Topic: How many think Encephalopathy is an issue from Treating ? Definition Inside
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
I ask this question because it seems to me that no matter what infection I treat, symptoms of Encephalopathy always ensue. The Answer for me after all of this time is to Pulse and seems the only way I can Treat.
The Mepron was the tell all for me b/c the half-life is 2-3 days. So when I felt I needed to hold, I got worse on the days I stopped. 3 days holding and it's still killing bacteria for perhaps 5-6 days after stopping the drug completely due to the long half life.
When symptoms settle down I will do 2 weeks on, one week off. I believe this is what Dr. J. does with his patients. It makes sense to me as even with proper detoxing, two weeks at full dosing is my own limit. The Tremors/crying stuff/Anxiety, etc. are all tell tale signs of the Encephalopathy for me. In addition, my brain feels swollen. Appreciate your thoughts and for those not familiar with Encephalopathy, I provided the definition and symptoms below:
From Wilkepedia: Encephalopathy /ɛnˌsɛfəˈlɒpəθi/ means disorder or disease of the brain.[1] In modern usage, encephalopathy does not refer to a single disease, but rather to a syndrome of global brain dysfunction; this syndrome can be caused by many different illnesses.
Symptoms
The hallmark of encephalopathy is an altered mental state. Depending on the type and severity of encephalopathy, common neurological symptoms are loss of cognitive function, subtle personality changes, inability to concentrate, lethargy, and depressed consciousness. Other neurological signs may include myoclonus (involuntary twitching of a muscle or group of muscles), asterixis (abrupt loss of muscle tone, quickly restored), nystagmus (rapid, involuntary eye movement), tremor, seizures, jactitation (restless picking at things characteristic of severe infection), and respiratory abnormalities such as Cheyne-Stokes respiration (cyclic waxing and waning of tidal volume), apneustic respirations, and post-hypercapnic apnea.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
hmmmm, sounds very familiar to me. I'm the same as you. I do great for the first week or two...mostly two and then all downhill.
I have instinctively pulsed my meds and now my doctor is treating me that way too. It works better for me.
I am better this Summer than last Summer. I hope this is part of your puzzle and that you're able to make better progress this way...G_d knows, we have a loooong way to go.
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