posted
New to this. So how the heck do you know what is what? I had a splitting headache yesterday. The kind of headache I had about a year and 1/2 back when my symptoms began. I've been sneezing and this seemed to feel Like a sinus / tension headache. Other family members and friends I know have claimed they had the same thing in recent days and they don't have Lyme. Should I suspect allergies? Or would it be the Lyme or a co acting up? I did not take any pain meds and woke up headache free. I get real confused on knowing what is what? Anyone else feel this way? Curious. Thanks.
Posts: 96 | From USA | Registered: Jun 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
You will have to get used to not knowing what is what with this disease.
If you don't get this headache again, then you just don't have to worry about what it was. It could happen to anybody.
You could mark it down on the calendar, or keep a daily symptom log. If it keeps happening (hope not) then you look for patterns (28 day lyme flare cycle, or near your monthly cycle, or after start of new med, etc.) and bring it up to your lyme doctor.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Oh yes I see that cycle your talking about with the Lyme symptom flare, but not with the headache. I think now that was a true tension one as I was a bit stressed. I guess you are correct to say you have to get use to things. So new at all this. Thank you.
Posts: 96 | From USA | Registered: Jun 2011
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I've had a really bad headache for the past 3 days. Woke up today and it is finally gone. My headaches are almost always frontal and feel like sinus headaches.
I do keep a symptoms log and didn't even realize there was a pattern to my headaches. But there is. I was getting them roughly once a week in the past but they seem to be coming on around every 13-15 days now. I'm thinking it may be due to bart but I'm not really sure.
Weather you think there is a pattern or not, try to mark your symptoms down. You may just realize a pattern later when looking back over your symptoms.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
Thanks philly I will. I love your saying at the bottom. That's so true!! We deserve respect!! And most don't understand.
Posts: 96 | From USA | Registered: Jun 2011
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Whenever someone lists a symptoms I try to consider the main cause for my own information and to try and help them. Some just say its Lyme disease but Lyme disease is complicated and involves many different infections. I always log my symptoms and compare to the symptoms of Borrelia, Bartonella and Babesia. I truly believe that there is a particular infection behind every symptoms.
That said, I agree with Philly78 and think it may be Bartonella. Many people with Bartonella, including myself, experience frontal headaches. However, it could just be sinus related. Keep an eye on it and see if it goes or you get more symptoms that would indicate bart.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
philly, in reading your post, it came to my mind that when I was treating lyme, my lyme doctor told me that babesiosis has a 7 day cycle and a 14 day cycle.
I was getting sick every Friday evening like clockwork. He said that was the babs 7 day cycle. After a number of months of treating babs, the sick time began skipping a week, so I was getting it every 14 days. So, that was babs going to the 14 day cycle.
Sounds exactly like what your headaches are doing!
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Good info here thanks all. Could very well be bartonella.. As we are on the fence about that one. Of any co I'd have to say I have the most symptoms of that one. I realized something yesterday, attitude and frame of mind really play into all this. On the days when I am more relaxed and less fearful I'm almost symptom free. I believe that speaks volumes!
Posts: 96 | From USA | Registered: Jun 2011
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gmb
Unregistered
posted
lada,
I have to agree with TF on the Babesia cycle. I have started Mepron/Zith treatment for Babs about eight weeks ago. I've had a few occurances of real killer headaches in the past 3 to 4 weeks as well. None of these were like any before starting lyme symptoms in 2008. Also having some real flares with bone and muscle pains especially in the upper arms.
The Mepron is bringing out Babs symptoms and cycles I never had noticed before, since starting abx for Lyme in March 2010. Just write anything unusual down in your log like Phylly said.
posted
Gmb, Thank you for sharing that. I had headaches about a year back and they just left before any treatment. Just had one the other day lasted only 1 day. I'm just going to write it down. Now say I had babs at the start. Is it possible my body could have fought that off on it's own? My immune system testing before treatment came back nice and normal.
Posts: 96 | From USA | Registered: Jun 2011
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Thanks TF! I was actually thinking I had babs but wasn't sure. That is why I attributed it to bart.
Anyone know the cycle of bart?
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
Gmb, Thank you for sharing that. I had headaches about a year back and they just left before any treatment. Just had one the other day lasted only 1 day. I'm just going to write it down. Now say I had babs at the start. Is it possible my body could have fought that off on it's own? My immune system testing before treatment came back nice and normal.
Posts: 96 | From USA | Registered: Jun 2011
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onbam
Unregistered
posted
One of my first symptoms was a chronic headache, and I now have that same type of pain intermittently.
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gmb
Unregistered
posted
lada,
Its hard to say with these diseases how symptoms ebb and flow. I see a chiropractor weekly for back adjustments, muscle testing, cold laser treatments, and ionic footbaths to help detox.
Not sure how much of this alternative therapy is actually helping, but my liver tests after first month on Mepron came back good. So I'm not changing a thing for the time being.
Cold laser is suppose to be similar to a combination of Bionic 880 and rife frequencies. And his muscle testing helps him target what treament I get for the rest of the session. Right now Lyme is not even registering and Babs is flaring big time is all areas of my body.
We target different frequencies each week... started with Lyme, inflamation, immune support, Lymph node drainage, general detox, pain management an now mostly Babs.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
This quote from Burrascano is relevant to your question re. could you have gotten babs and fought it off on your own:
"Chronic Lyme is an altogether different illness than earlier stages, mainly because of the inhibitory effect on the immune system (Bb has been demonstrated in vitro to both inhibit and kill B- and T-cells, and will decrease the count of the CD-57 subset of the natural killer cells). As a result, not only is the infection with Bb perpetuated and allowed to advance, but the entire issue of co-infections arises. Ticks may contain and transmit to the host a multitude of potential pathogens. The clinical presentation of Lyme therefore reflects which pathogens are present and in what proportion. Apparently, in early infections, before extensive damage to the immune system has occurred, if the germ load of the co-infectors is low, and the Lyme is treated, many of the other ticktransmitted microbes can be contained and eliminated by the immune system. However, in the chronic patient, because of the inhibited defenses, the individual components of the co-infection are now active enough so that they too add to features of the illness and must be treated. In addition, many latent infections which may have pre-dated the tick bite, for example herpes viruses, can reactivate, thus adding to the illness." (pages 3-4)
So, dissecting the quote above, apparently (not known for sure), if you are:
--early in your infection, and --if the germ load of the coinfections is low, and --if the lyme is treated,
then your strong immune system could contain and even eliminate other tick-transmitted microbes (including viruses, etc.) present in your body.
So, this could shorten the length of time you have to treat your tick-borne diseases.
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