joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
sent it off anyway. please keep your fingers crossed it comes back neg 2 everything for me.
posted
I got bit again and had the tick tested about 6 months after I was FINISHED with lyme treatment. ARRGH!
I began treatment with doxy the same day. Began having symptoms 9 days later.
THREE WEEKS later I get the result back from Igenex .. negative for Lyme and babesia.
I didn't believe it for one second. I continued to treat for about 2 months. No further issues.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
i stopped abx sat and found the tick on me fri. 6 days later.
I am homebound. I cant even step one foot outside the house. I am so light sensitive all the curatins are always closed. forget about going outside I cant even look outside!I live with my mom but my mcs is so bad i cant have family or friends visit. and i still got bit!!!!!
heres the thing. my body cant take treatment anymore. If it gave me anything i am so screwed because all abx will proabaly make me sicker at this point. I am already in such bad shape and if i take the wrong one it will probaly kill me. same with herbs.
posted
I hear ya. Very sorry you are that bad off. Do you have indoor pets??
Ever considered Rifing?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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AZURE WISH
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Member # 804
posted
over 10 years on abx. i stop and within a week i am bit in the house. only me.
i do have an indoor cat. but the tick choose me. he was checked. He didnt bring it in. he has a heart condition so we have him homebound for the heat of the summer. Jersey has the crazy humidity to. its not good for his breathing due to his heart.
i have a doug coil rife on order (something only knows when it will be ready)
but my mcs is so bad i am not sure i will be able to use it. i was told it makes a smell when it runs. plus there is the amplifier and frequency generator which are new. They have been outgasing at a family members house.
usually nothing new comes in the house. before i was just bit again. i did talk to my mcs dr and he said he thought rife was a good idea (if i can get near it)
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I wouldn't count on the Igenex test telling you for sure, unless it's positive. I guess you couldn't handle doxy??
Yes, rife if you can. Can you borrow any rife machine or get a cheaper one in the meantime?
It sounds like you need a lot of detox, but slowly and gently in your case.
How the heck did the tick get in the house---on somebody?? Blasted critters! sounds like you need daily tick checks, in spite of not going out.
Posts: 3771 | From around | Registered: Mar 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I would just treat. This is pretty telling when they all get it.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
detox stuff makes me sick to.
doxy would be one of those kill me meds.
my body is so overreactive i have less than 20 foods i can eat.
ive been taking adp (oregano oil pills). my body may be reacting to that but i dont know. Do you think that would help?
No cant borrow. like i said my mcs is so bad not even a sure thing i ll be able to use the rife when i get it.
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
So sorry Azure.
I understand why you sent it out. We all hope we got the uninfected one. But, the stats aren't good in your area for lyme or bart. My tick did test pos years ago, but it sounds like a hit or miss.
In the meantime, I would get on something that treats both right away so you are not forced to be on it for many months. I'd suck it up for the greater good. I'm not a doctor though, and only you know your blood panel.
If you can rife and bypass the meds, do so. I don't know much about that.
Not sure what your general wellness is right now, but I'd push exercise and fight it, maybe do juicing, add extra sleep hours, and above all, don't stress. It does NOTHING but exacerbate things.
I know,...... I need to listen to my own suggestions.
Hugs
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
The EMEM5A emits no odor at all. Probably not as effective as the Coil but would be better than a machine you can't go near!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I am not kidding when i say taking the wrong med probaly many abx could kill me. all herbs make me worse.
my general wellness. too much pain to sit upright. can barely walk from couch to bathroom. i am very grateful for walls.
cant juice. head hurts too bad a nd too sound senstive to have juicer running in house even with ear plugs in. there also isnt to many foods that i can eat without getting sicker.
having my body react so badly to everything is a HUGE stress. I have to try to figure out all the time what is ok to ingest and have in my environment. If i get a little bit worse all i will be able to do is lay flat in bed and stare at the ceiling 24/7. I wont be able to eat or drink at all. my pain is already past excruitating.
If i started having symptoms from this tick i am not sure i would even know it. my symptoms list is long and severe already.
I was treating (years back) with someone who called themselves a LLMD. She relied on tick testing to determine whether or not to treat.
I had about...I don't know..10 tick bites that came back negative but got very sick from about 5 or 6 of them and the "LLMD" would not treat me.
Needless to I ended up very sick...
Don't know what to say about treatment in your case, but I can say based on my experience DO NOT rely on tick testing to determine whether or not you are infected or not - just not reliable at all.
Posts: 151 | From North East | Registered: May 2011
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posted
What about homeopathic route??
Posts: 96 | From USA | Registered: Jun 2011
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
i react very badly to both alchol and ethonol (which is in most homeopathic liquids) the non alchohol ones i had looked at seems like it had alchohol and they took it out. I am very senstive I dont know if you can really get it all out.
not sure about homeopathic pills but i do not know of any for lyme or tbds.
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
like i said i am taking adp (oregano oil pills) do you think that would help?
i have some lauricidin here. it might make me sicker but sicker more like a food not the seriousness of a med reaction. i was using it for yeast but realized i seem to react to coconut so i stopped it. would it cover most things you think?
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