posted
I've been on a methylation protocol for about a year and a half and it includes Folapro, B-12, ActiFolate, Phosphatidyl Serine Complex and General Vitamin Neurological Health Formula.
I'm starting to take most of it every other day rather than every day because I'm wondering whether it is doing anything and it is not cheap. I'm not noticing any drop in energy.
Does the protocol only effect people with CFS? What protocols are working for you?
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Razzle
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Member # 30398
posted
Have you had the genomic tests done to find out which of your specific genomic variants are causing methylation issues for you?
Also, if you have digestive system challenges, then there may be absorption difficulties that are preventing you from obtaining what you need from the supplements. This would explain the lack of help with energy levels from the protocol.
No, there are many other conditions in which methylation can be an important factor.
I'm currently trying to find a protocol that I can tolerate that can help me to compensate for an upregulated CBS gene that is causing me to be very hypersensitive to sulfites/sulfur amino acids, as well as causing multiple chemical sensitivities. Unfortunately, the products Dr. Yasko sells for this particular gene mutation contain many ingredients to which I am extremely allergic.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I haven't had any genomic tests. Are they expensive? Are you doing the protocol on your own or is your LLMD guiding you?
Aside from neuro problems, my other main issue is fatigue and that is improving as the bugs die.
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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posted
I'm taking the thing same thing you are, the Yasko protocol.
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Yes, I think the tests are expensive, but your insurance may reimburse part of the cost. Here's where to order the test from for the least cost that I know of (I have no financial connection with this website/company or Dr. Yasko):
I haven't done the protocol yet because I am unable to take what Dr. Yasko recommends due to allergy to ingredients in the products. I am looking for a specialist who can guide me with finding alternative products that will accomplish the same things as the products Dr. Yasko recommends, but have not been able to find such a practitioner as of yet.
Take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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