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» LymeNet Flash » Questions and Discussion » Medical Questions » For those with lesions important, really lost.

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Author Topic: For those with lesions important, really lost.
lyme in Putnam
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If you do or did, what treatment are/were you on? Are they better, worse, same? This is important to me, do they mean Lyme if they rule out everything else? Neuro wants lumbar, but not llyme literate near, went to him to check pituitary for salt problem. I don't want to go back on antibiotics after 8 years of antibiotic treatment, 6 of them Iv. Been on herbal teas since Sept, 18 people that were on Iv before are off all antibiotics and holding their own on the teas and lymphatic deep tissue massage twice a week. Please input. Really lost.mostly brain issues, not thinking like I usually do, confusion, depersonalization. Intellect seems ok, did neuro psych test last week, psych giving me test said I could recognize more than actually think of what things are with words. Help please.

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He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
dsiebenh
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I had lesions when dx with MS in 1999. My lesions stayed the same or even slightly improved when I had my next brain MRI in 2008. However my disease had gotten much worse over that time. I was dx with Lyme in 2004.

Docs do not seem to give much credence to the severity of lesions. And you can see why by looking at my lesions vs. my disease. There does not seem to be much correlation.

Interestingly, my 1999 MRI said "MS or other demylenating disease". For my 2008 MRI the radiologist said "MS or Lyme".

A neuro will still say I have MS; a LLMD will say Lyme and I am Igenix positive.

Posts: 252 | From NJ USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
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THIS IS UNREAL. CAN'T ANYBODY HELP?????

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He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
glm1111
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I have tried to help you before with the information of using antiparasitic herbs and salt/c to get rid of lesions.

I know you said you have a problem with salt, but can you tolerate the herbs? I had lesions on my back scalp and tush and only have a few left on my scalp and am very close to resission.

The lesions are on the symptom list for parasites. Having great success with Parastroy. ANY antiparasitic herbs are better than none.

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Shahbah
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If I were you i would not worry about lesions that much... many people diagnosed with MS have lesions and lead a normal life , others have few lesions but are on a wheelchair...
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lyme in Putnam
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I'm taking an herb in tea form to keep the salt under control along with salt tabs ( I have to take 6.000 mg a day and lasix to keep my salt levels under control, plus a tea my herbalist is making me to retain my salt.) Antiparisitic stuff is herbal? I was afraid to mix with what my herbalist is giving me, but I can tell ask her about the parasites and look at what herbs are in the parastroy. My salt has hospitalized me twice last year, everytime I start something new, I have to check with my nephrologist and herbalist. I'll check with my herbalist with whats in the parastroy. Her herbs are from Russia, hopefully it won't have an impact on what I'm taking from her. Thanks again Gael and whoever anwers this post.

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He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
glm1111
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Is your herbalist open to herbs other than what she sells? Are the herbs she is giving you antiparasitic, antibacterial?

I know you are struggling and would really like to see you make some progress.

Sending healing thoughts,

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Beagle
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...I am feeling I must add my two cents here, because I feel like lymeinputnam with regards to unbearable frustration and losing hope on what is what disease and what is correct treatment, etc.

I've come to the conclusion that tons of garlic pills like 12 - 16 per day help a little with all symptoms. But as soon as I have a couple of days without the garlic...all hell breaks loose and I feel bedridden again. I think it's cuz Garlic affects virus, bacteria, fungus everything, albeit, not enough to cure you but just a bit to lighten the load a tiny bit with whatever it is that is causing the symptoms - Lyme, Bart, Babs, fungus, parasite, virus. Again, not a cure.

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lyme in Putnam
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do you have an idea of what the antiparisitic herbs are? She has the same ten herbs she uses for me, sometimes more, sometimes less depending on how I feel. I know mallow is in there, but she makes a gallon for me and I drink 16 oz a day of it. I also take the tea she makes me to retain the salt 6 oz a day, I'm on fluid restriction with the salt poblem to 32 oz a day. I'll look up parastroy and see whats in it and run that by her. I also have to run it past my nephrologist. She also makes me a garlic with herbs that I have to add fresh lemon juice with 3x a day. Thanks.

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He took u to it, He'll you through

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dmc
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http://en.wikipedia.org/wiki/Chronic_cerebrospinal_venous_insufficiecy

may explain lesions.


"Zamboni theorized that malformed blood vessels cause increased deposition of iron in the brain,

which in turn triggers autoimmunity and degeneration of the nerve's myelin sheath.[12][14] "

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
   

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