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» LymeNet Flash » Questions and Discussion » Medical Questions » well so far here's some news...

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Author Topic: well so far here's some news...
randibear
Honored Contributor (10K+ posts)
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well here's what we have so far. rest of tests are not in.

swollen spleen
liver enyzmes elevated
pancreatic enzymes elevated
extensive lymph node swelling in neck, arms, and legs
blood pressure high
cholesterol through the roof, close to 300 (yikes)
sugar unknown at this point.

i'm a wreck....

have taken two ceftin so far. don't have theralac but am taking two florastor, two vsl#3, two culturelle. will take the theralac twice a day also.

unless you think that's too much. am thinking of ordering the ultra critical care.

egads, i feel like crap. have been up since 2 oclock, couldn't sleep. i hear ceftin can do that.the nausea is terrible. but at least, thank heavens, the pain seems to be lessening. he did say it would within 1 or 1 1/2 days.

umm, did i mention the crying..seems i've been crying all morning and now again. i read somewhere that it was a side effect of ceftin. anybody know?

please pray that i don't get c. diff. as he said, you're the most paranoid patient i've got. (don't you just love doctors?)

yuck....

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
feelfit
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OUCH! Wow, randibear, that is some infection! No wonder you're feeling like doo-doo. Any idea why your liver and pancreatic enzymes are up? From infection? If so, wow, certainly systemic, it seems.

Ceftin and other penicillin derivitives are known to have an increased risk for yeast and c-diff...but not as much as Clindamyacin. Idk about the crying with ceftin or insomnia.

glad that your pain is less. You're doing everything right to avoid c-diff. You are taking very good probiotics at excellent doses.

Hope that you get over the accute part of your infection quickly...uggh.

ps- how can you be 'paranoid' if you've had c-diff before? Seems natural that you'd have a healthy concern.

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
randibear
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he got kind of testy when i asked about yeast. see my mom had thrush and systemic yeast when she died. so i panic everytime something happens and he calls me paranoid....

i don't have any idea about the liver and pancreas. just seems like since i took the humaworm all hell has broken loose.

i think maybe the dieoff was just too much on my system and i crashed.

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
karenl
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Randi,

is it infection or inflammation?
Are infection markers up?

So far the swelling and high enzymes can be from the parasites, they inflame all parts of your body. Ceftin works for bacteria only.

Is there any marker saying it is infection?

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randibear
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apparently it's something in the bloodwork that is showing infection.

cbc count, umm, can't remember the rest. something about white cell count, er, red? anyway he said it was infection.

felt the spleen and said enlarged.

aren't they the same thing?

p.s.s. added about mom. she broke her arm and went into hospital. then got pneumonia. this was january. they gave her abx for i don't know how long, cause i was here in texas and she was in ohio. anyway, so she goes home, oops back into hospital, getting sicker, has mrsa. more abx. then c. diff...more abx...now it's about march or so. then systemic yeast, now they treat.

only too late. put in mesh to keep blood clots out of lungs. can't get tube in throat cause thrush and yeast.

she makes it until may 1. her heart finally gave out. said she died of congestive heart failure, systemic yeast and thrush, mrsa, and c.diff, multiple organ failure.

they said "oh sorry, too late, can't fix" and ship her off to what's the name of those places? anyway she lasted about a week there. they did not put in tubes in or anything. she just wasted away.

they put her in a medical coma because they said she was in so much pain and discomfort. she never came to.

i really hated them.

now see why i'm paranoid????

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Razzle
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I totaly understand your concerns. Almost any type of infection can become fatal in the immune-compromised if the infection(s) is/are not treated adequately or appropriately.

That said, it sounds like your Mom had one heck of a bad set of circumstances all hit her at once, and now that you are aware of the possibility, that gives you an advantage.

Looking at your tests/results, I'd say it looks like your body is overwhelmed by something...whether that's toxins or infection or inflammation or some combination of the 3, I can't say for sure.

I'm wondering what prompted you to try anti-parasite treatment - did you get diagnosed with a specific parasite, or ??

Are you able to do anything to detox? Castor oil packs on your liver may help.

Also, milk thistle can help with the detoxing and it can help to protect your liver from damage from toxins.

Pancreas inflammation - the pancreas needs rest - limited caloric intake, lots of water, and easy to digest foods only. I'm thinking vegetable broths, small portions, etc.

Spleen - this is an important part of the immune system. Shining a green lightbulb on your skin (pull your shirt up so the light can shine on your upper belly) for an hour each day may actually improve your situation. This is color light therapy. Green is the basic healing color. There are probably other colors that can help also, but I don't have access to the reference book right now to look up what is needed.

Your situation sounds very difficult and I hope you are able to start getting some relief soon.

Take care,

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Dogsandcats
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Why are dr's allowed to say whatever stupid thing that spits out of their mouth? "you are the most paranoid patient.."

Given the ordeal with your mother, you have a right to perhaps ask a few extra questions!

Really chaps my hide.

Keep asking your questions until you are satisfied. Don't let him intimidate you. Maybe respond next time.."I don't see my questions or concerns as paranoia, just being an informed patient".

I have other suggestions for comments to the doc, none that would probably be productive-but they are funny!

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God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

Posts: 1966 | From California | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
   

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