lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Pos. by PCR as of a few weeks ago, but only a clinical dx. prior to the PCR.
LLMD says lets get the Babs as he thinks it's the big player in my overall illness re: symptoms.
So, I did 13 days at 5ml (750mg) 2 x day with Arteminisin 200mg 2 x day and stuck with my Colloidal Silver. I had to stop on day 13 as both my Anxiety and emotions were getting topped out.
So, I held x 3 days and tried to detox as much as I could. Restarted last night and dosed just before the Dallas game. By half time, I felt drugged and couldn't keep my eyes open. I fought it and managed to watch the awesome ending of the game, go Mavs !
Woke up this morning and was confused for first 5 min. Shaking for first hour out of bed, goopy stuff coming out of my eyes. I took my morning Klonopin, added 0.5mg Xanax, and even took 2.5mg of Percocet. With all of that on board, my Nervous system is still whacked out as I type this now 2 hours later.
Yesterday, I was changing the breaks on my car. Sweating pretty good out in the heat, but was ok. Came in the house and cooled down, then 10 min. later, I'm in tears for no reason. It's like a depression with no cause. This was why I took the 3 day break.
I was aching and had the CNS Herxing stuff, but the crying for no reason, I just can't do. It's pathethic 2 y.o. crying that I've had in the past.
I can tell, it's all in the head, as I can take the body aches, but when my head gets all weird and I can feel it, everything just goes nuts not only in my head, but in the rest of my body.
Oh yeah, the shortness of breath is exacerbated through all of this.
So, I guess, I'm just posting away. Not sure if anyone has any advice. Magnesium does nothing for me. Lots of Fish Oil, Bromelain, etc.
Appears to be inflammatory response... Who knows... The question is,,, how long of Babs treatment before you see improvement.
Is the Tachycardia (POTS) a Babs symptom ? I need this part of my Lyme gone.
Gary
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I think POTS is related to babesia. Make sure you drink a lot-especially if you are in the heat! I drink coconut water because it has electrolytes in it.
I am increasing my dose slowly-was up to 2 malarone 2x/day and doing well-now added 1/4 tsp mepron and bam-major fatigue.
The only way out is thru
Posts: 1276 | From maryland | Registered: Jan 2009
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Have you treated parasites, Gary? Babesia is considered a parasite.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When I started Mepron, I had a similar experience. I was very anxious and depressed. That began to get better after about a month.
I had extreme mental fog and confusion. I could not even think my thoughts. I would forget half way through a sentence. That is gone now. I am more motivated and doing more.
I still have a lot of fatigue and breathlessness. The air hunger is gone but I have a lot of hot flashes. It has been 6 months.
It has not been all up hill. It is like a roller coaster, but the down are never as deep as in the beginning. I hope you can stick with it and see some improvement soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Yes, you really should be careful about Mepron because it (the medication itself, not the herx) has been linked to suicidal thoughts. If you're feeling that way you should definitely stop taking it and ask your doctor for something else.
I am on my 3rd month of Mepron 750mg 2x/day and clarithromycin. I felt depressed during my first month, but the second and 3rd have been much better.
I do have serious air hunger and brain fog. I don't know what I'm doing at work and I try to stay in my office all day so they don't see me struggling for air (looks like a huge yawn- totally rude to do in meetings).
I have an outrageous number of supplements. I know WellMind (a st. John's wort version) is for the emotional stuff, D-Ribose is for fatigue, and I have about 12 others that I don't remember what they're for.
Posts: 7 | From New York | Registered: Mar 2011
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
GIGI, what does Dr. K prescribe for parasites? How does he know which meds to prescribe, does he test the parasites or just assume they're there?
I have them big time. They always come out the NEXT day AFTER I do a coffee enema. They're anywhere from 3-10 inches long. There kind of mucous looking things but it's not mucous, it's definitely a worm of some sort.
I saved them to show my GI doctor and he said he's not interested in seeing them. I did the stool test and naturally it came back negative. They don't have labs here equipped to test for parasites.
Been doing Gaia Herbs Para-Shield which is the typical antiparasitic formula that most companies use. I've also been using Diatomaceous Earth (DE) for ten days too. Haven't notice more parasites come out but maybe they're coming out but if they are they're microscopically small. I've had intestinal soreness, back pain and feeling toxic.
I've been reading that Dr. K recommends prescription meds for this. How can one know which med to use? Does he test the parasites to see what kind you have or does he just treat them with meds assuming you have them?
I DO have them and have pictures of them and even put them in tupperware with lids on them. No one in our city has the least bit interest or curiosity to even look at them or see me. Not sure how I'm going to get treatment here if no doctor is even interested in treating me with parasites.
Wonder if I'm going to have to see a vet to get treated? I've actually read about some people on Facebook who are doing exactly that and getting better! Sheesh, do I have to see a vet to get treatment and not a MD??? Something is not right about this!
My main infection is babesia and I started out with 2tsp of mepron 2x/ 1600mg artemisinin/ and 1000mg of azithromycin two weeks on and one week off with weekends off. Dr. J does this as his treatment protocol for all his patients with babs. I think it will be okay if you take a slightly longer break and then when you start up again, but maybe take a little less at first and work your way up to 2 tsp so you can do it longer.
Also, according to Dr. Schaller's babesia book the best treatment for babs is malarone/mepron/arte and that if you are killing babesia with less mepron that is okay! He says some people kill babesia with just a lick of the spoon dipped in mepron - while others have to take much more. Maybe you are one of those who only need a lick of mepron to kill babesia.
If you are, he recommends slowly building up to higher dosages for a complete cure of babesia. He also says protect your liver! Important to do this when using mepron/artemisin.
I did the babesia treatment for about 3 cycles of two weeks each cycle at 2 tsp of mepron twice daily before I began to have serious kidney issues which caused me to quit the treatment protocol altogether. It was 2.5 months before I could pick up treatment again for babesia.
I am back on treatment now for babesia and am taking it slower this time - mepron still kills babesia in smaller doses - what is important is that you can stay on the treatment and continue to decrease your load of babesia without damage to your body or organs.
This time,I started slowly by doing only 1 tsp of mepron 2x a day and if I felt any herxing, I continued this amount until I no longer herxed then I added a 1/2 tsp twice a day to the already 1 tsp. I did this for 3 weeks before I began to get severely nauseated and felt like my liver and spleen were inflamed.
I stopped again for a few weeks and then did a colon cleanse, kidney cleanse, and liver-gall bladder cleanse for 4 weeks and felt great! I went back on treatment again first week of May and have been able to handle the mepron/malarone/artemisin this time - I am on my 5th week with no problems this time. I had a lot of emotional herxes but the major babesia symptoms seem to be disappearing - especially the drenching sweats/chills finally!
Also, supplements for liver are important!
lipsomal glutathione Alpha lipoic acid (DR. Schaller recommends this is taken 2.5 - 3 hours away from mepron/artemisinin as it is an antioxidant and will attack especially the artemisinin as if it is a free radical Also, take NAC 1000-1200mg daily and it doesn't hurt to add vitamin c (another antioxidant).
I had to learn the hard way, as I was always doing too much too fast because I wanted to get rid of lyme/babs today or better yet yesterday However, over time I have learned it is better to stick with a protocol even at smaller doses, take breaks as needed and keep going than it is to jump in with both feet and lose ground because you have to take long breaks to recover from the treatment.
Remember, in order to get to the other side of the storm you must first go through it. You must deal with the unpleasant herxes of healing before you will begin to feel better.
I dealt with major depression/anxiety/emotional herxes I believe related to killing off babesia. For some reason, I think the herxes from killing babesia have been worse than treating lyme. I am still here though and the emotional herxes are a lot less.
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Oh My Gosh. Thank you for posting this. I have seen the Mepron Blues link but I have not heard people talking about this recently.
I feel like I am losing my mind along with DEEP depression. I don't usually post things like this, but I need help. Betty thanks for posting your strategy.
It's so strange because in the past I took Mepron and felt good! Like my brain turned on. I thought this is the ticket. I had to go off due to another infection.
Currently, I'm on 3 Malarone tablets a day and IV clindamycin, one week on one week off.
Main effects - EXTREME fatigue, depression and brain fog.
I was going to try Zoloft but I feel like it will make me worse.
I tried to back off one day but when I went back on it was the same thing.
Posts: 2232 | From USA | Registered: Aug 2009
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
Betty, you said, "I stopped again for a few weeks and then did a colon cleanse, kidney cleanse, and liver-gall bladder cleanse for 4 weeks and felt great!"
Could you list the colon, kidney and liver-gallbladder cleanse you used? Would love to know what exactly you used if you don't mind sharing.
For the entire month of February through March - I did in this order:
colon cleanse for 30 days with a product I purchased from my chiropractor but I think you could order it too. It is called Complete Cleansing Part 1 and Part 2 by Trace Minerals.
Then I followed Hulda Clark's Herbal remedies detox plan for Kidneys for about 3 weeks, then I used Hulda Clark's liver/gall bladder cleanse for only a day and a half. All were very easy to do and not expensive either.
Hulda Clark has a cleanse for parasites too. Here is her website: www.huldaclark.com
On her website you will find a booklet which describes all three cleanses: parasite, kidney, liver/gall bladder. She recommends colon and parasitic cleansing before kidney cleansing and last liver/gall bladder cleansing. I think because you can stir up some nasty stuff in your system with only doing liver cleanses without doing the other two first.
I did not do the parasitic cleanse because I had done the complete cleansing part 1 and 2 and my chiropractor said that it works for parasites too.
It sounds like you are having the emotional herxes too from babs die off.
I definitely still have the deep depression too since my treatment for babesia - before that I never really experienced a depression on any other treatment that I had been on for lyme.
I hate feeling sad and blue - it's hard to stay positive that way. I started reading some positive thinking books to help me get out of the negative thinking rut that depression puts you in, it has helped so far.
It sounds like you are having the emotional herxes too from babs die off.
I definitely still have the deep depression too since my treatment for babesia - before that I never really experienced a depression on any other treatment that I had been on for lyme.
I hate feeling sad and blue - it's hard to stay positive that way. I started reading some positive thinking books to help me get out of the negative thinking rut that depression puts you in, it has helped so far.
It sounds like you are having the emotional herxes too from babs die off.
I definitely still have the deep depression too since my treatment for babesia - before that I never really experienced a depression on any other treatment that I had been on for lyme.
I hate feeling sad and blue - it's hard to stay positive that way. I started reading some positive thinking books to help me get out of the negative thinking rut that depression puts you in, it has helped so far.
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However, over time I have learned it is better to stick with a protocol even at smaller doses, take breaks as needed and keep going than it is to jump in with both feet and lose ground because you have to take long breaks to recover from the treatment. 
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