posted
Has anyone had convergence insufficiency that was fixed after treatment for Lyme???
Posts: 11 | From Connecticut | Registered: Jun 2010
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Hey Mom123,
My son had covergence issues and focusing issues.
He also has Lyme/Bart and Babs by pcr and FISH.
We took him to a Vision Therapist that was NORAD trained and we had great success.
We purchased a CD called HTS iNet Computerized Home Vision Therapy and worked with it 4 days a week for about 25 minutes.
After 6 months we were assessed as above average in vision.
It can be done. We are still treating TBD's.
We go back in a few months per my request to insure we have maintained. But, the doc felt we were gonna remain strong.
You need the right doc and some patience.
Best to you,
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I have this problem as well. My Lyme doc says the focusing muscles of the eyes are weakened by infection and Magnesium deficiency.
My vision has improved with treatment, but isn't completely corrected.
2roads - Thank you! I will try this vision program!!
posted
My son developed it. We corrected doing eye exercises.
Posts: 368 | From freehold, nj | Registered: May 2007
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
While our bodies are busy fighting infection, often times there is not enough energy left for our muscles. However, my eye dr just told me I had early 'presbyopia'.
I used to develop what I called 'googly eyes', typically early afternoon after sitting in front of a computer screen all day. Felt like both eyes just did not focus together at the same time. Often I would notice a droop in the right eye.
My LLMD gave me a bottle of essential Peppermint Oil, and had me put a drop above each eyebrow. Then cuff my hands in front of my nose and breathe in (because now the oil is on your hand too). Not only did this 'fix' my googly eyes, it also wakes up the brain.
Simple, easy, and cheap. If you try this, make sure you get an oil approved for topical use.
This is also handy for those with brain fog.
After a couple months treatment, I was no longer afflicted by this.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I'm interested in this too. My 7 yo has lyme/babesia/erlichia. Prior to lyme dx, was dx with convergence insufficiency. He went through 9 months of vision therapy and improved. Now, a year later (and 8 months into lyme tx) I took him to get re-tested and he is showing the convergence insufficiency again. I wonder if the lyme causes it, if there is any point to doing the therapy?
Posts: 22 | From Maryland | Registered: Aug 2009
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Julie - I also have a googly eye. Mine comes on when my blood sugar rises.
posted
Hello, We had the diagnosis of convergence insufficiency, actually had surgery to shorten the muscles and now are not able to converge again. We just put together all of our unexplained problems over the past year (Sound sensitivity, light sensitivity, Jaw Pain, Headaches, increased car sickness, slight palsy of left lip, left eye muscle won't fuse). Both eyes are 20/20 on their own!!
We finally saw a LLMD this week and are starting Rocephin IV therapy x 28 days. I have seen some reports that vision improved after treatment. we are keeping our fingers crossed.
We had the vision therapy computer program, but it is too bright at this point -- with the light sensitivity we can't use it.
Posts: 11 | From Connecticut | Registered: Jun 2010
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posted
DD just started vision therapy--I will have to check if they are NORAD trained, but somehow doubt it--though they came highly recommended.
We were told that treatment would be permanent, i.e., no need to ever do VT again for the same issue, but am now wondering if this is true based on what I've read here? Maybe it is only true for those without Lyme and infections?
How well did your treatments take and have they remained fixed?
Also, did you experience an increase in headaches immediately after doing the exercises? DD (who already has suffered with a 24/7 headache for over 2 years) is having an increase in head pain immediately after the exercises--it does seem to return to the normal level of pain shortly afterward, but has not yet returned to its original level prior to starting VT.
Thanks for your thoughts!
Posts: 648 | From northeast | Registered: Feb 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Hey,
I took my son to his doc over the last winter break. He had not seen her in almost a year. His vision improvement with the software had not regressed, but maintained. So, I was happy about that.
That being said, he still has trouble on finger motion exam when I close in on the nose. His right, severely astigmatised eye tends to drift outward. Not all the time, but sometimes. I think this could be improving with Bart therapy. But, he passed all the VT tests.
Interesting, but his divergence is amazing. He is out of the norm there.
The first few weeks were very uncomfortable for him. It was like lifting weights to the arms, really straining those eye muscles. But, you don't want to over due it. The doctor choose our protocol, so I trusted the strain was reasonable. But, it does cease over time. I don't recall him complaining of headaches as much as it was more eye pain.
Hang in there!
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Thank you, 2roads. That sounds very encouraging, and congratulations on your son maintaining the improvements he did have.
DD also has some astigmatism, but I don't think it is as bad as what your son's might be.
Thanks too for the support regarding the first few weeks being uncomfortable. "Straining those eye muscles" is really what she feels like--truly exercising them and working them.
The md did say it would get better over the weeks that come, but he hadn't said anything about it increasing her headache--I'll have to ask about that tomorrow.
I'll also have to ask dd whether it is truly an increase in headache or eye pain--she sometimes doesn't know how to express her pains as fully as necessary --just lumps all pains into being tired and having a headache. I.E., only recently learned that her "tired" most of the time refers to her eyes rather than her whole body, which is what I was understanding her meaning--makes me have to rethink what her actual symptoms are.
Thanks again for your input!
BTW, where did you get the vision software? Amazon?
Posts: 648 | From northeast | Registered: Feb 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
The discomfort will get better over time. It's like the first huff and puff of someone out of shape starting a walking program, then months later being able to sprint down the sidewalk.
The doctor ordered the disk for us and it was shipped to our home. She had the manufacturer set it to auto mode and we used it as we were told. I did call the manufacturer to set it to manual mode due to a hardware glitch, which was later rectified in the next upgrade. My above post gives the name of the disk.
Did they say you had to make regular visits to them for therapy? That's way more expensive. Did they not give you a home program with software?
I would inquire about it, if not. It's for convergence insufficiency and a host of other things, like focusing issues. There's different exercises for different problems. You can shut off the other exercises and only do those relevant to the issue. There's a graph to trend your progress, I really liked it.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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