I don't mean to stir the pot about treatment plans and what's better what's worse but I am very new to all of this seeing as just yesterday I was "officially diagnosed".
Since June I have been having weird symptoms, brain fog/difficulty focusing/tracking things/dont feel like myself (I am usually a very healthy, outgoing in shape individual) and about 2 months ago I almost passed out while driving...well, thats what it felt like, I did not pass out and have been feeling terrible ever since.
Went through all the loops...neuro ("you have anxiety"), cardiologist ("are you stressed?")even went to the ER! (you are stressed). Finally went to an ND and they ran the appropriate tests and diagnosed me clinically.
Ran the blood work and have some of the results back (went through a local hospital and IgeneX). Still waiting on all Igenex results but hospital results only showed a positive for IgG band 23 which according to my ND is a strong positive for Lyme.
Since according to the CDC one band is not significant enough they mention it'd be difficult for me to get prescribed antibiotics.
Again being very new to all of this (and after reading through a lot of what everyone else is going through) I was wondering if anyone has gone the natural way to treating Lyme and if so how are your results?
Ive only been on a certain protocol for two days now and today was the first day I could be in the car without just having to look at my feet b/c I can not handle things coming at me or being swayed from side to side. I don't want to jinx it but could I be getting better this fast???
Also, just the past two/three days I've had this pimple like/spider bite thing on the side of my neck...its very hard, sensitive to the touch and red. In my random thoughts and reading through a lot of this website anyone have this thing ever? Could it be a cyst??
Sorry for the major writing but I'm really just trying to learn as much as I can and hopefully one day can return the favor and educate others.
I really was unaware that Lyme could be like this as last May I did see I had a rash and thought "eh if it is Lyme I'll have major symptoms and then I'll just pop some antibiotics" --> LESSON LEARNED.
To those of you out there whose diagnosis has taken a long time and those of you going through tremendous pain thank you so much for writing about your experiences on here and helping those of us less informed.
Ok, so in short anyone gone the natural route and willing to discuss...anyone have a random spider bite/pimple looking thing on the side of their neck or anywhere else..
Thanks in advance for any responses!!
Posts: 183 | From ... | Registered: Oct 2011
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posted
Lyme is a clinical diagnosis and many get treated without a CDC positive WB.
But if you choose to go natural, that is a viable option. I used abx for two years, got tired of the ups and downs, then switched to Bionic 880 treatment (there are threads on this) and got better.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Thank you for the info! I never asked my ND straightforward if they are an LLND but they do specialize in Lyme.
I was going to try the natural approach for a bit and if nothings going on was going to seek abx...which is the plan the ND also has in mind...though I think is definitely pushing for the natural approach a bit more.
Thanks everyone for the info! I'll try and keep posted.
Posts: 183 | From ... | Registered: Oct 2011
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posted
I take LB Core Protocol which is a capsule containing japanese knotweed, andrographis, cats claw, sarsaparilla root, and dandelion. Ask your ND about it. It is based on Buhner's protocol in the book "Healing Lyme" (which you should read BTW!). If you go the natural route, be prepared to take lots of pills if you don't take tinctures. I take 12 of the Core capsules a day along with my doxy, mineral supplements, thyroid and liver meds. My doc is hoping to eventually move me completely over to the Core alone without ABs.
-------------------- Country Mouse
6/2011 IgX: IGG: 31 IND, 41+++, 45+, 58+ IGM: 31+, 39 IND, 41 IND, 83-93 IND Band 31 confirmed to be Lyme epitope by Igenex 7/2011
8/2011 IgX: POSITIVE IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+ IGM: 31+, 34 IND, 39 IND, 41++, 83-93+ Posts: 169 | From Western Mass | Registered: May 2011
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posted
Thank you all for the info! CountryMouse...do you find the doxy works for you well along with all the other supplements/natural items?? I'm only on natural right now but am curious if I should be taking abx as well...so complicated!
Posts: 183 | From ... | Registered: Oct 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Personally I don't thing there is a natural cure but if you are taking that route, you need to explore all the newest gadgets and tinctures. It is expensive.
I have ordered the PE-1 and I hope it will zap the remaining residual infections I have. Mind you though, I have been on drugs for most of 4 years and gotten the load way down.
I am also getting a $100 "cup" that makes the water alkaline. A friend swears it has done wonders for her health in one day but she is selling it to me - it is one of those pyramid schemes and you know how those can be.
It is supposed to help the body detox and fights free radicals. It reduces the size of the water molecules (she says) so it penetrates through the body better. I am going to mix the tinctures in it because it is supposed to make them more available. I will be adding transfer factor to the whole mix - taking everything I have left over.
Until the PE-1 gets here (and all the other stuff) I am controlling my infections with Bactrim. I will try to add back LDN to help boost my immune system if the PE-1 needs it. Most people say the PE-1 can do the job all on it's own. You will hear from me if that is the case because I will be shouting from the roof tops.
If any of this works I will report back. In the two other abx breaks I have taken, I was on massive amounts of herbs and supplements (over $500 a month). It didn't work, obviously. The first time was five months and the second time 8 months.
I used the herbs after really heavy abx knocked the load down, but left me chemically sensitive. The herbs etc I took did not erase any infections. They just held them in check for a while. Then they came back full force.
It is a good idea to treat everything so those infections which are dormant are less likely to surface and take over.
Whenever anyone posts asking if anyone has gotten well/in remission using only herbs (never resorting to drugs), there is no affirmative response that I know of so I think this approach is rarely successful. On the other hand, rarely does anyone report they are well from drugs - but at least there are a few that we all know of.
There are people that are a lot better using the natural approach and feel they are on their way to good health so maybe it will eventually work. I have one toe in the cold water myself for another shot at it. Maybe it will work THIS TIME.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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quote:Originally posted by nefferdun: You will hear from me if that is the case because I will be shouting from the roof tops.
If any of this works I will report back. In the two other abx breaks I have taken, I was on massive amounts of herbs and supplements (over $500 a month). It didn't work, obviously. The first time was five months and the second time 8 months.
This is so similar to me, but less time on herbal breaks because I relapsed within weeks.
I've been TRYING to shout from the rooftops but it's taken three years for it to get significant attention on the board!!! At first most just thought I was a crazy woman! (well, I might be, but that's beside the point)
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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