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» LymeNet Flash » Questions and Discussion » Medical Questions » two questions from new member

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Author Topic: two questions from new member
phil C
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Hello All:

I have been much reading on this nasty disease. I have two questions at the moment

1. I undersatnd that the spirochete can turn into the cyst or the cell wall deficent but it is not clear from my reading if they ever convert back from the cyst or cwd to the spirochete

2. when bacteria can break through the BBB and you are lucky enough to find a way to kill it, the resulting toxins will be past the BBB too. Is there anyway for the toxins to get back out of the BBB or are they just going to create havic inside the brain and perpetually cause inflamtion and more damage?

Thanks inadvance

Phil

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my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that.

Posts: 30 | From NJ | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Welcome to Lymenet, Phil!

These are good questions. Yes to number one. I don't know for number 2.

There is hope. I was SEVERELY ill ... bedridden mostly, and housebound, all bodily systems affected. Today I am well. I have no remnants of Lyme except for a shoulder that was frozen and is in the process of unfreezing. So even though all this is complicated, it can be beaten.

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sixgoofykids.blogspot.com

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phil C
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Thank you for the reply. Wow, it's great to hear that you recovered fully. How long did your recovery take and how long after you are symptom free before you were comfortable that you did not need to contnue treatment or do you still take treatment measures?

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my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that.

Posts: 30 | From NJ | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
phil C
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Member # 34473

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Thank you for the reply. Wow, it's great to hear that you recovered fully. How long did your recovery take and how long after you are symptom free before you were comfortable that you did not need to contnue treatment or do you still take treatment measures?

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my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that.

Posts: 30 | From NJ | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I was in treatment with antibiotics for 20 months, then I did Bionic 880 treatment in Germany. I continued Bionic treatment for less than a year before I went into complete remission.

I think I was kind of nervous about whether I'd relapse for some time since there weren't that many who had done the treatment, now, two years later, I'm pretty secure that I'm recovered. The Bionic is good for many things (infections, general health, detoxification), so I still use it for those things. I have gone many months without using it at all and do fine without it.

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sixgoofykids.blogspot.com

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BoxerMom
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Your second question is compelling.

Look up Chronic Cerebrospinal Venous Insufficiency (CCSVI).

In some cases of Lyme, the jugular veins becomes blocked and blood flow out of the brain is greatly reduced. These patients have a terrible time finding resolution of brain symptoms.

You can have a scan to confirm the blockages, if you are concerned. I don't know how many hospitals/offices offer this procedure.

Some links:

http://en.wikipedia.org/wiki/Chronic_cerebrospinal_venous_insufficiency

http://www.nationalmssociety.org/research/intriguing-leads-on-the-horizon/ccsvi/index.aspx

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/111725?

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