posted
I was trying to arrange for medical transportation since the Dr wants me to come to his office EVERYDAY but insurance turned me down because im not that much physically disabled... && that was my only way to get there...
So now im only on Doxy 200mg which is back where i was before.. I dont where to turn what to do or what antibiotics to take since my mind was so set on this IV... Since the Dr said i have neuro lyme.. what are some other good antibiotics other then IV Rocephin for neuro lyme?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
Rulide is the best antibiotic for neuro Lyme. You'll have to get it from Australia, Mexico, or some other country.
It's not sold in the U.S. because the drug companies don't want to pay for FDA approval because the drug is low cost and they can't make enough profit on it.
I know first-hand, a person who obtained this drug herself from Mexico over the internet. She took it for two months and is now wholly well. No relapses in 10 years. Until the time she took it, she had Lyme for two years.
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
What about intra muscular Rocephen given weekly?
Could you manage a once a week appointment?
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I got about 60 -70% better on Biaxin, then after a year pulsed Doxy w/ Biaxin at 300 mg.s 4 days a week. Did this for about 6 months and am now very close to feeling normal.
Most if not all neuro. symptoms gone.
I could not do Rocephin due to allergy.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I second Doxy at 400mg / day. I have Neuro lyme too and it reversed my brain spots.
Mincycline is good too.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
300 mg IV doxy for 8 weeks made me WORSE WORSE WORSE!
'Been on IV rocephin, too, for 10 weeks...nothing has made a dent in my brain stuff...sorry!
Hang in there! Hopefully you will find the right cocktail that will work for you!
~Tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Flagyl combined with anything
You can get better with orals. Just need to find the right combo. Focus on that rather than the label 'neuro'.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Every day??? Wow. Most people get a PICC and do their infusions at home.
Only 200 mg doxy per day? Usually it's that amount but twice per day.
I might look for another doctor who is willing to treat you with adequate amounts and work with a PICC line if he uses IV.
BTW, I had neuro lyme, that's what chronic Lyme is. Many of us get better without ever doing IV ..... BUT we do various oral combinations, not just a low dose of doxy.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by sixgoofykids: Every day??? Wow. Most people get a PICC and do their infusions at home.
- Definitely a red flag when a doctor insists that you come to his office everyday for IV. Pretty big conflict of interest if you ask me.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I have a feeling I know where you are going for tx. I tried to pm you but your mailbox is full. If my suspicions are correct, you really need to find another doc.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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