posted
I respond very well to Lyme/Bart treatment. I feel much better and start to get my life back. Then I plateau, and go down hill. Then I switch to a new drug or herb.
Now, I'm pretty much out of options - I've been on dozens and dozens of herbs and combos. They've all helped, and I've made some progress. But what do you do when you run out of options? This seems like a very scary place to me.
When I go back and re-use some of the old herbs/drugs, they work a tiny bit, maybe for a week or two, but that's it.
Any thoughts?
Posts: 641 | From Nevada | Registered: May 2009
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Are you taking enough meds/herbs? Monotherapy or even just two antibiotics will get the most vulnerable bacteria, then lose effectiveness.
That's why so many need IV. You have to achieve sustained high blood levels of antibiotics to achieve brain and tissue penetration. That's where everything is hiding.
For those of us on orals, that usually means 3 or more antibiotics and an antifungal.
You don't mention Babs. The vast majority of us have the 3 Bs: Borrelia, Bart, Babs. Even if you test negative or don't have the "obvious" symptoms, it's likely still there. The best docs treat for all 3.
I don't think you're resistant. I think you're undertreating.
Undertreating Lyme patients is cruel. It only leaves them sick and confused. And it wastes their time.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
You might want to try Wormwood, Black Walnut Hull and Cloves. This is the best combo for treating parasites and that's what you probably need. Parastroy and Hanna Kroeger are two good ones. There are others you can find by googling parasite cleanses.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Buy a rife machine. There's lots of information on the rife thread here.
Or buy a PE-1 and use it with homeopathic nosodes. There's a lot of information on lymenet.
Two very different treatments that will get you off antibiotics.
Polly Polygonum
Posts: 1226 | From USA | Registered: May 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Biofilm busting may help you - have you tried nattokinase (or other biofilm busting enzymes)?
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Hubby went thru this during bart treatment. It was hard for him to convince his doc that when he started feeling worse he needed to either increase his meds and/or add in another med. Backing off on meds was not the answer.
And we were doing herbs on our own in addition to the meds.
I would probably pick 3 or 4 of the meds or herbs that seemed the most effective in the past and restart them. I would add one new thing at a time and just keep increasing doses or adding in something new every 3 or 4 weeks. I think incluxding lumbrokinase or wobenzym is vital and also a cyst buster such as flagyl or tindamax.
I agree with Boxermom. The dose is critical to success. And since your symptoms come back so quickly I would focus on bart as the culprit or another coinfection.
This is not medical advice, just my opinion based on hubby's experince.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Bea, you say my symptoms coming back quickly is more indicative of a co-infection than of Lyme?
Posts: 641 | From Nevada | Registered: May 2009
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posted
Bart symptoms often come back within a couple of days of stopping an antibiotic -- or usually within a week at most if the infection is still present. Lyme generally takes 2 - 3 weeks or in some cases even several months to come back.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
six, I do herx with photons, but don't seem to get better? Maybe it just takes more time. I definitely believe photons work.
Posts: 641 | From Nevada | Registered: May 2009
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
What kind of things you are doing with photons now Dan?
If you read my old threads, while I was only on herbs, microcurrent and homeopathy, I had to change my protocols almost daily. Certainly, in a week, what I was taking had to be considerably different than the past week to improve.
This is due to coinfections and change of ecossystem, I believe. The pathogens change form, hide, go dormant, others come up, then new bio toxins to get rid off. Many times your symptoms are from herxes (toxins) not from infection (in the words of dr. K).
It's a non stop ballet, and you need constant change and adding NEW things, until the infections are gone.
That is why I don't see how people who don't do any form of energetic tests can improve fast. It is a very complex change and pretty fast.
The critters are smart. With energetic tests, I feel, we can target all little changes and address these changes properly (not 100%, but pretty close to 80% on the spot!!).
Are you going on higher on nosodes dilutions? Are you treating with blood? Did you try the Borrelia Antigen nosodes from Meripharm? They helped me too.
When you plateau on something, you got to change either nosode potency, or remedy, or cleansers. Or change the nosode altogether to attack other pathogens.
That is my feeling. Using photons often will open blocked meridians in your body so it will anyway make your healing faster (if you have no parasites...).
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Great points and thanks Brussels. Where do I buy the meripharm antigen nosodes, by the way?
Posts: 641 | From Nevada | Registered: May 2009
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posted
I was going to ask if you were using nosodes as well. What kind of protocol are you doing? What kind of machine do you have? (sorry if you've told me, there are so many to keep track of ...)
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