randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
since having lyme i have noticed that i "leak". at first it wasn't much but now i am soaking through a pad, panties and even to my jeans.
this is soooo embarrassing. and sometimes i have to change during the day because of the odor.
any ideas?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
I have the same problem. I never notice a sensation of urinating, I just notice that my underwear gets wet and has a urine odor. It's weird.
This started happening to me a few months after getting sick with lyme and I now have to use a thin liner.
It is very embarrassing and unsettling. Hopefully someone can give us some feedback
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my mom called them "piddle papers". isn't that hilarious. so now i call them that too and so does my husband.
i am buying the large 72 size medium thickness from walmart. i wish they had wings to wrap around but they don't so the sides of the panties get soaked.
somebody recommended a bladder tie up but i ain't having no surgery.
somebody has to have an idea or something.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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dbpei
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Member # 33574
posted
Sometimes this is a sign of a urinary tract infection. You should let your LLMD know. Levaquin cleared this up for my 60 year old sister.
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gigimac
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posted
It's definitely not a uti in my case, a couple times I thought I had a uti and was tested. It's been going on for almost a year.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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gigimac
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posted
ranidbear, I posted a question similar to this a while back. It got several responses but I can't find it in my old posts. Are old posts automatically deleted? I was hoping to find it as it had more info.
I want to say someone responded to my question at the time and said that lyme can infect the bladder and that this can go away with the right treatment.
I have also been meaning to try kegels but I hate doing them for some reason.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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Catgirl
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Member # 31149
posted
This sucks that we have to deal with this. I do keegles and it helps (hard to remember to keep doing them though).
I like what you said, Gigi. Hopefully it does go away with the right treatment.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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I want to say someone responded to my question at the time and said that lyme can infect the bladder and that this can go away with the right treatment.
- My IC is MUCH MUCH improved with Lyme treatment, but I don't have the problem randi is referring to. Seems that is more of a functional problem, not an infection.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I have heard that Lyme weakens the muscles, and it is the pelvic floor muscles weakening that can cause related issues.
I have a friend in another New England state who suffers terribly from this symptom. It has gone away for her in the past when she's been on antibiotics. She had recently given herself a break from the medicines, and some 5 months later (medicine-free) this symptom returned.
I know that prior to beginning my own treatment for my tbd, I experienced urinary issues. I would have issues with leaking when I laughed or sneezed violently. Additionally, I would have experiences with burning in my bladder region, as well as an urgency to void my bladder (and I could do so)- although I, too, had been cleared of any UTI.
I am happy to say that as my treatment has progressed, this symptom has improved a ton.
I am sorry for those of you dealing with these issues. Just a thought, here... I know one woman who is prone to infections of the bladder, and she oftentimes supplements with cranberry capsules when her symptoms become problematic. She swears that they help her. Also, it would probably behoove those of you with this issue to ensure that you are flushing your body by drinking lots of water.
A visit to a urinary specialist or gynecologist might also be helpful at this point.
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randibear
Honored Contributor (10K+ posts)
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posted
i went to my obgyn and he wanted to do surgery. i said no thanks. and i've tried cranberry too.
my mom had a tie up and it helped a great deal but like i said no surgery for me.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
You are right randibear...a lot of docs resort to the most aggressive option out the gate, and that isn't always appropriate.
I have a Lyme-friendly reproductive endocrinologist/gyno that I've seen a few times, now, and I wonder what he would say about it all. Ultimately, it would be best if you could see a nice female obgyn who just happened to have dealt with Lyme herself.
Did you happen to see the copy of the Lyme Times (I believe from early last year) that contained an article about Lyme and interstitial cystitis? I think that it featured a lot of good information. Perhaps you might want to seek it out.
By any chance- have you ever been treated for your Lyme/tbd and what not with Cipro?
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i've tried all the drugs. just can't find a doc who will keep me on them.
then i got c. diff really bad and that ended that.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I've been using a homeopathic called Enuresis HP by Natural Creations. It's helping a lot. It was recommended by my holistic pharmacist.
Posts: 677 | From Virginia | Registered: Sep 2002
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Catgirl
Frequent Contributor (5K+ posts)
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posted
I can relate, Lymebulldog. I went to my PCP so many times with burning urine and frequent urination. I was finally diagnosed with dysuria, which means, abnormal urine. So no help from my doc. Docs said there was not yeast in my urine, yet gave me some cipro, and at least the major pain & pressure went away.
So if I didn't have yeast, why did the cipro work on the burn? I think Dbpei might be right about the yeast.
I get so tired of getting up to pee in the middle of the night (3-5 times a night). I used to go 7 times a night. Every time docs checked my urine, it had no yeast in it. Yet, If I treated with terconazole cream, the urinating went down to 3 x a night, so maybe it is a yeast thing.
Sorry, I'm rambling here. I am just so tired of docs blowing this stuff off.
A friend of mine had to get the sling. But she was undiagnosed for lyme at the time. There must be something to what you said about this, Lymebulldog. Maybe lyme causes some prolapse?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Well, Catgirl, I do happen to have a friend (the wonderful acquaintance who clued me in that my Lyme/tbd might actually be Lyme/tbd!) who dealt with rectal prolapse as a result of her Lyme. So- why couldn't the same happen to the pelvic muscles, bladder, etc.?
Additionally, I have heard that some people have certain spinal discs that are 'out' (misaligned) due to Lyme/tbd, which can sometimes trigger various valves to also be 'out' in the body (the ileocecal valve as an example. Check out this syndrome at About.com's Holistic Healing section). Now, this example (the ileocecal valve) is not implicated in urinary issues, however, one of its many symptoms is bowel disturbances. Why couldn't a similar condition affect the bladder? The gut has a lot of bearing on the bladder!
I do know that some people find relief (and swear by!) chiropractic work/applied kineseology to assist with the management of such disc/valve misalignment.
Hope that you're able to find relief!
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poppy
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posted
Have you read Dr. Blewiss's essay on lyme? This is the place to go to check out symptoms, as he was very thorough.
Here is what he says about lyme and the bladder:
"LD can cause an interstitial cystis leading to bladder pain relieved by urination. A neurogenic bladder can develop with either hesitancy, frequency, loss of bladder awareness, urinary retention, incontinence or the symptoms of UTI (urinary tract infection). I suspect that some cases of chronic pyelonephritis are actually LD. Pediatricians may want to consider that nocturnal enuresis (bedwetting) is secondary to LD. "
For people who are new to lyme, you can do an archive search because just about everything has been discussed before. Lots of good info from the past.
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steve1906
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posted
Interstital Cystitis and Lyme- preliminay report
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Catgirl
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posted
Wow, Poppy, that essay is fascinating. And Steve, great info, thank you.
Thanks for everyone's help here. :)
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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