beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I've been on malarone (high dose) and biaxin, as well as amoxy for 3 months now. I had periods where I felt better, but then feel like I'm backsliding somedays.
Once in a while I'll have a good day.
My question is-am I hitting the right thing? Did anyone feel yucky most of the time on babesia treatment?
My main complaint is fatigue, sore thighs and upper arms, my lower legs feel weird and heavy, POTS and occasional nausea (which is actually much better).
Thanks for you help-wonder if I am missing something
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
Just a little comment yes I felt horrible all the time.
Have now been off antibiotics since november due to high liver enzymes, all my tests are now normal and in july my fatigue started to disapear and i am now active almost all of the time and after many years of fatigue i am almost afraid to say it.
I was a year and half on oral and iv antibiotics but i have to say i not sure i am cured.
I still have drenching sweats and ice cold and have nerve damage etc. Going to start investigating these again this month but yes it is worth it.
Good luck to you.
regards maps
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I am on ART too! Worked up to 6 a day.
Posts: 1276 | From maryland | Registered: Jan 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Bets...I"m on Malarone (6 pills / day) and Zith as well. I just started Dr. K's Artemisinin protocol.
5x 100mg Artemisinin (Allergy Research Group), 3x / day with grapefruit juice. 2 days in a row each week, 3 weeks on 1 off.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I think I would die with that much ART! I have enough trouble with 6. Although if it was only 2 days, I might be willing to give it a try.
Posts: 1276 | From maryland | Registered: Jan 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Babesia treatment was slow for me. I felt bad for a long time. I am much better now but it has been ten months. Hang in there. When you feel you have reached a plateau, try something else.
I started with Mepron/zithro. Then switched to Malarone/zithro/art. Now it is Malarone/ Bactrim DS pulsing rounds of Coartem every few weeks and in between rounds of Artemix (aretesinin, artesunate and artemether). Last week I added 1.5 mg LDN (plan to work up to 3 mg).
Everything is much more manageable. i sure wish I could get off all these drugs with the LDN.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Thanks-I feel like I'm backsliding..I had some good days but lately my fatigue is really bad, getting off balance dizzy, nausea...maybe I am just herxing more.
I thought the herx's got better as you continued treatment?
Posts: 1276 | From maryland | Registered: Jan 2009
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