posted
Well...finally one of the docs believed me and is going to start me on doxy.
I went to go see an ND who was the partner of someone who was on the LLMD list. I went over the usual history and she said...neuro lyme. She said it had been undertreated before and that I have had it anywere from 3 to 10 years.
She helped me decide to stay part time until the end of the summer to see how treatment goes. She also said it didn't even matter what the blood tests said, though she wants to run some.
She said the treatment will determine if she is correct.
I thought it was interesting because I thought the cause of the flare was sinus surgery (stress of surgery on a sleep deprived system). She said she thought that all the abx I was on for sinus infections prior to sinus surgery kept the disease at bay and that once I had the surgery, and didn't need the abx for sinus infections it was allowed to grow/flare.
Finally......somebody looked at the big picture and is willing to do something about it.
I feel hopeful.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
you are your own advocate... Glad to hear you found a believer. press on - the road is long and broken, That leads you back to Your life again.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
whoopee! a doc with a brain!!! gives us reason to hope
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
This is wonderful news! Yay for you.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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