posted
I have to be my own LLMD because my current one isnt that educated about the disease yet.. I have to tell him what to do.. Im wondering what should i take after my IV treatment is done for my neuro lyme?
*im not sure if i have any coinfections either because they were negative (as usual).. But possibly Bart... I was thinking i might have bart but then someone told me i may only have neuro lyme
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
If youre taking rocephin and having improvement, you should stay with the cephalosporins.
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Antiparasitic herbs and salt/c were my choice after abx. Visit lymestrategies for more integrative approaches as well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
rocephin (aka ceftriaxone) is known as a third generation cephalosporin. There are other abx in this group.
Third generation Third generation cephalosporins have a broad spectrum of activity and further increased activity against gram-negative organisms. Some members of this group (particularly those available in an oral formulation) have decreased activity against gram-positive organisms.
The parenteral (IV) third generation cephalosporins (ceftriaxone and cefotaxime) have excellent activity against most strains of Streptococcus pneumoniae, including the vast majority of those with intermediate and high level resistance to penicillin. These agents also have activity against N. gonorrhoeae. Ceftazidime has useful antipseudomonal activity.
Many do well on drugs like Ceftin (cefuroxime) which is a 2nd generation cephalosporin
Second generation The second generation cephalosporins have a greater gram-negative spectrum while retaining some activity against gram-positive bacteria. They are also more resistant to beta-lactamase. They are useful agents for treating upper and lower respiratory tract infections, sinusitis and otitis media.
These agents are also active against E. coli, Klebsiella and Proteus, which makes them potential alternatives for treating urinary tract infections caused by these organisms. Cefoxitin is a second generation cephalosporin with anaerobic activity, and although seldom used as a therapeutic agent, it may be useful for prophylaxis in gastrointestinal surgery.
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
this is too complicated to tx yourself. you really need an llmd. or give your doc dr b's guidelines and let him make decidions from there
but if the doc is really prescribing what you say from info you get here...you are looking for trouble
its way too complicated
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
If you have a good LLMD that you can trust to perscribe the appropriate tx, that's great. However, many of us have to be proactive with our own healthcare. We had to advise our doctor which medications we were wanting to use because he simply did not have the background knowledge required to treat this.
In any case, it always prudent to do your own research on the drugs you are about to take even if you have the best doctor in the country. Don't just take a drug because your doctor tells you too.. We have to take some responsibility for ourselves after all.
I am 5 months now on omnicef (cednfir) third generation cephalosporin for neuro lyme (many head issues, brain shocks) and it has been working really good.
I seem to have problems when they add a second abx to my protocol like zithro and rifampin. They have had to stop each one of these due to very severe herx and breathing problems.
I have been on just omnicef 600 again for a few weeks and feeling better than I have in a long time. My brain shocks have stopped and I am clear headed most times. Actually talked to the construction guys workign on my house today without feeling like I was zoned or going to pass out.
I dont know if this is a good thing or temporary but I will take it for now. I was told the omnicef does get through the BBB and I sure it did.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Consider a triple-threat ABX combo that includes a third generation cephlasporin, a macrolide (typically Zythromycin or Biaxin), and a cyst-buster (typically Flagyl or Tindamax). IMO, you should be on the latter WHILE you're on IV Rocephin as well as following. I relapsed after going off Rochephin and I often wonder if I knew then when I know now about Bb morph forms...
You may also want to address the biofilm component.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I agree with Dawn in all regards. You should have been on orals while on IV ABX. Her recommendations are good.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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