Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I had a round red rash on my leg when I was 34...no bite or tick that I ever noticed. That was in October.
By January/February, I kept forgetting to pass along my husband's telephone messages. This had never been a problem before. No "flu" symptoms.
By June I was getting deep aching pains in my calves, intermittantly. Over the next couple years, my occasional migraines became neverending. Memory problems got worse and I sometimes had problems recognizing people.
I was grouchy and irritable, yelling at my children over little things. The leg pain was excruciating, and was not relieved by resting. I spent a great deal of time in bed, as I was so fatigued.
I was finally diagnosed with fibromyalgia and migraine, and medication reduced the pain somewhat. The fatigue continued.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
James1979
Unregistered
posted
quote:Originally posted by kx90: So what the hell is wrong with you then?
Let me rephrase that into polite English, and then I shall answer you:
KX wrote: "Oh, James, I didn't realize that you only had cognitive symptoms for such a short period of time! I find that very surprising, since many Lyme patients suffer with memory loss for much longer periods. Could you please explain to me, if you don't mind, what other symptoms you are having? Thanks!"
Well sure, KX, since you asked so politely!
My biggest symptom is leg muscle weakness. I get so bad sometimes that it is difficult to walk or to stand for any amount of time. Sometimes I couldn't crouch down if my life depended on it.
Besides the legs symptoms, I also had extreme fatigue and body aches.
Sometimes the muscular weakness moved to my arms also, but mainly it was in my legs.
For the past 2 weeks I've been improving greatly.
IP: Logged |
posted
Kx90, you are way out of line. There is no need for that here.
We are all suffering, yet still willing to help each other to the best of our abilities. Attitudes like yours will get you nowhere very fast here on lymenet.
-------------------- Untreated Lyme for 25+ years. Two kids, too much pain & fatigue, no hope of ever being able to treat. Posts: 310 | From Northeast | Registered: Mar 2010
| IP: Logged |
posted
Thank you to whoever removed his offensive posts.
-------------------- Untreated Lyme for 25+ years. Two kids, too much pain & fatigue, no hope of ever being able to treat. Posts: 310 | From Northeast | Registered: Mar 2010
| IP: Logged |
lymeboy
Unregistered
posted
are you saying that Carol's memory problems are not because of Lyme? How exactly are you coming to this conclusion? I hope I am reading your post wrong, but it looks as if you are telling Carol that her symptoms have nothing to do with Lyme. Are you a psychic Dr.?
Please understand that the people on this board are in really bad shape, and would give anything to have their lives back. Not only are we looking for advice, but support as well. This is one of the tougher things one will ever deal with in life. People here have all heard multiple times that what they're going through isn't real. that their symptoms are just "aging", or "depression", or that they just need to get out more and get their mind off the problems. We're here because we know better. Many of us have some very unhappy lives to deal with when we aren't on these boards. Dealing with statements like yours could possibly be a little upsetting to some. Yes, we are all adults here, we've heard the naughty words before. We can handle the salty talk. But as adults we also understand that all organizations, public and private have their own set of rules. And if we like being a part of something, we will follow the rules of said organization, and if we don't like it, we won't participate.
Incidentally, Lyme and coinfections can have a major effect on our anger and depression levels. I know this all too well. I have been there and in fact I am still there. It can be so bad that the anger and depression actually hurts. If you think you might want to let a few things out, and you are confused or mad or scared, I would be willing to listen if you want to PM me.
IP: Logged |
James1979
Unregistered
posted
Yeah, you can PM me too, KX, if you ever feel like chatting.
I sympathize with you, because I realize you're a little "rough around the edges" due to a rough childhood/life. We don't choose our homes or our parents when we are born.
With your obvious lack of social skills, I'm guessing that you probably don't have many friends. I'm willing to listen to you, if you feel like sharing anything.
posted
Yes, I have memory problems.. I am a female. I go in a room to do something and completely forget why I entered the room. I can never remember where i parked my car at the mall. This has been going on for a long time (years) but was just diagnosed with Lyme two months ago. No treatment yet.
Posts: 182 | From North Carolina | Registered: Apr 2011
| IP: Logged |
posted
I've had memory issues for years... it seems to be part of the encephalopathy. I just started Rocephin to see if there is any improvement.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Razz]](tongue.gif)
Printer-friendly view of this topic