posted
I don't know about clots around picc lines, but if you have a deep vein thrombosis this is very dangerous and you should call your doctor now. Hopefully it's not that, not trying to alarm you.
take care
Posts: 857 | From northern california | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Don't want to scare you either but if you have not had a medical person look at this you should go to the ER ASAP.
Problems with picc lines are very serious and you can't waste precious time.
How was it determined it was a blood clot?
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
This is one reason why I have avoided IV. I have Factor V Leiden which increases my risk for clots. If you haven't been tested for this, you probably should be.
Just be sure to ask your MD about it...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I had three simultaneous clots from a PICC a few years ago. Did they find them/confirm them by doppler and where are they?
Are you on Luvnox injections so you can go on Coumadin in a couple of weeks and/or are they planning on putting in filter device to catch anything that may clot off? Please fill us in, OK?
I assume your LLMD is aware of what's going on, right?
Will be saying some prayers for you if that's OK.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
I have a deep vain thenbrosis it starts off as a superficial clot and goes into the deep venous vain under my arm which is al large vein ... no good.. very scarey been to the er twice... today i was so out of it bc of being in the er all night and my doctors nurse took my blood pressure in the arm with the clot.. very upset bc that isn't a good thing as you never want to move a clot..every doctor and nurse is telling me something different i dont know what to do..I am on luvnox injections. Dawnthe mesh thing sounds like a great idea i dont know why they dont do that...i dont know what i am going to do about lyme treatment as i can't tolerate orals!!! This has been the scariest thing of my life!!! Thanks sooo much for your support gals!! keep praying for me! ..XOXO
Posts: 50 | From nyc | Registered: Aug 2009
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
I take high dose nattokinase to prevent blood clots.
Try taking nattokinase to dissolve your blood clot. This is not proven, i think, but the grapevine says it works.
You have to determine the correct dose of nattokinase for you (or lumbrokinase ). Does Luvnox dissolve an existing clot?
You should consult a hematologist. An official hematologist probably can't prescribe nattokinase, i think? Some anecdotes say it works.
Before my LLMD put people on IV, he required that they have the coagulation panel blood test, in case the patient has a gene for blood clots. I did indeed test postiive, so he didn't consider me a candidate for Picc IV.
He said that for such a patient, he would prescribe a "peripheral". It has to be reinserted every week just at skin level by a nurse, and i hear they are always falling out.
Personally i take about 34,000 FU's perday of nattokinase(Fibrinolytic Units), (that's 1700 mg) because that dose prevents uncomfortable symptoms in my lower legs which i IMAGINE and GUESS to be precursor symptoms of trouble. I'm just GUESSING based on how my body feels. In 6 years i've never had a blood clot, which proves nothing; maybe i wouldn't have had one anyway.
I don't know how you would determine your nattokinase dose if you can't feel your body's symptoms.
PS A "normal" preventive dose of nattokinase was said by one person to be 100 mg in A.M., 50 mg at noon and 100 mg in evening. My high dose may not be very common, 500 mg 3x per day, then another 200 mg during the night.
The "normal" dose was told to me by a nattokinase entusiast from Switzerland, a girl who woke up in the hospital after surgery with a blood clot from groin to knee, which she dissolved by using nattokinase; i forget how long it took.
I take cheap pills and can't guarantee what the actual dosage is; the pills may be deficient or weak; thank goodness my body tells me how much it needs.
----Polly Polygonum
[ 06-10-2011, 10:14 PM: Message edited by: pamoisondelune ]
Posts: 1226 | From USA | Registered: May 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Vitamin E and Sassafrass are also natural blood thinners that may help. When my Brother had a blood clot in his foot, he used both the vitamin E and the sassafrass (tea, I think), and his clot went away and he got better (he does not have Lyme).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Luvanox can probably be a bit helpful even with the existing clot. But as you are in a civilized area go to the ER immediately.
Posts: 1834 | From US | Registered: Oct 2008
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