posted
The issues with my sight seem to becoming more intense.
The floaters, visual noise(snow), flashes of light both with eyes open and closed seem to be getting worse. As well as blurred vision and on a few occasions ill rub my eyes when i open them ill have double vision, after blinking rigorously for a minute or so the double vision will subside.
Im going to see an ophthalmologist the 11th of this month but i feel unless i have a retinal tear its going to be of little help. Theres also the possibility of having optic neuritis but that would be a worse scenario because that would be even more fodder for my pro-MS doctors who feel i dont have lyme at all!
The vision issues were very mild until i started treatment then they went haywire.
Sorry if this became more of a vent.
The question i ask is has anyone had these similar issues? and if so, how did they resolve?
IGG 30+,39+,41+++ Posts: 80 | From Chicago IL | Registered: Jan 2011
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Do you have Bartonella? I had my symptoms get better while treating Babesia for the last couple of months and then suddenly they are back again. I think its Bartonella taking over. When I rub my eyes they get all blurry and feel like a lot of pressure on them.
My eyelids are heavy and when I shut off the light at night I get flashes of light. My eyes are also sensitive to light and leak tears.
Check out the symptoms of bartonella and eye issues are one of them.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
By the way, I saw about my eye doctor 5 times insisting that something was wrong and he could find NOTHING... Even if there is something there, Bartonella can cause it. Do not take that MS crap if you feel its Lyme and Co.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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posted
I agree with Jamers. I leak tears and sometimes wake up in the morning with crusty eyelashes and swollen eyelids. My eyes are quite painful at times like someone is trying to push them out of my skull. I have been to the ophthalmologist and of course, he couldn't come up with a clear diagnosis. Also, my eyes will dry up for no reason suddenly and when I am in the sun they immediately become full of mucous. Hang in there. What else can we do?
-------------------- kristi in Palm Coast Posts: 24 | From palm coast, fl | Registered: Apr 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
testing for mycoplasma and treatment may bring you relief. hope your eyes calm and heal, wayne
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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IGG 30+,39+,41+++ Posts: 80 | From Chicago IL | Registered: Jan 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
so, is your LLMD treating it ?
my brother in law has been an eye doctor for 35 yrs.... checks my eyes and always says you have great vision 15/20.. and to stay the course of what the Lyme doc says... and take vit-d and natural tear drops
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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IGG 30+,39+,41+++ Posts: 80 | From Chicago IL | Registered: Jan 2011
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Please take the mycoplasma seriously. It can hinder your progress if you don't address it.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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IGG 30+,39+,41+++ Posts: 80 | From Chicago IL | Registered: Jan 2011
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
If the nerves to the eyes are inflamed, you can get symptoms. Look into supplements that will reduce inflammation, like fish oil, magnesium, systemic enzymes.
There are a number of strong antioxidants that are formulated for the eyes.
posted
I have all of your symptoms plus some. I have not been tested for any of the co-infections. But, I believe I have at least bart.
I am scheduled to see a Lyme literate Neuro-opthalmologist on the 15th of this month. I'm hoping that he will be able to shine some light onto some of my symptoms and possibly guide my lyme aware dr into a diagnosing me with bart.
I have the headaches, unilateral transient vision loss that lasts for less than 30 seconds
(or blurred depends on how you want to think of it, I cant recognize small objects but large things I can recognize but nothing clear absolutly not able to read, but the other eye tries to make up for it... really weird, but see a haze of colors mixed),
snowy vision, was diagnosed with papilledema, then they backpedelled on that... not sure where i stand with that. But, my optic discs are not normal looking, eyes tire easily with excertion, light sensitive, and of course deal with the dry irritated eyes. I have also had multipled issues with conjuntivits. Had a case of retinal hemorragage.
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I have had flashing lights in my vision for the past 7 years - since I got sick. Lyme for sure but unsure about co.s. I do have some sx of Babs.
The only thing that takes the lights completely away is Topamax...Small dose of 12.5 or 25 mg.s and within an hour they are gone.
When I am feeling good the lights go away or decrease sig. When I am sick and/or flare up they get worse.
Sometimes I avoid going out in the dark due to the contrast - makes them more noticable. Even taking a deep breath can bring them on when they are bad. Just a train wreck...
I also have chiari malformation and had surgery to correct it. I/we thought maybe the eye issue was from the blockage in my CSF flow due to the c.m but the surgery did not effect the lights - I have normal flow /pressure but the lights are still there.
I was feeling good/off abx.s for about 4 months and did not have much problems with my eyes. I either got re-infected or having a flare-up and now the lights are back 24/7....
Been to all sort of eye dr.'s - eyes "look" perfect. I hate this...
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
@ Laura; keep me posted as to what your doc has to say, i am very interested. i will do the same.
@desertwind; chiari malformation is no joke i am very sorry you had to go through that,hope your situation improves or you at least find answers.
I have no interested in Topamax, was out on it when i was diagnosed (or should i say misdiagnosed) with MAV for the constant dizziness and it made me feel horrible.
posted
I had a lot of eye problems as a result of Lyme, lots of flashing lights, jagged, flashing lines running through my vision, peripheral vision stuff, bright flashes of light brought on by noise, stabbing pain in my eyes... I also had full-blown optic neuritis and was blind in 1 eye for months. The opthamologist ordered an MRI and no MS-type brain lesions were seen so he said it wasn't MS. I've had tons of doctors suggest that I have MS, though, based on my symptoms and optic neuritis.
Anyways, just thought I'd let you know that you can have those issues and not have MS. Most of the vision problems have cleared up after 2 years of antibiotics. I still see floaters from time to time, though.
Posts: 45 | From New Jersey | Registered: Sep 2008
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posted
Hi - I had lots of eye symptoms similar to yours. I went to a neuro-opthalmologist who ran all his tests and could find nothing wrong, even though he had to anesthetize my eyes for me to be able to look at light.
Afterwards, my chiropractor suggested I try mangosteen juice. I tried the Ultra variety, with 70 minerals added, and in one hour, my eye pain and double vision started to reduce, and 24 hours later I could look at light, and had no more floaters. And all this after a couple decades of light sensitivity!
There are lots of mangosteen juice varieties in healthfood stores and online. The Ultra one I get, made by Trace Minerals, is found cheapest online through vitacost. I see Carol In PA posted the link - thx, Carol!
If you try some, go slowly and drink water, as it can be powerful. I now drink a half ounce in the am and pm.
Keep in mind that we're all different when it comes to our responses to any treatments.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I have suffered from flashing light when tired but it seems to have gone since the gluten free diet. However I have been getting very bad pain on waking like a hot poker in my eye. some things have helped, avoiding sugar which adds to inflamation, and my problem is inflamation of the optic nerve I am sure, vit B12 and rife frequencies 10 ans 80. If I don`t keep up with these things the pain comes back.
Posts: 148 | From europe | Registered: Apr 2008
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