posted
Hi I am actually posting this on behalf of my sister in law... She has been been dealing with interstitial cystitis since the birth of her second child... So far it was under control as she was on a gluten free diet. But lately it started toflare up again and really bad as it gives her some quite annoying nerve pain and muscle spasms... So has anybody dealt with such sx from IC and how did yo treat it?
Posts: 723 | From Montreal | Registered: Oct 2010
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karenl
Frequent Contributor (1K+ posts)
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posted
on cpnhelp.org are many patients with these problems, it is often from cpn
Posts: 1834 | From US | Registered: Oct 2008
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posted
karen, my sister in law has no sign of cpn, no shortness of breath, no asthma... lymetoo, yes she first had relief with diet changes but now sx are coming back causing neve pain in her legs sometimes and some stiffness, that's why I am asking before her consition worsens... Lymetoo, how bad were your ic symptoms and howlong did you treat before it was cured? Thanks for your help!! She will appreciate the input.
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
I've just read that IC could be caused by an allergy to progesterone... anyone followed that route?...
Posts: 723 | From Montreal | Registered: Oct 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Shahbah, I also suffer from IC. If she is having nerve pain, she could talk to her doctor about taking the drug Neurontin. I took it for several years.
I find that mine gets worse during the spring and fall. Allergies somehow play a part in this disease. I usually take liquid benadryl at night during the spring and fall. It is one thing that really helps me.
If your sister n law doesn't have a doctor who knows a lot about IC I would recommend that she find somebody who does.
A knowledgeable doctor can do an instillation of meds directly into the bladder for instant relief.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I have highly positive numbers for Mycoplama Pn, but I have no breathing issues, upper respitory issues etc.
So these critters don't just hang out in the lungs. There are in other organs, glands, blood etc that they survive in.
Well they could be living in my lungs too, possiblably, but that's not where they cause sx. Maybe they just multiply and rest there. Like it's their bedroom?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
:-) Thanks a lot for the advice, i will forwrad her the info... Thanks kidsgotlyme, I will talk to her about benadryl as this would help her as she does have a lot of allergies and it's been like this yearsbefore she had IC... It's not easy to find an IC specialist here in Montreal... doctors first thought she was nuts...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
oh i didn t know atarax was an antihistamine... few years ago, my regular MD had prescribed it to me for stomach cramps... interesting...I'll let her knowabout that too! Thanks alot everybody!
Posts: 723 | From Montreal | Registered: Oct 2010
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canefan17
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posted
Bump
Does Babs cause a lot of bladder issues
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
No, it is NOT a bladder infection. Regular "cystitis" is an infection.
The IC is likely Lyme disease spirochetes that camp out in the bladder. Not the same thing, though don't ask me to explain more than that!
IC is inflammation of the "interstitial" tissues. Look that up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Need to move this thread up so it's with the BM thread.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Shahbah,
cpn is not in the lungs - it is as lyme everywhere a very complicated systemic blood infection and needs treatment over years. On cpnhelp.org many people will tell you they had IC all the time and they are better after treatment. You need labs cpn IGG ( also IGG is active infection for cpn).
Posts: 1834 | From US | Registered: Oct 2008
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