posted
Feeling really, really bad after brain angiogram a few days ago. Migraine and vertigo since, barely stay awake, nausea, all the neuro stuff ramped up and constant.
Took extra chlorella to try and get contrast chemicals out. My supplements, abx, and tylenol seem to be making me worse. Been sleeping a lot and drinking plenty of water. Monitor is "screaming" at me.
Afraid to try detox bath that it will make me worse too, it does anyway when it's a normal lyme day. I haven't been this bad since my last surgery. Any suggestions?
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Hi I have 3 brain lesions so while I was in the hospital for the week they did so many tests on me. I got so sick from all the contrast chemicals and had massive headaches that just wouldn't quit!!
Yet still they couldn't tell me what my brain lesions were and wanted to do a brain biopsy. I told DH to take me home or they would kill me w/ more tests!! I got home and immediately did my coffee enemas. Within 4 hours my headache was gone. But it came back the next day so I did another one. I think it took me 3 days to get rid of the headaches!
Unfortunately after a month I developed some issues w/ the Coffee enemas, so I had to stop. I do detox baths at least every other night. Recently I discovered that Castor oil packs are great for detox!! So you can give that a try. It's much more pleasant than the coffee enemas!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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posted
Thanks so much! Scorpiogirl, thanks for sharing your experience. I wondered if I was nuts for still feeling so awful days after the test. Coffee enema sounds a little scary to me but I will try the castor oil pack.
And I have not been taking my magnesium, will make sure to get right on that and some of the others you mentioned, Carol.
I appreciate your responses so much! I woke up even worse today so I am getting right on these.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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I have lesions found on the mri but never had to have the test you had? What did they find that they put you through all this???
I would stop my abx and supp since they could be mixing with the dye. Give yourself a break for a few days and drink tons of water to flush it out. I take milk thistle everyday for my liver function.
Feel better soon!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
They found possible aneurysms on an MRA, done because I have PKD and there's a higher incidence of aneurysms with that disease and since I get frequent horrible migraines and vertigo they had to check.
It was done completely unrelated to lyme and co, but sure stirred things up. The good news is they are not aneurysms. We confirmed my neuro problems are all likely due to lyme after all. The castor oil pack made a huge difference, by the way.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
so glad you feeling better and that your mra was ok!!! God bless.
They do not know what my lesions are from. First they said lyme then a neuro said no it was silent strokes and vasculitis..then I was told it was from uncontrolled BP?? All I know is I am still dizzy and my neuro told me to stop abx treatment. She said it is not lyme and my LLMD now went along with her too?
I am totally confused and I have give up.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
Annie, I'm sorry to hear what you're going through. I can relate to the frustration of horrible vertigo. How can they be so sure it's not lyme? Are you being treated for the silent strokes, vasculitis, and BP?
I am not familiar with what they would do for those issues. Does the neuro say that's the cause of the vertigo? Did you have a positive lyme test? Did they have you stop the abx because they say it's not lyme or because they're blaming the abx for your neuro symptoms?
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
sbh ... I don't know if the contrast stuff you took was the iodine solution, many people are allergic to that and the iodine can cause a huge herx!
This happened to me just before getting my Lyme diagnosis. I had a CT w/ contrast for my lungs. (I didn't know I had Lyme at the time). I ended up in the ER 3 times, I was so sick. During those ER visits was when I found out I had Lyme. I simply begged for a Lyme test because someone had mentioned Lyme to me.
Thankfully it came out positive.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Hi Haley, thanks for sharing your experience. I don't think I'm allergic because I've had contrast before, but I suspect it was simply the amount of it going directly into my brain arteries that has made me feel so awful this last week.
They injected it five different times during the procedure and it hurt so bad I was crying out loud. I did do castor oil packs three times and it seemed to help some, but I've still had vertigo attacks every day since.
While the test was scary and caused such pain, I do want to point out that I am glad it was done. We confirmed that I do not have aneurysms, that the arteries are healthy.
This has lifted a huge weight off of me that I am not about to have a stroke at any minute. I no longer have any reason to question my lyme and co. diagnosis.
These last six months for me, if anyone has paid attention to some of my posts, have been horrible as within one week I received both the lyme dx and PKD dx, both unexpected.
The value in being able to say one of them isn't causing the current symptoms I cannot put a price on. Just food for thought for anyone dealing with multiple confirmed-but-unrelated diseases.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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