LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Help!! When is IV ABX treatment appropriate?

 - UBBFriend: Email this page to someone!    
Author Topic: Help!! When is IV ABX treatment appropriate?
Babbs
Member
Member # 27887

Icon 1 posted      Profile for Babbs     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was dx last year, (Igenix) symptoms for 20 years, and have been on all the usual oral meds and supports, diets, etc.

I had a two week period not long after starting when I was completely pain free, then it ended and I have been in various states of decline ever since. Now the pain free time seems like a cruel joke and wish it had never happened.

My doc is very responsive and changes up my meds as needed. Some have been changed as I did not tolerate them from a GI standpoint; some were changed because I wasn�t progressing. I believe he has been correct with the meds he is choosing for Lyme and co-infection coverage and he has done blood tests and other tests appropriately.


However, it is getting hard to walk, move in bed, dress and groom. I am becoming very weak, hard to lift my arms and legs. I drag myself to work but have been making mistakes and it�s hard to hide my symptoms as I gimp down the hall. I don�t know how much longer I can keep this up. It takes every bit of energy I have.

I also have a heart block rhythm that nobody seems too worried about but I have worsening symptoms of heart failure and fluid overload.

Depression doesn�t start to cover how I feel about life; I am plagued with bouts of rage, confusion, now crying and hopelessness. Yet some days I wake up and none of the mental issues are there.
[confused]
My questions are: Is IV antibiotic treatment more effective and when is when is it appropriate to be switching to IV treatment? As long as I am working I have great medical coverage, but, #@%^@^%, soon enough I am not going to have a job. Should I push to do IVs?

My MD rarely talks about this option and when he has he said it was reserved for neurologic manifestations. How �neuro-manifested� do I need to be?

Help. Please. Thank you.

Posts: 31 | From Wisconsin | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

Icon 1 posted      Profile for Lymeorsomething     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hang in there, Babbs! Often LLMDs will employ IV in cases like yours to reduce infectious load. After several weeks of IV, they could then move you back to oral abx.

Is it effective? Not always but if you haven't tried it yet it may be worth a shot.

You could also add a herbal protocol to your oral regimen.

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693

Icon 1 posted      Profile for Dawn in VA     Send New Private Message       Edit/Delete Post   Reply With Quote 
IV helped me a lot. I did relapse, but I had to stop early due to PICC line issues, and it was also under a regular ID doc, so no combo Tx- just Rocephin.

If you're not making progress on orals- and it sounds like things are even getting worse for you right now, not just at a plateau- it's certainly worth considering.

--------------------
(The ole disclaimer: I'm not a doctor.)

Posts: 1349 | From VA | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't know very much about IV, so I'll leave that to others.

but I wondered if you'd been treated for coinfections yet? Especially babsesiosis??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96229 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
dsiebenh
LymeNet Contributor
Member # 5353

Icon 1 posted      Profile for dsiebenh     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am in a similar situation, my doc feels I have a coinfection, and also I have a yeast issue that has recently required me to add difulcan to the mix.

I had to stop working due to the same kind of issues.

I don't know if you are male, but if so, look into testosterone levels. Mine were very low. Supplementing with testosterone has greatly improved my depression. If female, I'm sure there are other hormones to look into.

Posts: 252 | From NJ USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.