posted
Stuck in bed for days. No desire to eat or drink. Feeling depressed. No doc available until Monday. This has a weekly cycle for months. Restarted bicillian IM yesterday. Has not helped.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I am sorry you are feeling bad. Not sure what I could do to help other than say a prayer for you. You must eat and drink, this is important. I pray you feel better and can hang in there !!! Praying healing and comfort for you tic chic.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
Thank you and just had a small portion of soup and water. Happy just to do that. Prayer working.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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posted
Thank you and just had a small portion of soup and water. Happy just to do that. Prayer working.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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posted
To Tic Chick: Oh...I've been there some often; that point where you're just "done" with it all. It's sad to say but I think it's very common when you're dealing with a chronic illness and when the treatments make you feel worse before better. But this is when you, and all of us really, need to cling to your faith and trust that God will see you through it.
Sometimes, when I know that "funk" is coming, I try to employ different things that are comforting. Even if it's a friend visiting while I lay on the couch or an old movie that I love or playing my ipod with inspirational music in the background.
I hope and pray you're filled with joy and peace regardless of how crummy you feel. Hang in there. People care about you!
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Yes, we must pray for each other. There is so much power in it. Rest when you can, eat what you can and pray through it all! I will continue praying for you, tomorrow will be a better day !
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
Will also be praying for you all. Thank you flutter, mcaring.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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Just remember I am laying right there with you and feeling the same. I spend my days crying, no sobbing...then I get over it...get up and try to look at the sun, blue skies and in new york, pray for 70 degree weather soon.
You are not alone..thinking of you from NY
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
TuTu and Annie, thank you for the prayer, it means sooooo much to know that I have company out there and we will beat this....God is bigger than this. Prayers coming right back to you both. <3
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
A weekly cycle says babesiosis to me.
Babs treatment brought out a weekly cycle in me. I got sick every Friday evening and stayed that way until Sunday evening as soon as I started babs treatment.
I just lay. I didn't eat or drink, didn't talk, didn't get up or move, went in and out of consciousness, and had a horrible feeling of DOOM the entire time.
Lyme doc said babs has a weekly cycle and that I was experiencing babs flares. So, he added artemesinin to my babs treatment--to be taken on the days of the flares. I started the art on Friday morning (right before the flare was scheduled to start).
That weekend, the flare was delayed (thanks to the art) until Sat. afternoon and only lasted 6 hours, and it was mild--no DOOM, no zombie act, etc.
Each weekend with the art the flare got less and less until it jumped to every other weekend. Then, finally no more flares.
So, if you are already treating babs, try adding art to encompass the flares. If you are not treating babs, suggest you ask for babs treatment with artemesinin.
Burrascano says that babs symptoms cycle rapidly with flares every 4 to 6 days (page 26)
I hope this helps you in some way. Those weekend flares were absolutely horrible--mentally and physically. 48 hours of pure hell.
Let us know, OK?
Posts: 9931 | From Maryland | Registered: Dec 2007
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