On the plus side, I had not previously herxed on hi dose abx, and boy did I start herxing on low dose MP. I was sure I'd be cured!
On the negative side I felt miserable for 2 years, spent 2 years basically indoors, lost all muscle tone and basically just laid on the couch. And was no better.
After getting off MP I developed thyroid cancer and had my thyroid removed. Coincidence, or related to non-consumption of Vitamin D? We'll never know.
My opinion - it's strong enough to **** off Lyme, bacteria, but not strong enough to kill them.
Posts: 252 | From NJ USA | Registered: Mar 2004
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I don't think cloistering ourselves indoors and eliminating Vit D is a good idea either. I'm very sorry you got cancer. Hope you are OK now.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Friends,
I have been following the Marshall Protocol for many years, but have never done it myself.
I did stop taking high doses of Vit. D, however, and that seemed to cool off some symptoms. And, using the NoIR dark glasses has helped me.
Recently, Marshall has stated that Lyme "downregulates" the Vitamin D Receptor (VDR), whereas other chronic infections actually dock in the VDR, causing it not to function at all. Although some people with Lyme are doing the protocol, this makes it seem unlikely to me that it would be the COMPLETE handling for Lyme.
Personally, I have had some very good results with some of Dr. K's advice as well as doing Allergie-Immun for two years.
However, I've not had all serious symptoms resolve yet.
I still hold the option open for myself to try the MP.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
I did it for 6 months and reached phase 3 until my MD took me off it. It was nice to be able to have a fever again but the problem was that it didn't cure the underlying infection and some of the guidelines are harmful. It's a waste of time except for the recommendations to protect your eyes using NoIR glasses and benecar. I honestly think that many of the patients really have chronic bartonella infections. It makes no sense to avoid vitamin D and sunlight (except when your immune system is low and you develop moles from sun exposure which I do). It is harmful to avoid omega 3 fats (EPA and ALA from fish and plants). At least for bartonella I think 10 mg of benecar every 4-5 hours does act as an antidepressant however if you take a higher dose it becomes too inflammatory and will require you to use more medication. I'm already near the maximum for taking tylenol and ibuprofen so have to watch this closely. Also the ban against supplements is nonsense. For bartonella I am helped by CoQ10, 250 mg vit C, SAM-e, vit e and beta carotene.
Don't do the marshall protocol. Trevor Marshall is not a medical doctor and is a dangerous quack. It is unsubstantiated and has numerous holes in its theories. It has been widely debunked.
posted
Got me 80% of the way there, on it for 3.5 years. I am glad I had no other choice, since it was so hard.I stuck with it.
If I didn't do it, I would be dead now -- by the disease or by my own hand -- and I believe in God and have a great wife.
I stopped the MP and continued with naturopathic treatments, including liver cleanses.
I am doing well and finishing a film on a related topic -- bacterial biofilms and their contribution to disease.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
My opinion is that this protocol is only appropriate for those with certain Vitamin D Receptor (VDR) genomic variants.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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