LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Reports from People Taking GcMAF

 - UBBFriend: Email this page to someone!    
Author Topic: Reports from People Taking GcMAF
GiGi
Frequent Contributor (5K+ posts)
Member # 259

Icon 1 posted      Profile for GiGi         Edit/Delete Post   Reply With Quote 
http://www.gcmaf.eu/info/index.php?option=com_content&view=article&id=112&Itemid=55
Posts: 9834 | From Washington State | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
How long until the FDA bans this into our country? My guess is going to be quickly.
Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
TS96
LymeNet Contributor
Member # 14048

Icon 1 posted      Profile for TS96     Send New Private Message       Edit/Delete Post   Reply With Quote 
Pray for that scientists life. He's a threat to Big pharma.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

Posts: 647 | From NY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835

Icon 1 posted      Profile for Tammy N.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Gigi. You are amazing, do you ever sleep?

Very exciting to read about this amazing treatment.

Posts: 2238 | From East Coast | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Healing in Santa Cruz
LymeNet Contributor
Member # 7798

Icon 1 posted      Profile for Healing in Santa Cruz     Send New Private Message       Edit/Delete Post   Reply With Quote 
This sounds pretty good. Although I am reading pros and con's on Facebook.

Looking forward to seeing how my Lyme and co friends do. Time will tell [Smile]

Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
Healing, what cons are you reading? The only major con I am aware of is the inflammation/IRIS risk. Would like to know more if you have details.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Healing in Santa Cruz
LymeNet Contributor
Member # 7798

Icon 1 posted      Profile for Healing in Santa Cruz     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Scott, Mainly the inflammation/IRIS problem.

Sorry,should have taken notes on other negs peeps were talking about. Will try to find again.

Hmmm maybe on Joeys long thread on FB ?

There is lots of info when I did a searches on net but most old.

Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is IRIS?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
IRIS Stands for

IMMUNE RECONSTITUTION INFLAMMATORY SYNDROME

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
glowboy9
Junior Member
Member # 33888

Icon 1 posted      Profile for glowboy9     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am considering all treatment options.

https://docs.google.com/spreadsheet/ccc?authkey=CIH8jqcC&key=0AllDPaztxjQDdFpOWEVLTld6SXNiV2FONGlOMXBXV3c&hl=en_US&authkey=CIH8jqcC#gid=0
I�d like to post this site, GCMAF user responses for XMRV. It�s important to balance out the good with the bad.

Gary

Posts: 9 | From Canada | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
The source of the GcMAF seems to play a role. You'll note that very view people on the list posted are using the gcmaf.eu source. There is an observation in the CFS world that the source is very much a factor in outcome.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
glowboy9
Junior Member
Member # 33888

Icon 1 posted      Profile for glowboy9     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Scott. I haven�t gone through the 140+ pages on the Phoenix rising website. Is it safe to assume that �KDM� or �BGLI� is not the same source as www.gcmaf.eu ?

Gary

Posts: 9 | From Canada | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868

Icon 1 posted      Profile for MichaelTampa     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by kimmie:
How long until the FDA bans this into our country? My guess is going to be quickly.

Wouldn't surprise me either if that happened as this catches on. One more reason to get on this therapy as soon as reasonably practical.
Posts: 1927 | From se usa | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
BGLI is not the same as gcmaf.eu. KDM is a practitioner and I am not certain what source he is using, but I have been told that it was not the gcmaf.eu source.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.