susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I swore I was not going to test again. It was suggested however that I test while on IVIG. I have received 10 grams IVIG every three weeks since March. I took 100 mg Doxy for six weeks. Two weeks off Doxy and two weeks after the last IVIG my results asf:
IFA neg.
IGM 18+,34 IND.,39 IND.,41+ IGG 39 IND.,41++
I was more curious about Bart - the last test being 40 on IGG. This time negatives ie IGM <20 and IGG <40.
I don't know what to think - in regards to what IVIG and Doxy did/did not do.
FWIW my EBV showed not reactivated - no early antigen showing. All these years I had blamed low grade fever on EBV.
I asked for add-on test for Babs. Awaiting results.
And Chuck - there is "my" band IGM 18 again.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Yes - in August. If you are wondering about my being in the sun - I wasn't. With my bad eyes - extremely sensitive to sun, light, glare - I anyway don't go out during the day. I live like a vampire. It's really rough.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
No, I was just making sure the doxy was taken recently. Very strange results!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Why do you say strange?
And confound it - I had thought that maybe - just maybe - this time I would convert an IND to a positive. Also thought same for Bart - to get a result above 40.
I did feel my symptoms were worse on IVIG. I had my first infusion a year ago - 30 grams Carimune - highest IGA - and I guess a no-no for someone with subnormal IGA subclasses. The bad effects started the next day when - as usual - I went to blow my nose with toilet paper and thought my head was going to explode - like I had inhaled toxic chemicals.
I started lower dose and different brand IVIG months later. Still everything worse - but I cannot imagine I could call it a herx - for seven months?
The one thing IVIG did do was lower my white blood cell count to normal range - for the first time in 15 years. My WBCc had been in the 11-18 range - then on IVIG averaged around 8. This from blood pulled and tested in oncologist's lab. Odd - during the same time when CBC was checked by my other doctor and blood tested at Labcorp - the results were different by a couple of points. Labcorp always higher - sometimes around 11 - just out of normal range.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
You can't tell anything from a Western Blot except that you were exposed to Lyme. A WB cannot tell whether the Lyme is active, only that you were exposed. Lyme is treated clinically.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Added the latest to my SusanK.xls spreadsheet.
Well you lost IgG 58 and IgM 23-25!
But if they were on the ragged edge then "noise" may cause them to toggle between -&+ or -&IND respectively.
Posts: 426 | From Berkeley, CA | Registered: Feb 2009
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