posted
I got back my ART results tonight from Dr K's nurse. All done from my DNA and meds, supp,and a deep review of recent bloodwork.
After being told I am in remission by my llmd, I am now told that i have stressor signals for borellia, babesia and mycoplasma pneumoniae, also heavy metals and coagulations factors.
She said my main organs affected are liver, small intestines, pelvic floor, adrenals and Pineal (sleep and repair are off). Amazingly they said I need to get neural therapy (whatever that is for my mastoid processes and scars (how did they know I had mastoid surgery when I never met them personally?)
She said I have EMF stresses that are affecting my pineal gland and melatonin creation and utilization. (is this because my husband leaves a huge flat screen tv on all night long..he cannot sleep without it and it is shining in my face all night since I can only sleep on right side)
I was told to stay away from all milk products, zithromax, cortef and fish oil? Then I was given a core treatment program with things I have never ever heard of before. Power adapt adrenal support Larrea for thyroid protection and anti viral Rhemania for adrenal Mila for bowel support Matrix minerals in water bottle
The strangest thing was being told that I have a personl psychological stress that is affecting my heart about self protection?
I am unsure of all of this. If anyone has used ART testing, could you help me with any of this. THanx Ann
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Can you tell me how much this testing cost? I'm curious.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
150 dollars..inexpensive and so simple for so many results that I never mentioned to them, yet they saw somehow in my dna...
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
This is very interesting. The Zithromax made you feel horrible and they confirmed that you should stay away from it.
You need to do something for your adrenals. There are many good supplements besides cortef.
Adrecor (contains Rhodiola) Rhodiola, Isocort and the one they mentioned to you. Treating adrenals is a long process and requires constant monitoring.
It's really pretty interesting what they were able to tell you. I never felt you were in remission. You hardly got treatment and with one ABX only, never took a cyst buster and never treated any co-infections. You were too sick to be put in remission in so short a time. I think you case is too complicated and you are being pushed out the door. You were also pushed to see the neuro of his choosing, who IMO ridiculously relied on a stoney Brooke test to tell you that you don't have lyme anymore?
You don't have lyme anymore when all of your symptoms are gone for at least four to six months and then you monitor things and see how you feel without treatment.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
They did not mention parasites and the vibrating? Is this then from babesia?
I had a 50 $ photo reading from someone and it was even more precise. So I am not sure about everything but I think Dr. K is very competent.
Could you send your bloodwork by mail?
Posts: 1834 | From US | Registered: Oct 2008
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posted
Karen..yes you send the who package by mail to the nurse who is doing his research. They are taking long distance patients and he is including us in his clinical studies.
You also send the DNA swab from inside your cheek and each supp and med you take each day separatly in baggies labeled name and dosage. She set my core treatment as chlorella, vitamin D, magnesium taurate, B12, armour thyroid and xanax (these are the only ones from what I already take) then she upped the dose of two of these and added the ones I listed above.
She also told me that my vitamind D is too low and my dhea/cortisol ratio is too high? I was just told that it was too low from my GP and LLMD so that was odd. I also have to send her my dental panoramic to review and test now checking teeth, jaw and sinus.
She wants me to set up a time to call me so we can discuss the results. Anything is worth the shot right now. I dont know whether to send this to my LLMD by email, since he has not responded in three weeks already anyway?
And no she did not mention parasites to me at all and I did ask her about it. I will talk to her more on the phone.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
ABX your mailbox if full...looking for address for Dr S that you mentioned.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Thanks Annier. I will empty it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
does anyone know where it he best place to get these supplements they want me on. I have been all over the net and some I cannot find. I wish they were all in one place?
Power Adapt adrenal support Larrea Rhemania Matrix Minerals
I found that I had to buy the Mila right through them...its a great omega 3 (guess thats why they said to stop fish oil) nutrients and bowel support. Expensive though at $50 a month!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm guessing you'll find most of what they recommend is through Dr K's 'pharmacy.'
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Seek, I foudn only one throgh theirs, the rest were all randome in vitacost, I herb and other areas. Wish I had just one place where they would be cheaper. I am still searching.
Thank u
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
They should be able to tell you where to get them.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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