posted
I'm asking this for a friend of mine who has had Lyme much longer than I have.
She reports being really dry all of the time.
I'm thinking KPU might cause this because KPU people are histamine deficient. But what do I know, I'm just guessing.
Anyone know or have any other ideas?
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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posted
A very dry mouth was one of my earliest symptoms. It pretty much went away after my first course of antibiotics. Every once in a while I still have a day or two where my mouth gets really dry.
Posts: 227 | From Northeast | Registered: Mar 2010
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posted
Thanks, CI, good call. That's a definite possibility.
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
If it is Sjogrens, the cause is thought to be bacterial or viral. Possibly needs to be treated for parasites as well, which is known to cause dry skin.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
A few months back, when I was sharing with someone how dry and thirsty (dehydrated) I was all the time (and have been for years), she said "that sounds like it could be part of the mold picture". I was very surprised. That's the first time anyone ever made a connection between me and possible mold. Then I went to Seattle and for a variety of reasons they thought perhaps I had mold issues as well. One of the things in the Surviving Mold book talks about is the ADH anti-diuretic hormone. Seattle tested me for a bunch of things including this, and as it turns out I am EXTREMELY low in this. Explains the being dry thing. The hormone is not there to keep the fluids in and balanced. When I have my phone consult with them, I will see how they suggest to treat. I'm leery to treat the way Dr. S recommends, using synthetic hormone nasal spray. I would much rather try to work on the Hypothalmus-Pituitary axis, so it can start doing it's job properly again. I know... not an easy fix.
Also, I've heard people say heavy metal toxicity can cause dryness/dehydration.
Hope you are well, Chaps:)
Best to your friend, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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Thanks for your input. My friend suspects that mold is a part of the picture for her and feels that it has increased in prominence in her case this year. Lot's of moisture plus a quick warming of temperatures in February has made this a big year for both mold and termites in this area.
I'll pass this info on to her.
I hope you're feeling well and I'm very hopeful that your Seattle undertaking gets you where you need to be.
All the best,
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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chiquita incognita
Unregistered
posted
Tammy, it will be interesting (if you wish to share it) to hear what they do to help you with the hormone imbalance.
I hope all goes beautifully and smooth sailing for you, and for your friend Chaps.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When I had lyme and company it dried out ALL of my mucous membranes--eyes, mouth, and you can name the rest.
It was severe. I had to doctor for each of these--eye doctor, dentist, gyn, etc.
Lousy lyme treatment did not get rid of this symptom, but good lyme treatment did. So, it may have been the coinfection treatment that did the trick. Don't know.
All I know is that all of those horrid dryness symptoms totally went away and I became a normal person again! Praise God.!!
It's been 6 years since I completed my treatment, and I am still symptom free. I never treated for parasites or mold.
Posts: 9931 | From Maryland | Registered: Dec 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I can't get rid of this sx. My mouth is so dry. That's why I'm carrying water bottle everywhere I go.
I was a contact wearer for years.which made the dry eyes worse. I finally bought a new pair of glasses and I haven't had contacts in months.
I'm so dry in the winter I'm so dry I can fry an electrical wall outlet with static. We put humindifier in our home, it was cheaper than replacing bulbs and wallouts. lol
If I go to football stadium or someplace that has a source I can shock everyone I touch. In the winter months I never shut my car door with my hands I use my elbows. It doesn't hurt as bad.
I believe I could light up a lightbulb.
Didn't put it all together until recent thread about colonics and Tutu mentioned the colon being dry?????
Tutu posted something about Sjogrens recently and I had an aha moment. There are so many little things about this illness that when you put them all together it amazing just how large this lyme & co puzzle is.
Unbelievable!!!!!!!!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I think I read something recently that xylitol promotes saliva production. So maybe chewing xylitol gum or sucking on xylitol candy could help some with the dry mouth? Bonus is the xylitol is a sugar that is actually good for your teeth.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
xylitol, is that a artificial sweetner? Tutu won't like the sugar part of this at all.
She says lyme feeds off this bad stuff. I read lables for any sign of artificial sweetners, they are toxic IMO.
Lymetoo?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
No, xylitol is a sugar alcohol. It inhibits bacteria from adhering to mucus membranes, helps to remineralize teeth, and may break up biofilms... In large doses, it can act like a laxative...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
If you Have Sjogren's,(I am sero-neg & biopsy neg, but Nonetheless am diagnosed with it) (dry eyes, mouth, nose, colon, vagina and outer skin surface) There are a number of products to use. Restasis by rx, OTC Systane eye drops for eyes, punctal plugs or punctal occlusion(cautery of tear ducts allows moisture to "back up" thereby keeping eye moister than it would be without. Oral Balance products for mouth, moisturizers, toothpaste, mouthwash,& gum, etc.) Another tasty product is Thayer's Mouth Spray and Slipper Elm Lozenges-orange or cherry flavored. Using Ponaris (a peppermint oil and eucalyptus oil concoction made first for the astronauts who experiences such extreme dryness when breathing recirculated air while orbiting in space-a NJ company makes this)Sinuses can be irritatingly dry, crusty and bleed. Pro-biotics for the colon health and in my case as I suffer with pancreatitis from Sjogren's, Creon, an enzyme replacement by rx, For the vagina there are some lubricating gels in the women's section of the local drugstore, but I would stay away from anything that causes "tingly or hot sensation" as these would probably have chemical additives that might burn dry skin making it drier. As for external skin, any good mositurizer, that hydrates the skin. The less medications you are on the better. As most are made of salts anyway(hence the word sodium apperaing after the generic name of any med/rx) Altho there is one drug called Evoxac(Daiichii-sp? Corp, that is a cholinergic drug-it forces the nerve endings to fire off, makes you produce copious amounts of saliva, just do not take before retiring for the night-you can almost choke to death!) Most of all eat a diet rich in greens/nutrients, drink plenty of water and try to exercise, if at all possible. If you are on any of the tricyclic anti-depressants, go off them they are no good they make you much drier than anything you eat or ingest. Stay away from alcohol also. I do believe that the glands shut down from Lyme casuing the Sjogren's-as in my case-sero-biopsy negative yet "being dxd by many docs as a Sjogren's patient" Almost as bad as trying to get a proper Lyme dx(I've had P23 & P41 in past Now just P 23) when they keep raising the diagnostic criteriaPS As much as you can stay out of air conditioning and heat in winter(radiators, baseboard) it sucks the life out of every living thing. Damp humid areas of the US are much better for Sjogren's patients, too bad it also wreaks havoc on Arthritis symptoms. Good luck!
Posts: 12 | From Ocean County, NJ | Registered: Apr 2011
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posted
I have Sjogren's. My LLMD explained that is yet another one of the "trickle down" autoimmune diseases I developed as a result of undiagnosed Lyme.
I have had the lower tear ducts cauterized so that they don't drain the tears out of my eyes, and I have the upper ducts plugged. (The plugs come out rather frequently, but they are wary of cauterizing them shut, as well should I have a reprieve from the symptoms)
I use Systane Ultra drops during the day if I'm not wearing my contacts and Opti-Free drops if I am. I use Genteal Gel during the night with my contacts out. My Opthmalogist instructed me on this. I tried (whatever prescription - can't retrieve the word) - but the inflammation was too intense to keep using.
I suck on Lemon Drops as per my Ear, Nose & Throat MD's instructions -- it helps to "purge" some of the static saliva that won't secrete from the salivary glands.
I also use Biotene toothpaste for dry mouth -- I haven't used their mouthwash, but my Speech Language Pathologist has recommended that I use ALL of their products.
I use Cetaphil cleanser on my face at night to clean off my make up, then in the morning use only a wash cloth with water to wash my face, as per my Dermatologist's instructions.
Hope this helps . . .
-------------------- I will beat these awful diseases. I understand that I have permanent damage because of some very under-educated physicians, but eventually I WILL lead a healthy life again. There is a reason I am here. It will be revealed to me in due time. Posts: 20 | From Louisville, KY | Registered: Sep 2009
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Hello folks with Sjogren's. I have been having a "mixed autoimmune response" to my herx reactions and antibiotics. One time the autoimmune response resembled lupus, but I had the single stranded DNA, not the double, suggesting it was drug induced. Sure enough, drop the medication and the symptoms went away.
But for more than 7 years, the major symptoms I have in reaction to lyme treatment are drying of mucus membranes, organ pain, lack of urination (which I now understand can be Sjogren's), increased arthritis, swollen lymph nodes, and crushing fatigue.
AT one time the meds I use kept me executing my daily life, but no more. If I drop them, I am over run by lyme and co., but with them, I have this autoimmune set of symptoms that makes me absolutely miserable.
Have any of you tried taking cortef to reduce the Sjogren's? I'm thinking of talking to my llmd about this.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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