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» LymeNet Flash » Questions and Discussion » Medical Questions » Handling severe MCS

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Author Topic: Handling severe MCS
Robin123
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Just got through reading 17hen's fascinating thread on the bionic 880 - feel like I need to read through it again!

Towards the end of the 3rd page, a couple people mentioned MCS and one asked another to open a thread on it.

I was thinking about that issue all the way through the thread, since I am soooo multiple chemical sensitive and am wondering whether all these fancy treatments be too much for people with it.

I did a liver detoxigenomic test through Genova Diagnostic lab in NC. The test shows whether our liver detox pathways are working genetically or not.

8 detox drains shown for phase I (like the bathtub filling up too much), and 4 out of 10 main drains for Phase II (like the bathtub emptying). Glutathione and methylation pathways are part of Phase II.

And as my doctor and I expected, I flunked some drains, which correlates with my difficulty in detoxing. If you can't detox very well, can you even consider doing any treatments that might cause overwhelming detox reactions?

And alternatively here, to ask what helps people with MCS. Already in the prior thread, some asked how do you make a perfect environment for MCS.

I am currently trying sweating via lying on a far infrared biomat, as I don't seem to be able to handle any detox supplements. I've been doing this for six months now.

Last week, for the first time, when I touched the surface of a box that I normally react to with hives, I didn't, although I didn't hold it for very long.

Which leads me to another question re detox - if the toxins are coming out through the skin, does anyone know if they're stored in the fat cells, and coming out that way? I have read often that toxins are stored in our fat cells.

Interestingly enough, I have had lipomas, which are fat cell tumors, and they are responding 100% to two anti-inflammatory supplements, noni juice and grapeseed extract capsules. I can shrink these tumor to absolutely zero by taking these supplements, and if I don't do them, the tumors come back. And the surgeons know nothing about this, so far!

I'm raising several issues in this thread, but it does center on what is MCS, what toxins are being stored in the body and where, and what can help, including creating a more chemical-free environment, so that we might be ready to do some of these fancier treatments.

So, if people with MCS are doing treatments like the bionic 880, the PE-1, the Lightworks, and similar, how is that being managed?

If people here think this belongs back on 17hens' post, I'll add it to the discussion there. I made a post here, since it is an MCS topic, and everything we who have MCS do revolves around our fragility in having to go super slow with any treatment at all.

Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
sk8ter
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Hi Robin...sounds like the mat is helping. I am starting the Pekana detox kit. Can you do infared sauna now that you have tolerated the mat? Hope all is better. [Smile]
Posts: 871 | From orange county, ca. | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
sparkle7
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Have you heard of lipid exchange therapy? Maybe that would help? Also, bile salts... maybe?

fyi - http://tinyurl.com/3rw7j6w

http://www.newswithviews.com/Howenstine/james63.htm

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Robin123
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Hey Sk8ter - nice to see you here! At first, I thought I had a case of poison oak, and then I realized the mat was working! The trick, in case anyone is as MCS as I am, is to take a shower immediately following the session to get all the stuff off the skin.

I understand the biomat is equivalent to the infrared sauna - you just lie on it instead of sitting up, with covers, and it takes longer to heat up.

Have you been doing the Pekana long enough to tell any difference?

Thx, Sparkle, will check out the links.

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RC1
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I don't have MCS but a good friend of mine (had) it so bad. She had all the mold in her home mitigated and it worked, got rid of the MCS, gone! She is doing great now.
Posts: 845 | From Northeast | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Robin123
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RC1 - re mold, I have found that spraying diluted Orange Guard, or TKO Orange as the concentrate form, wipes out mold. It's from oranges, is nontoxic to us, but takes out mold, odors, stains, spots, etc, AND is a great tick repellent.
Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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