posted
Hi there. My doc just suggested a spinal tap........to diagnos lyme....is this necessary?
Also what is the connection between chronic epstien barr virus and lyme? I have beent trying to determine what is going on, and the only thing that comes back every time is positive for an active mono infection.
I had a tick bite in '06 or o'07 that was treated, then I had a surgery which triggered "something" in '08. Lyme was tested negative at that time, but later positive for a "new infection" (in the middle of the winter???) of '09. Another 2 weeks of doxy....but nobody ever tested to make sure that took care of it.
I have CFS symptoms and massive debilitating brain fog. Sometimes positive ANA and always low positive Rheumatoid factor. I also have antiphospholipid syndrome (clotting issue) so they thought lupus for a long while.......
Any info would be great. How does the spinal tap help with the diagnosis? Is it necessary? What is the connection between mono and lyme?
Thanks
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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posted
I too am curious about the connection between momo and Lyme. I got my lab results back and saw a positive for Epstein Barr Virus, which I found out was Mono. I do go to my DR tomorrow though, so I guess I'll find out. Good Luck!
-------------------- 7/09- WB IGG Neg all bands -WB IGM Pos bands 23 & 41. Treated w/ 21 days of Doxy. 10/09- WB IGG Pos bands 41 & 58 -WB IGM Pos bands 23 & 41. 04/11- WB IGG Pos band 66 -WB IGM Pos bands 23 & 41 Pos EBV. Posts: 121 | From Western PA | Registered: Oct 2009
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posted
We almost all have EBV. I've read that lymies can have high reading of it and I did. I was put on LymPlus Transfer Factor by Researched Nutritionals for 18 months which is supposed to train your body to become immune to EBV as well as having factors for lyme.
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Spinal tap is NOT necessary. It is painful and doesn't help.
I had 7 positive bands on a western blot- I 100% have Lyme.
I had a spinal tap, and nothing showed up in it.
Waste of pain.
Also, they can't really know if the lyme is a new infection in my opinion.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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