posted
Dr. K recommended my son have the urine porphyrin test done in France. My question is do I need to freeze it before it is maile???
Thanks, Truesun
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hope you can contact the testing lab itself and confirm "official" shipping instructions. Even if someone here did ship overseas to them in the past, sometimes procedures are updated and even a slight change in shipping could make a huge difference in results.
If you can't connect with the lab (they probably have an English language email option, at least), then I'd call Dr. K's office back and ask them.
I'd like to learn more about this lab just for reference and to add to my Porphyria study notes.
Do you have the name for the lab? A website?
I appreciate any details you can offer. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Is this it?
If so, As the fee for the Porphyrin test is given in US dollars on this English language site, my guess is that they'd have English language email response. ------------
(first on list) Porphyrins (toxicity biological marker -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
My question first would be why go for a probable
expensive test of such an obscure hereditary
condition. Especially if no one else in the
family genetic lines manifest this or these
tendancies?
Is this Dr K searching for any particular
reasons for your sons symptoms other than TBD's?
If so, why?
Has your son gone undiagnosed clinically or
otherwise by any reputable llmd?
If this Dr K has anything to do with kinesiology
then I'll withdraw my queries and let you go on
your way.
However, given the symptomology of porphyria as
defined in the Collins dictionary of medicine...
you may want to investigate Dr K's reasons for
such a test request. Sounds to me that this Dr k
is drumming up business for an extremely located
laboratory when I'm sure the test could be done
locally.
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Tests locally are used by good doctors and do show good results. There is also a porph group and they work with professors.
But if he ordered it, just do it.
Posts: 1834 | From US | Registered: Oct 2008
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posted
Dr. K is very particular about which labs run his tests.. I'm not concerned about the price. It would cost at least that much anywhere. I just thought this test always needed frozen and there are no instructions for that anywhere.
Keebler, it is labbio which it is my understanding Dr. K uses regularly. I'm going to call the office in the morning. I don't want to mess it up.
Thanks all, Truesun
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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