posted
Hi there, I've been experiencing muscular pain and other Lyme symptoms for about a year, beginning after a camping trip last October. I've finally begun following Lyme as a possibility, and a bioresoance testing method said I was positive for Borrelia and ehrlichiosis. I had a WB done by Stony Brook. Can anyone demystify the results? Do I have Lyme? The neuro who ordered the results said I was 'exposed' but not 'infected'. What does exposure mean, and how can I be infected once but not sick now? Any help would be appreciated. First test result thing: Lyme Serology, serum Non Reac Patient OD: .061 Borderline, .111
Second:
IGM result: NEG * Indeterminate IGM bands: 41. Igm nonspecific bands were also detected Igg result: Neg * Indeterminate Igg bands: 41,58,93 Igg nonspecific bands were also detected comments: while there is some band reactivity, these results do not meet the CDC criteria for a positive western blot.
So.... what does exposure mean? Do I have Lyme? Do these results support the presence of lyme? He gave me a 4 week course of doxy for the 'historical nature' of the 'exposure'... but is he humoring me?
Posts: 1 | From New York, NY | Registered: Sep 2011
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posted
Exposure means you were exposed to Lyme Disease. That's ALL a Western Blot can show. Nothing more.
If you have SYMPTOMS that are consistent with Lyme Disease AND EXPOSURE, then you have Lyme Disease.
It sounds to me like you need a new doctor. Note that the CDC criteria are for tracking purposes ONLY. Even the CDC says that they are not to be used for diagnostic purposes.
You might want to watch Under Our Skin on Netflix or Hulu to understand why your neuro is being so evasive about Lyme.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Yes, he's humoring you. Neuros know little about Lyme disease diagnosis and NOTHING about treatment. There are a FEW who "get it."
Bottom line, with those results I would want to be treated. Camping, symptoms and Lyme specific bands like 93 mean you'd better address the issue head on.
Go to Seeking a Doctor here and ask for help in finding a Lyme specialist who knows what he/she is doing.
Band 83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
Band 93: The DNA or genetic material of Borrelia burgdorferi.
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Be aware that you may feel worse while on the doxy. If that happens, then Lyme IS an issue for you. (research Jarisch-Herxheimer reaction)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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