No clear cut diagnosis at this stage with me. I do feel that based on symptoms I've had Lyme for 10 years now. Both knees and some finger joints have noticable swelling, along with a slew of other symptoms. The symptoms of most concern in recent time are constant chest pain and vascular "congestion" for lack of a better term.
I would like to know if anyone else with Lyme or a co. inf. has had problems with veins suddenly becoming varicosed or visible.
For me it started near summers end a couple of years ago. My ankles had no visible veins, nad over the course of approx two weeks I developed this "maze" of very noticable bulging lage veins all around one ankle. Next the started showning up along my legs, again very sudden. I'm a thin guy so I've always had some veins that showed through the skin, but nothing like this and they came about suddenly with no other symptoms or injury. Next they showed up on the back of my hands. a 300% increase and very quickly. Since then they continue to show up all over my body chest, abdomen, arms, legs, face, etc. I can now see blue veins in the palm of my hands where I could see none just several months ago. One night I went to bed with no spider veins along my penis, yet after waking the next morning I find a maze of spider veins. (yes overnight) In recent weeks small spider vein outbreaks have been occuring in the same places that the larger veins did in previous months/ weeks. This bizarre symptom has been very worrisome and I know in my mind that it has something to do with lyme. Its seems as if somehow the vascular tissues are breaking down. i have never read of this being a symptom though so I thought I would post about it and see if there are others.
Posts: 22 | From Vidalia, Georgia | Registered: Nov 2010
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posted
Veins popped up all over my body as well about 1-2 months after the bug bites...
Posts: 70 | From U.S.A. | Registered: Dec 2008
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
yes yes yes, Veins & now blood clots.. on blood thinners, believe blood thinners while having lyme is a good thing, keeps them flowing, there is a war going on in your veins. my llmd seems to say the thinner hits the cyst and sturs up the bacteria, and it trys to move on to safty. While the antibiotics attack them again and again in there disruption. thinners also go deep into areas easier, also so goes the antibiotics.. I had 3 blood clots and even my reg MD thinks the bacteria(we call lyme & co's) masses up with blood and the veins block... try to get ahead of the clots, my viens did just as yours, minus the private part... the first warning was my bottom blood pressure number was 102... i am on lisinopril a type of thinner/vien enlarger... get a LLMD, are you smarter then this disease?
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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karenl
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posted
Not only lyme can cause large veins, also some parasitic diseases which live in the vessel walls. If I remember well cpn also is in the veins.
Posts: 1834 | From US | Registered: Oct 2008
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posted
Well this is good to know, at least it's possible for lyme to cause vascular issues. this just reinforces my suspision about this being lyme in spite of what local docs think. No LLMDS around here, and all that are far away from here have a long wait list with cash up front deposit. which wouldn't be a big issue if I thought I could make it that much longer. I don't think that will be the case.
My veins also itch at times especially when they are enlarged the most, or when trying to do some sort of physical activity.
Posts: 22 | From Vidalia, Georgia | Registered: Nov 2010
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Many patients suffer from a condition called NMH or Neurally-Mediated Hypotension. (Hypotension means low blood pressure and neurally-mediated means caused by the brain.) Many doctors are not aware that it is often a symptom or side effect of lyme disease. NMH is a miscommunication between the brain and the heart that can cause lightheadedness, dizziness, weakness, fatigue, nausea, mental confusion, headaches, muscle aches and profuse sweating.
It can occur after exercise, a period of standing (or even just sitting upright), or exposure to a warm environment. Some experience the symptoms after emotionally stressful events, since an inappropriate response to adrenaline is involved. Some experience the symptoms soon after eating, when blood flow shifts to intestinal circulation.
Instead of sending signals to speed up the heart, the brain tells the heart to slow down and the vessels in the arms and legs to dilate. Blood pools in the extremities and not enough stays in the brain. Keep in mind that even people with high blood pressure can experience NMH. NMH is a symptom not a cause. NMH is part of the larger picture of disregulation of the autonomic nervous system common with lyme. NMH is often treated with a drug. However, many national specialists recommend a salt and water protocol.
Posts: 789 | From CT, | Registered: Jun 2006
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posted
Humm scary stuff. I've been to so called vascular experts, who first of all only want to deal with certain portions of the legs. (they would not even look at my hands or chest) Next they only want concentrate on it being a "reflux" issue or leaky valve issue. None would even talk about heart or neurological issues coming in the picture.
From what I'm reading above this doesn't sound like something that can be reversed. If the current trend continues I'll look like a plate of blue spagetti eventully.
Posts: 22 | From Vidalia, Georgia | Registered: Nov 2010
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posted
terri540, i had undiagnosed lyme for 4 yrs.even went to doctors with embedded ticks but elisa was neg so never treated.after one year from initial bites and the whole year being very sick i noticed i could not stand up for long periods,i am talking 20mins with out veins starting to bulge on legs then it progressed to groin area then veins were bulging up the left side of my abdomen and arms.i would feel immense pressure and pain with heart palps and feel i was going to pass out.i had a ct scan which showed my pelvic veins and ovarian were almost 4 times the size they should be.at this point no one new i had lyme and i was diagnosed with pelvic vein congestion and had a surgery to embolize the veins which basically failed because it was not coming from the pelvis.other veins including kidney were still dilated.i was scared and still scared out of my mind.i have had venograms and angio's and they still cannot find were the pressure is coming from.while visiting a top vascular specialist i was finally given a western blot which was positive and this specialist reviewed all records with lyme dx and asked me if i new how sick i really was.well i know how sick i really feel.he did not want to do anymore test treatment until lyme was fully addressed and told me i would be on lyme treatment for a very long time.there are doctors realizing how severe this lyme disease is now.i still have not been able to get my llmd to do intravenous even though my ins is willing to pay for some.i still have very bad vein issues.when going on antibiotics sometime they get worse.i just had abdominal surgery two weeks ago and the vein thing flaired.i am going through the same and would love more info on this or anyone else diagnosed with pelvic vein congestion.
Posts: 125 | From western mass | Registered: Sep 2010
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posted
Wow I thought I was just geting old or something. I have horrible large veins all down my legs right to my feet. Sometimes they even hurt. I have very thin shins yet the veins are all down the front of them and look horrible.
My hands look like a 90 years old woman, yet no one can get blood from me when they take a blood test. My MD said some lighter skinned blonde people have veins closer to the skin? I figured he was right?
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
Hi, my vein issues is actually what led me to lyme diagnosis. Years ago I had what looked like lace on my thighs, which was called Livedo Reticularis. After a couple of years of treatment it went away Unfortunately soon after I started noticing some patches on my feet. I'm hoping those too will go away with the continued treatment.
Pam
Posts: 60 | From Northern Va | Registered: Jan 2006
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
tomorrow I go to a DVT/PAD/PVD Specialist, my feet have been freezing for yrs, no one addressed it,after my last 3 blood clots, and a catherization from my groin to my heart a month before(jan 2011) i walk 24/7 with a cane. With pain everywhere like poor circluration in head,eyes,hands liver and adominal acuteness, worse when lying down,pairralized feelings in limbs,never sleep, yet-on the fullest moon slept 9 hours and worse morning ever. have LLmd says stay with forcing the reg md to keep seeking and moderiating my health..my sugar was 143 at the highest in 10 yrs (norn 104). many many many lab and test, always good. then why am i losing my mobility ? pray for me as i again jump from the burner to the oven with more doctoring.. plaqunil maybe a culprit,stoped in nov. 10- only on amox till things get a better footing. staying ahead of the next thing is wearing me OUT..........see my LLmd friday 25th of march. will, forward any news of why ? and if this is all lyme and everything checks good again - i am going to start drinking whiskey.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
According to Dr. S' book broken veins and spider veins are caused from bartonella. Do you have any other bart symptoms?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
does bartonella cause vasculitis?....
Posts: 723 | From Montreal | Registered: Oct 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
cpn is also a vascular disease, see cpnhelp.org. There is a protocol with doxy and azithro etc.
Posts: 1834 | From US | Registered: Oct 2008
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Try a supplement called "Stoneroot" for vein health.
I take it for hemrhoids and they are history.
You can get it at vitacost in tincture form.
Posts: 1761 | From USA | Registered: May 2006
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posted
An ND told me that when estrogen is low the skin thins out and then veins begin to stand out. Digestion can suffer too (acid reflux et al) because the lining of the digestive tract also wears thin in this situation.
Men and women both have certain amounts of male and female sex hormones.
I can't imagine that hormones would drop overnight and veins would stand out overnight in such a hormone-based situation. But you never know.
Have you had this officially diagnosed?
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payne
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posted
update from above, AGAIN ALL my studies on PAD/PVT/etc... can out great, the lady that did the ultra sound said (at 55) you have the veins of a 30 yr old... Really ? then why have i had triple blood clots in my legs... the MD/vien surgeon laughed out loud at why..? am I wasting time on my veins, They are no problems... Really ? I asked him about all the spyder stuff and frezzing feet.. and loss of mobility ? He replied " you said you have Lyme " didn't you..? OK, so, i canceled all my future studies and test, lab works and appointments. I have had over 70,000.00 dollars in finding out I have a great heart and great veins, yet, it feels ice going thru them..? Its all on my LLMD from now on. and he has slowed up while I have been fighting my blood clots, (right leg) Has had me on amoxicillin for now. did zith/plaq in nov. 2011- all i can say is "it will pass or i will"
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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Unfortunately soon after I started noticing some patches on my feet. I'm hoping those too will go away with the continued treatment.
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