew a new, healthy "inner ecosystem" in your intestines. Best yet, incorporate these delicious new foods into your diet forever. You'll be very glad you did.

IMPORTANT NOTE #2: If you purchase probiotic supplements like acidophilus and bifidus from your local health food store, please know that they are not as hardy as probiotic foods. So take very large amounts of these supplements if you must take antibiotics.

http://www.sixwise.com/newsletters/05/08/10/why-are-antibiotics-a-serious-and-growing-health-risk.htm

--------------------
Everything I say is just my opinion!

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j_liz
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Next month will be 3 yrs. of abx for me. They brought me a long way for the 1st 1.5 yrs. and have done nothing since. I have almost a full box left of Bicillin LA and I don't want to take them. Why should I?

They aren't benefiting me anymore, as a matter of fact I may be going a bit backwards. So, I told my LLMD I want to try a natural approach again. She wants me to continue to take the abx until they are done.

After reading Steve's posts I am not going to. It's time to move on, especially since I have Ulcerative Colitis.

It disheartens me that I am on so many meds for all the damage Lyme has caused, too, but my LLMD says I need them. [Frown]

I hope to be able to stay off the abx. If I get as bad as I was when I had to give up the natural approach before, then I will probably go back on them.

jo3, I hope you find what works for you and I hope that for all.

liz

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jo3
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Wow- I definitly don't feel alone and appreciate all the suggestions. I also like the fact that many of you don't go onto the "don't give up" theory-I have earned this and deserve it. Anyway, to answer a few things-

I've never been checked for parasite
stopping everything is very scary since I did that before and it all came back and kicked me in the face
I'd consider stopping the ABX and anything not necessary-but I'd rather have energy(Provigil) and not be a total ***** if I continue to take Pristiq and Wellbutrin!
Interestingly enough, I did have my GB removed way before I got Lyme-then had a hernia and have had tons of other gut problems...related?
My thyroid is constantly checked- and mysteriously, it keeps getting worse.
Gluten is too expensive to buy
Sugar free? it gives me energy to endure the day-and I literally crave it beyond belief.

We should start our own little"giving up on Lyme" club!

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jo3
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Thinking totally natural- has anyone tried Reiki or acupuncture?
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steve1906
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Hi Jo3, I tried acupuncture and loved it. It wasn�t a cure all, but it did make me feel a lot better at the time.

It can get pretty costly, but so does all the meds and doc visits we do.

I�m thinking about going back very soon, it�s worth a try. Let us know how you make out if you try it.

--------------------
Everything I say is just my opinion!

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raw vegan runner
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I am trained in Reiki as well as massage/Ayurvedic massage. I will say though I do not feel Reiki *cures* me, it does make me feel better, and helps me sleep. I usually 'self treat' before I go to bed. I have also used it when my gut pain was horrid and it did seem to help aleviate some of the pain.

I have heard accupuncture is fantastic but I can't get past the whole needle thing...(says the gal covered in tattoos...)

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steve1906
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The needles they use today for acupuncture are all throw away, new ones everytime, so its 100% safe as far as that goes.

Also, you don�t feel any pain from the needles.

--------------------
Everything I say is just my opinion!

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jo3
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But when you use these new techniques do you just go and say, "Hey, I have Lyme, cure me". Is there any research out there supporting these alternatives?
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elizzza811
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You might want to consider this as the cause of your remaining symptoms...

Electro Hypersensitivity - Talking to Your Doctor
http://weepinitiative.org/talkingtoyourdoctor.pdf

German Doctors Unite on RF Health Effects:
http://www.powerwatch.org.uk/news/20050722_bamberg.asp

Google Antenna Search, too. Seriously...

--------------------
Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y
Halt Universal Broadband, A Public Health Hazard:
http://tinyurl.com/3x7xrmq

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jo3
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I've never done IV's because my doc in Louisiana can't prescribe across state lines and I'd have to find someone here to supervise the treatment. Everyone's been run out of Tx and the only one in Houston didn't think it was necessary. Maybe if that would of happened, then I would have gotten better sooner. Then again- would of,should of,could of-should never exist.
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jo3
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I've never done IV's because my doc in Louisiana can't prescribe across state lines and I'd have to find someone here to supervise the treatment. Everyone's been run out of Tx and the only one in Houston didn't think it was necessary. Maybe if that would of happened, then I would have gotten better sooner. Then again- would of,should of,could of-should never exist.
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little_olive
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Hi again, jo. I had asked up there, Did you ever test positive for any of these infections or was it a clinical case?


little olive

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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jo3
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Yes-I tested positive for Lyme since 2002.
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Queenie Pie
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Hi jo....I'm with you.....My LLMD Neurologist told me 6 years ago that there was no cure for me after treating me for 3 years.....I held on to hope, chased he dream and went back on antibiotics last year for 10 months...I spent alot of money on meds and just got more problems due to side effects from the meds....I'm done with antibiotic treatment....I have now accepted the fact that my LLMD was right.....I don't view it as giving up...it's just starting a new chapter in my life and accepting the things that I cannot change and accepting that this is the way my life is going to be.....I address the 3 major issues that impact me the most....pain, sleep and depression....Hope my story is helpful to you.
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BackinStOlaf
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This thread is so scary [Frown] I am so sad that we all have to go through this.

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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jo3
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I'm so with you Queenie Pie- I did my time and what I should of done according to the experts and it didn't work out. So be it-it is what it is and now I just have to learn to live with it. I really have never considered myself sick-until i think about it and then realize I really am. I'm not obsessed with Lyme-it's just the deal we all got in life...it could be worse, I guess.
Serenity-Courage-Wisdom

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Lymetoo
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quote:
Originally posted by jo3:

Gluten is too expensive to buy
Sugar free? it gives me energy to endure the day-and I literally crave it beyond belief.

-
If you are craving sugar beyond belief then you must have a bad case of yeast/candida. It will make you crave carbs and sugar.

If you do not get that under control, I doubt you will ever feel well. Just my opinion from my experience.

As for gluten .. eliminate it. Do NOT eat gluten free breads, etc. Eat proteins and vegetables. The occasional GF bread or cracker is not going to cost that much. I probably spend $10 a month on GF foods.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Caniggia
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Lyme has taken my life. And I just thought it was a depression for 6 years. It wasn't it was Lyme + Co infections.

--------------------
My blog about my condition - http://borreliawenttofar.wordpress.com - Diagnosed with cellular activity for Borrelia, Ehrlichia, Chlamydia Pneu. Also have the herpes simplex virus.

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365SunnyDays
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Jo3, I've had these bugs for at least 12 years, and have been treating only for about 8 months now. I have lots of symptoms, but, thankfully, am not disabled by this disease.

After the Buhner protocol did not work for me, I took 4 months of antibiotics, which helped a bit but landed me with yeast overgrowth. I also felt that they were making me more sick and somehow that my body could not handle them. I treated the yeast with pharma antifungals, am now treating the yeast with natural supplements.

I've been having acupuncture 1-2 times a week for about a year. I've found that it helps to calm me, which overall boosts my system. It also helps to calm my stomach. And a few times I experienced something similar to a herx afterward (which, I understand, is unusual for acupuncture). I am convinced that it does something and might be helpful to support the overall body's healing.

I'm now looking into more alternative treatments. I am seeing a doctor (who believes in Lyme, but is not an LLMD). He he believes that if my hormone levels are closer to ideal (particularly thyroid), the body have more strength to heal itself. As Hopeful4 notes above, that might be another route to look at (not necessarily to cure, but to feel better and then have the body get stronger to do some of the curative work on its own).

For myself, I'm trying to stay hopeful that these other approaches may help me, as I cannot go the antibiotic route (and I did not stick it out for nearly as long as you!) Hope my experiences may be at least somewhat helpful for you.

--------------------
We really know so little about the body and the microbiome.

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jo3
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I am checked monthly for Yeast and i come out clean. When it has come out, I've been given Diflucan. It seems like I'm doing everything right-just not getting better.
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Lauralyme
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Yeast tests are highly inaccurate

Yeast symptoms are very similar to lyme

Keeping a strict diet is very important

Have you tried RIFE?

--------------------
Fall down seven times, get up eight
~Japanese proverb

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sutherngrl
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Just my experience.......I started out with moderate to aggressive antibiotic dosing and did not improve for a whole year and a half.

Then I started low dose Doxy, the low and slow approach. For the past year and a half I have been improving with this method. I now believe that low and slow is what works.

With aggressive treatment you overload your body with more than it can handle. Going low and slow puts in enough antibiotic to slowly do its job without over stressing the body.

After a year and a half of low dose Doxy, I am very close to remission. I have come a long way, as I was very ill to begin with.

I would try the low and slow approach before giving up on antibiotics completely. According to my doc your tissues can only absorb a certain amount. When you go beyond that, you stress the body.

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jo3
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No rifing yet-I do like the low and slow approach. I'd like to jot down everyone's ideas and take them to the doc in June.
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MichaelTampa
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Another idea in the completely different arena is classical homeopathy. If you can get a really good one, perhaps there is something in your constitution that is making it difficult for the problem to resolve through normal means.
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jo3
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You know I am thinking about homeopathy. I did do it while in Mexico and although it is a slow process and can make you worse before it makes you better, it does work.One problem I foresee, is that many doctors don't know anything about Lyme, let alone, how to treat it. I don't know if being in Tx. where Lyme apparently doesn't exist and doctors are run out of the state,would even touch it.
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little_olive
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Low dose naltrexone?

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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Lymetoo
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quote:
Originally posted by Lauralyme:
[QB] Yeast tests are highly inaccurate

Yeast symptoms are very similar to lyme

Keeping a strict diet is very important

-

--------------------
--Lymetutu--
Opinions, not medical advice!

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aMomWithHope
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I wish you much success and hope you will keep us updated. I've wanted to get my child off abx since the day we stared, but we're following the "expert's" advice and only see her getting worse--

Hoping the LLND we see in a couple of months will help us get off abx--of course, then I'll worry that that's the right decision too--

It's definitely a scary decision.

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jo3
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Lyme sucks...the life out of all of us! Has anyone tried IV Chelation and Nutrient (or nutritional) therapy?
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Haley
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J03 - This thread is discouraging. I have the same symptoms, basically my brain doesn't work.

If I had aches and pains I could see trying a different route but how can you function without your brain?

If I don't get my brain back, I'll lose my job as well as many other setbacks.

Are you able to work still?

Please post again when you have been off of meds for a while.

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fflutterby
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I went back to work after treating for 4 months, I am improving. It is not easy but I push through. I am keeping my eye on the prize. My brain is coming back, I have been treating 6 months.

--------------------
Psalm 46 1 God is our refuge and strength

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jo3
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I'm a teacher and it's very hard to stay focused,remember so many details and do a good job. The doc says it's too much stress for me but that's all I know how to do. i feel stupid, my fourth graders catch me on a lot of mistakes and I really want to get out of teaching but I don't think I can handle anything else. I'm afraid if i do something different, adults will catch my stupidity. I had an IQ test a while back-it was an 84-that's a fourth graders IQ-how depressing is that .I don't know if it was accurate and I know deep-down I'm not stupid, but I screw up big time and i too, have been afraid I'll lose my job.I wish I could get disability but I know it's very hard and i can't live on that amount each month.
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fflutterby
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I hear you, I make mistakes too and it does suck when people without my background and experience are catching me in them. I have to work, I have no choice so I just pray my way through it. Disability ? I wish, but that would be too humane in this country for some reason.

--------------------
Psalm 46 1 God is our refuge and strength

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jo3
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Too funny about the humanity-doesn't it just suck that our lives are in doctors and insurance companies hands? My Lyme has frozen me-I feel I can't go any further-get another degree-even get another job, not just because I feel stupid but because oftentimes, I am. It's not just the regulars: leaving the oven or, not paying bills-it's the difficulty of getting through the day. I most especially enjoy when people say, "Don't you remember...?"
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jo3
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I don't mean to pull anyone down with my case-I've heard how discouraging this is. It saddens me to see how many people here have gone through the same-some plugging through and succeeding and others, having to change course. Too bad this disease is not a "once size fits all"-too bad it seems that no one with chronic Lyme is ever cured. So we go into remission, maybe for years, and it comes back with a vengeance-THAT's disheartening. When i lost my first doctor, had no choice but to just get by, I did OK-for a while. Then I left the stove on, the keys in the front door at night, and forgot how to get to work-living only 1 minute away-and had to look no choice but to look for someone else.I LOVE my doctor-he works with me and is just as discouraged and baffled as I am-but when the expert says it's as good as it's ever get, you get a little worried. He said he's had 493 patients who are either cured or in remission-am I the ONLY one? My luck isn't good, if something can happen to someone, it's gonna be me-but I find that incredible to believe. I'm taking note of everyone's suggestions and really appreciate your thoughts and experiences-that to me, is the best medicine!
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steve1906
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Hi Jo3, (you wrote this)> I don't mean to pull anyone down with my case-I've heard how discouraging this is.

Don't feel this way, you keep posting, don't stop asking questions.

You're not along, including myself. I didn�t see any negative feedback in this post, even if there was; that�s okay.

We�ll never all agree on these subjects. I think the person that said this is (discouraging) � was just making a comment � it wasn�t directed at you personally!

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Everything I say is just my opinion!

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jo3
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I know of course, that no one is being offensive nor did I take it that way. Usually, i am an optimistic person and we all need to be hopeful here. When others have wanted to throw in the towel, I've tried to encourage them also. I don't want others to feel depressed by what I write but i need the advice at this point from experienced Lymies!
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steve1906
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Don't worry about what other people think, we ALL need to communicate - WE ALL need each others help!!!

--------------------
Everything I say is just my opinion!

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phyl6648
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Jo3, Thank you for your post. I totally agree you have tried and there comes a time to not give up but accept reality..
I so agree about the abx. My LLMD has been up front and honest with me. Built the Immune system, treat the inflammation and hope for the best.. Some respond to treatment others do not.
God Bless,

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annier1071
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Jo..

I hear you after only 4 months and two neg igenex tests as well as many negative tests on the outside and a negative cd57.....

I am done too. ALtough many mris have found other serious issues that could be the cause of my constant vertigo...seeing an ortho today and gonna start PT for my neck and back..I have hernaited discs in neck and buldging, arthritic and a tear in most of my lumbar discs as well aa degenerative arthritis in both knees..now wonder I am in pain!!

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Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin.

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MichaelTampa
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The classical homeopaths would, generally, tend to not care if you have lyme or not. They are looking for an underlying constitution and treating it. They would not be treating lyme disease, just the person, which could in theory help you deal with and fight the lyme disease better.
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steve1906
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Very true "MichaelTampa"

--------------------
Everything I say is just my opinion!

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map1131
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When I had 3 yrs of every abx and combo and a great LLMD and he wasn't sure where to turn next with me......I decided abx hadn't worked in fact I'm even more ill with it.

I would suggest you put your energy into new ideas. I bought a rife machine in '04. I'm not claiming a cure because I've not experienced that myself.

I keep getting tick bite several times in the last years? So my picture is blurred by who knows what.

But rife has taken the "I'm dying a slow miserable death here". Rife isn't easy road either.

Herxes are hard for months. One must combine any number of other detox protocols with it.

There are so many options and roads you can travel just by reading and doing some research on this site alone.

Go fight the good fight!!!!!!!!!!!!

Pam

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"Never, never, never, never, never give up" Winston Churchill

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jo3
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All these meds are now messing up my stomach-I'm on Biaxcin and Ceflin-or something like that along with Flagyl and Claforan. I don't know if I'm gonna last the 3 months-I spoke to someone yesterday who mentioned that my progesterone could be low and that's why my thyroid isn't getting better-I'm on synthroid and started at 60 and now have climbed to 150.He said to have my hormonal levels checked-even though they were checked about a year ago. He's convinced that if I get my levels under control, my thryroid will improve, i'll feel better and the Lyme may get under control. Sounds logical. He mentioned some other illness that I can't remember _darn-something he found out about at the mayo Clinic- he is a Dr. of Natural Medicine-knowledgeable, but cocky and arrogant.
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