posted
Hey all long time no see sorry I have been haveing a heck of a time for awile now since my son Adam died I have a quick question I have had a nerve block in my t6 and t 7 region from a work related accident in 1997 anyway without them I can not walk and I get one or two a yr done for the past few yrs anyway the ast one I got was done a few months ago and it hit me really bad I started to have trouble breathing and then my sinuses went nut's and months down the road i,m still going through hell with the worst post nasil drip and choaking that one can have I have been through the regular tipical ringer of Drs all who have no idea what the hell they are going to do with me also the WBC whent up to 16.8 and is still there makeing every other part of the body feel like crap so I just wanted to ask if anyone else has gone though this and has any good idea's on how to deal with the sinus problems and I have to say I have tried just about every sinus med known to man and a few antibiotics I even was hospitalized for three days on five different iv meds that just made me feel worse thanks for any help Aries
Posts: 58 | From vernon,nj | Registered: Mar 2003
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Diflucan - 200mg. For a month or more. Recent studies show most sinus infections are in fact fungal in nature.
I was under the care of an ENT and Allergist for my horrible sinus issues, and not one of them thought 'hey, let's see if it's fungal, by either doing a culture or treating for it'. My LLMD put me on Diflucan, and when I went back to the ENT a month later, he could not believe the difference. He said he was looking at normal sinuses now, when a month before he threatened with the scraping surgery.
Given your history with lyme, my money's on fungal. Also, get yourself a bottle of Xlear - it's a saline mist with xylitol - the xylitol keeps fungi/bacteria from sticking to your sinus cavity. Use it twice a day.
Signed, the former Sinus Infection Queen
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
What about a Neti Pot? I have been thinking about trying this for my sinuses.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Should help. But I swear by Xlear - just spray and you're done.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Tried every med known to man and sometimes they work and sometimes they don't. Only abx. to really clear my sinuses when they are infected is Levaquin - sometime Biaxin
Now I work towards prevention. I MUST stay on my allergy meds or I will get an infection. No way around it for me. If I am off allergy meds for more then a week I can feel my sinuses getting ****ed off.
I do the neti pot once a day and add colloidal silver and grapefruit seed extract to the saline mix. Helps to reduce the bacteria and any fugus that may be in there.
I also use a fine steam mister twice a day with eucaluptus and tea tree oil in it. That combo really opens me up and lets stuff drain.
Sudafed is a must at times and although I do not like the side effects it helps to let things drain out. Best of luck to you..
Posts: 151 | From North East | Registered: May 2011
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posted
I have been on ABX for 16 days now and my sinuses seem to be in overdrive. Could this be a herx reaction?
I am supposed to take Diflucan 5 days on and 2 off, but I forgot to take it the last 3-4 days. Could this be the problem or could it be both?
I wasn't sure if I should take a sinus/allergy type med with the other stuff, but I could have literally drowned last night in my own snot!
I was also contemplating shoving Monistat suppositories up my nose to see if that would take care of the fungal/yeast aspect of my sinus problems after to reading the above post about that.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
The shots you took for your back....if they were steroid type that is the worse thing for any one with Lyme and or co=infections.
I had shots ,,2 for back and one in each hip over 5 month period last summer.
within 8 hours of last set of shots all H--- broke loose in my body... Every symptom went nuts and I've not been able to get back to even the bad place I was at physically at that time.
this is before Lyme diagnoses. But they did know ,or were treating/non-treating a problem at the time. Part of the falling through cracks/doctors not putting 2 and 2 together. Now
all my numbers are way different ,like my CD57 was 167 before this now I'm in 20's..... The sorry goes on and on... Steroids put the whole infection n /kett thing in major over drive...
Just feed it red bull..... I know what a problem this is cause my s1/l5 are pushed in and a herniated disk above....
Some how I just need to praise God in the middle of this whole mess. But I'm crying also.......
LORD in the middle of all of these replies<<<<<<<
so sorry to hear about your son.... Don't know the details ,but Lord help you. Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
You said without them you can't walk...are they the kenalog type????spelling etc.... When I started getting sick I was in Kaiser network...either their shots WEREN'T as strong ,cause they helped pain somewhat for a few months, or when I had different coverage I GOT MORE/STRONGER OR NON-GENERIC stuff .
That's when the infection stuff went nuts. Was told the steroid shot just fueled all the bad stuff by a MD that also uses alternative methods.
Again , my prayers go out to you about your loss Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
You said without them you can't walk...are they the kenalog type????spelling etc.... When I started getting sick I was in Kaiser network...either their shots WEREN'T as strong ,cause they helped pain somewhat for a few months, or when I had different coverage I GOT MORE/STRONGER OR NON-GENERIC stuff .
That's when the infection stuff went nuts. Was told the steroid shot just fueled all the bad stuff by a MD that also uses alternative methods.
Again , my prayers go out to you about your loss Posts: 2563 | From Denver,CO | Registered: Aug 2011
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