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» LymeNet Flash » Questions and Discussion » Medical Questions » babesia treatment?

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Author Topic: babesia treatment?
beths
Frequent Contributor (1K+ posts)
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I've been on malarone (high dose) and biaxin, as well as amoxy for 3 months now. I had periods where I felt better, but then feel like I'm backsliding somedays.

Once in a while I'll have a good day.

My question is-am I hitting the right thing? Did anyone feel yucky most of the time on babesia treatment?

My main complaint is fatigue, sore thighs and upper arms, my lower legs feel weird and heavy, POTS and occasional nausea (which is actually much better).

Thanks for you help-wonder if I am missing something

Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
maps
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Just a little comment yes I felt horrible all the time.

Have now been off antibiotics since november due to high liver enzymes, all my tests are now normal and in july my fatigue started to disapear and i am now active almost all of the time and after many years of fatigue i am almost afraid to say it.

I was a year and half on oral and iv antibiotics but i have to say i not sure i am cured.

I still have drenching sweats and ice cold and have nerve damage etc. Going to start investigating these again this month but yes it is worth it.

Good luck to you.

regards
maps

--------------------
1999 CFS, 2002 CMV Myco pneumonia
1 year antibiotics on and off
2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease
Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics

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Lymetoo
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Babs herxes were my worst herxes. The symptoms you describe are right on.

Feel better soon! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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BoxerMom
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I think you're doing fine. Three months is a drop in the bucket of Babesia treatment (sorry). Keep going.

At some point, you may need to increase meds, or add herbs, like Artemisinin or A-Bab.

--------------------
 - Must...find...BRAIN!!!

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beths
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I am on ART too! Worked up to 6 a day.
Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
bcb1200
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Bets...I"m on Malarone (6 pills / day) and Zith as well. I just started Dr. K's Artemisinin protocol.

5x 100mg Artemisinin (Allergy Research Group), 3x / day with grapefruit juice. 2 days in a row each week, 3 weeks on 1 off.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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beths
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I think I would die with that much ART! I have enough trouble with 6. Although if it was only 2 days, I might be willing to give it a try.
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nefferdun
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Babesia treatment was slow for me. I felt bad for a long time. I am much better now but it has been ten months. Hang in there. When you feel you have reached a plateau, try something else.

I started with Mepron/zithro. Then switched to Malarone/zithro/art. Now it is Malarone/ Bactrim DS pulsing rounds of Coartem every few weeks and in between rounds of Artemix (aretesinin, artesunate and artemether). Last week I added 1.5 mg LDN (plan to work up to 3 mg).

Everything is much more manageable. i sure wish I could get off all these drugs with the LDN.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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beths
Frequent Contributor (1K+ posts)
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Thanks-I feel like I'm backsliding..I had some good days but lately my fatigue is really bad, getting off balance dizzy, nausea...maybe I am just herxing more.

I thought the herx's got better as you continued treatment?

Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
   

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