lymeladyinNY
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posted
I feel like I've been whipped and beaten. My legs throb, my spine feels inflamed, my head throbs, my ribs ache, and I have a stomachache.
I started very low doses of A-Bart, A-Bab, and A-L-complex about 3 weeks ago. Am I herxing? It doesn't feel like herxes I've had in the past.
I feel so horrid and very weak. I've needed my wheelchair a lot, and have been in bed and sleeping more than usual.
I'm feeling really discouraged because summer is almost here. I want to get out of the house! Hubby is on the verge of canceling our beach plans because of this.
Any thoughts? Thanks everybody.
- Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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17hens
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Did you start one at a time, very slowly?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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lymeladyinNY
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Member # 10235
posted
I've been doing one drop of A-Bart, then the next day one drop of A-Bab, and then the next day one drop of A-L-complex. I then take 2 days off, then do it again.
I know how powerful - A-Bart is, because I was having bartonella heart symptoms and the chest pain, flip-flopping, and "gauzy" feeling around my heart have completely resolved. This has been a wonderful relief. But now - this horrid pain and weakness is about to send me off to Crazytown.
I thought I'd take a 3 day break from all medications, then do rife to see which disease I react to most strongly. I really need to figure this out - soon.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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Rumigirl
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posted
I don't have experience with the A-Bart, etc., BUT, it sounds to me like you need to take it all much slower. Your body is screaming at you! Yes, do what you can to be able to enjoy the summer a little at least. It's hard enough as it is.
Plus, detox, detox, detox!!
Posts: 3771 | From around | Registered: Mar 2008
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glm1111
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posted
If my memory serves me correctly, the A-Bart and A-Bab drops both have antiparasitics in them. I would say you are herxing. Killing parasites can be really rough.
You may want to take a break so you can go do your beach plans and have some summer fun. I would definitely go back on the drops at some point, because getting rid of the Parasites makes it easier to get rid of the Lyme.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymeladyinNY
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posted
Gael, I've had so much trouble with babs that I thought I'd do an antiparasitic. I've got humaworm coming in the mail. What do you think about this? Stupid or smart?
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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glm1111
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posted
lymelady,
I am a big believer in using antiparasitics as one of the treatments for Lyme disease. Like I mentioned above, I think you are already doing some antiparasitics with the drops you are taking.
I have gotten rid of my babs symptoms using antiparasitic herbs and salt/c. I definitely encourage you to take the humaworm herbs when you get them.
I would not stop at the end of 30 days and continue either with the Humaworm or something like Hulda Clark or Parastroy. Parasites can cause a lot of pain when dying.
Have you ever considered salt/c as an adjunct protocol? Very powerful against Lyme and co and parasites.
You are being very smart in considering doing antiparasitic herbs, however, they can cause a lot of unpleasant symptoms with dieoff.
I would start them after your vacation.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymeladyinNY
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Thank you so much, Gael. I will do the humaworm AFTER my beach vacation.
I was wondering where in the world this severe pain is coming from. Do you think the antiparasitic treatment will break through a long-term treatment plateau?
If I could get a few steps beyond where I've been, it would be such a relief.
Thanks for your insight. Yesterday I felt such despair, but today I'm hopeful again.
Have a great day! - Lymelady Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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lymeladyinNY
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Oh, and I once asked my former LLMD if I should try salt/vit. C. She said, "Only if you want to kill yourself," which scared me off.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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glm1111
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posted
I can only tell you after 4 yrs of abx incl 6 mos of IV Rocephin, I was still very sick. The herbs and salt/c saved my life.
LLMDs are still from the main stream community and have been so indoctrined into the belief that salt kills.
It is regular salt that has processed out all of the vital minerals and has added silicon dioxide that is poison. Sea salt is very close to our own body fluids.
Anyway if you ever decide to try it you have to start very slow and ramp up. It is very powerful and very safe when done properly.
I am hopeful for you that doing antiparasitics will cause a breakthrough for you, it was what did it for me and I was close to death.
You might be doing too much of the Bart and Babs drops you are doing, and if you decide to do them again, start at a much lower dose. The KEY with antiparasitics is persistence.
ENJOY your vacation and keep us posted. You CAN get well and reverse this with patience and time.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Hi -- just my two cents here: I've been doing A-Myco drops and I am exquisitely sensitive to them. I am putting one drop in three ounces of water FROM WHICH I take 10-15 diluted drops every other day.
I can tell you that I feel rotten the morning after, better by late afterternoon and okay at night. Then I start it over the next evening. Yes, all that from diluted drops from one A-Myco drop.
My doctors says to keep on going, because you will benefit from even the slightest dose. Based on that, I'd suggest you dilute the one drop you are taking from each of your three Byron White's.
My two cents,
wiserforit2
Posts: 273 | From Banks of the Hudson | Registered: Nov 2008
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glm1111
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posted
Good advise from wiserforit....fits your name
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Are you on any pain meds? If so how much and how often?
Posts: 80 | From scottsdale | Registered: May 2011
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lymeladyinNY
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Hi there! I gratefully accept all the wonderful advice. I am willing to try salt/C, but probably after I see how well I do with the humaworm.
Isn't it amazing how very little of the herbs we need to get a powerful reaction.
I have a prescription for oxycodone and I also use Valium. I like to use Advil - it is wondrously soothing at times.
I try to keep my use of oxycodone and Valium to a bare minimum.
I, too, have been near death, Gael - several times, in fact. I feel excited that doing antiparasitics might be the thing that I've been missing all this time.
Thank you!
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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This is interesting. Is an LLND directing your treatment with these formulas or is it self treating?
Also can you clearly distinguish the flare up as a herx or have you had those symptoms flare by themselves periodically or on abx?
Posts: 655 | From USA | Registered: Sep 2007
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lymeladyinNY
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posted
No, my LLMD gave me the A- products when I went to see him last month. My LLMD doesn't normally push products but he's so impressed with the results he sees with these herbs that he wanted me to try them.
Antibiotic herxes, for me, feel very "flu-like". What I've been experiencing lately is more like intense body pain that feels sharp, like I've been gouged by barbed wire, whipped, beaten, and hit by a truck. Really intense stuff. I can't remember ever feeling quite like this.
The most upsetting thing is that my legs have weakened and I can't walk most of the time. I was wheelchair-bound for several years but have been able to walk 95% of the time the past 3 years. I have a dreadful fear that my wheelchair days are back, and I'm not happy about it.
God bless every person who can never get out of a wheelchair - it is NOT a wheelchair-friendly world.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
I am on A-BART,A-BABS and just started Byrons AV antiviral for new for me Powassan virus. Have been on a babs and bart for a long time.Still unable to get up to top dose.
My Md has had me ramp up slowly and sometimes ramp down.Here's lots of info on the herbals,if you have not seen it. http://www.bioresourceinc.com I know some peeps have had to start with a half drop and less. This is strong medicine.
My Md has Byrons vials that he energy tests me for. Suppose to work on whats up top. Babs and bart for me has been number 1 and the Powassan virus moved to 2 from 3. Others down below r mycoplasma,metals,mold and more.
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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posted
Coffee enemas,Far infrared sauna,epson salt and baking soda baths r helping but when it gets too bad I ramp down.
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Thank you for the info and advice, Healing. I'm going to look at the link.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
What strength is the oxycodone and how much do you take on average per day. Oxycodone can actually make it worse. Is it mixed with tylenol?
Posts: 80 | From scottsdale | Registered: May 2011
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lymeladyinNY
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I take 5 mg oxycodone, on average once every 3 days. I tend to get severe pain in the evening hours. Right now I'm gritting my teeth, but haven't taken anything. I often just live with it. I'm usually able to sleep, and I usually feel fairly good in the morning.
This pain I've been in recently is much worse than usual, but I'm getting further from my A- treatments and the pain seems to be decreasing.
Honestly, oxycodone often just barely puts a dent in my pain, but it's often enough to help me get that much-needed sleep.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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