LymeNet Flash: If you only had ONE newspaper article to get the truth on Lyme out...

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»	LymeNet Flash » Questions and Discussion » Medical Questions » If you only had ONE newspaper article to get the truth on Lyme out...

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Topic: If you only had ONE newspaper article to get the truth on Lyme out...

FYRECRACKER
LymeNet Contributor
Member # 28568

posted

what would you highlight?

I have until Thursday to inform my tiny little town via a newspaper clip the hidden issues behind the Lyme epidemic.

I know what I want to highlight, would love to hear what you all have to say [Smile]

Even if one person can find their way to a diagnosis and treatment, it's worth it.

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www.mylymechronicle.wordpress.com

Posts: 885 | From US | Registered: Oct 2010 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

I would keep it VERY simple. You may want to mention the AG's determination as you tell about ticks and coinfections.

Please feel free to use my favorite line...

""The IDSA's 2006 Lyme disease guideline panel undercut its credibility by allowing individuals with financial interests -- in drug companies, Lyme disease diagnostic tests, patents and consulting arrangements with insurance companies -- to exclude divergent medical evidence and opinion."

That pretty much sums it up.

Here is the link to the AG press release where that quote came from.

http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Good luck!

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

You could also work the prevention angle. Take a look at this and feel free to use what you need.

www.TreatTheBite.com

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868

posted

The thing I always regret not getting across is--just because someone told you that you don't have it, doesn't mean it's so, most docs don't know how to diagnose even with test results. I'm sure there's a better way to say it, but that idea.

Posts: 1927 | From se usa | Registered: Mar 2010 | IP: Logged |

FYRECRACKER
LymeNet Contributor
Member # 28568

posted

great ideas so far. thank you...I will be considering these when I write.

The thing about other people writing for you is that they don't quite know what to emphasis, and there's always a possibility they'll get it wrong. That's why I'll be doing her a favor and writing it for her lol.

If she makes a mistake, she'll regret taking on my request!
I'll be like one of those picky restaurant customers that has a million special requests. Oh wait, I am one of those picky restaurant customers that has a million special requests

I can be so annoying [Razz]

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www.mylymechronicle.wordpress.com

Posts: 885 | From US | Registered: Oct 2010 | IP: Logged |

Amanda
Frequent Contributor (1K+ posts)
Member # 14107

posted

ere is an article written by the President of CA LDA. Substitute some local info, if you have any.

http://www.lymedisease.org/activism/write_article_mendocino.html

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"few things are harder to put up with than the annoyance of a good example" - Mark Twain

Posts: 1008 | From US | Registered: Dec 2007 | IP: Logged |

FYRECRACKER
LymeNet Contributor
Member # 28568

posted

thanks Amanda

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www.mylymechronicle.wordpress.com

Posts: 885 | From US | Registered: Oct 2010 | IP: Logged |

Fuel1212
LymeNet Contributor
Member # 29312

posted

Data on misdiagnoses would be great.

It would be great to get many people on the same page, but lets be honest, if people aren't sick or have a family member sick, its out of sight out of mind.

I would love to let those that are suffering and think they might have Lyme continue on the right path instead of being put on an SSRI or a pysch ward.

Fuel

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IgM- 31,34,39,83-93 IND
IgM- 41+

IgG- 31,34,39,83-93 IND
IgG- 41++

Posts: 610 | From Lymeville | Registered: Nov 2010 | IP: Logged |

FYRECRACKER
LymeNet Contributor
Member # 28568

posted

I hear ya Fuel, I am not sure where to find misdiagnosis statistics but I will research that today.

These days, almost everyone knows at least one person that is with chronic illness.

But like I said before, if the article can help at least one person find answers, that's good enough for me.

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www.mylymechronicle.wordpress.com

Posts: 885 | From US | Registered: Oct 2010 | IP: Logged |

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