lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i got bad muscle problem from lipitor
now doc says there is only 1% chance zetia will give me the problem
he also says i NEED to take a cholesterop lowering drug
total is a little over 300
tri is a little over 200
but i have had these numbers for 10 yrs whether i take anything or not
i am on 6000mg fish oil and 800mg vit e a day
i mostly eat whole foods-very low sugar-but i do eat some butter and eggs and olive oil
my musc prob from lipitor has not totally resolved. it hurts when i exercise but so far not bad enough to put me baak in walker in morning i have to use cane for a short while
thanks.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Red yeast rice helped me lower my cholesterol without the nasty drugs the doctors are handing out.
You can take it along with the rest of the supplements you are taking.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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There was that whole thing about Merck hiding the data on Zetia a while back.
Better options, if you have to go the medicine route, would be Niaspan or red yeast rice + CoQ10. And that is an awful lot of Vitamin E and fish oil (if that is straight omega 3 content) you are taking there, by the way.
Posts: 584 | From NY | Registered: Feb 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Better options, if you have to go the medicine route, would be Niaspan or red yeast rice + CoQ10. And that is an awful lot of Vitamin E and fish oil (if that is straight omega 3 content) you are taking there, by the way.
i tried red yeast it didn't work
the fish oil and vet e are what i was told are the dose to take for pain and lipids...does someone else think this is high? it sure is expensive-but i was able to only take 1/2 my ibuprofen when i take the fish oil
i don't know what niaspan is..i will check
doc offered me the prescription made of fish oil but i said id been doing fish oil for many years so he switched me to zetia
my brother has been on it for 15 yrs
my son also had trouble with lipitor like me
my main problem is the musc damage and can i fix it
i do a lot of coq10
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Slo-Niacin or Enduracin should work just about as well as Niaspan does, but everyone is different. So if you take niacin, just go with whatever works. Immediate release niacin is probably best as far as lipids go, but most people have a problem with the flush.
For red yeast rice, there are various brands, so make sure you were taking a decent one (one's listed by Consumer Labs are probably good) -- Healthy origins, Nature's Plus, etc.
Niaspan (or niacin) shouldn't have any negative muscle issues, so perhaps that'd be best for you.
As for doses... several grams of omega 3s may suppress the immune system. So that's great if you have an autoimmune disease, but maybe not so great for Lyme people. If you are taking 6g of fish oil, but only at a 300mg Omega 3 content, then it's really 1.8g, which isn't so bad.
And a meta-analysis of vitamin E (alpha only) showed an increase in mortality rates once you get around 400IU or so... less than 50IU showed some benefit, 100IU was neutral... greater than that was a problem. At least make sure you are taking a mixed E product, with gamma, not alpha only.
Posts: 584 | From NY | Registered: Feb 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thank you guys. its gonna take me awhile to get thru this. i have a lot of decisions to make including who my llmd will be . i wish i could just get someone i trust to make the decidions. its getting harder and harder
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
What is your vitamin D status? Zetia will prevent absorption of fat soluble things in your diet, likely lower your vitamin D level.
Posts: 442 | From Biddeford, ME | Registered: Nov 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
And cholesterol is also important for the immune system. Your body can't make white blood cells and other key components involved in the immune system without sufficient cholesterol.
If a person has high cholesterol, it is likely due to a liver issue (which is where cholesterol is made in the body from the foods we eat).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
If a person has high cholesterol, it is likely due to a liver issue (which is where cholesterol is made in the body from the foods we eat).
RAZZLE-my liver always tests ok...and looks ok on scans
how would i know if there is a liver problem?
my vit d was low but i supplemented and it stays high now...i take one if i can't get sun
so...will zetia affect absorption of vit e and fishoil and flax oil too?
thank you for your time guys
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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