posted
My 22 year old son's labs came back today. IgM negative (only IND on **41 kDa). IgG positive(but CDC negative) with:
18 kDa +++ 30 kDa ++ **34 kDa +++ **41 +
The IFA was 40 Equivocal. When the Clinic did the ELISA I believe it was a 77, 2 points above a negative, in the "inconclusive" range.
Now seeking a LLMD. Any opinions on the lab results for me in the meantime?
Marie
-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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posted
Chuck, what does that mean? Lymetoo, thanks for that great Western Blot explanation link - I'm going back to read it again. Sixgoofykids - oh boy has he ever had symptoms - for 3 years. Diagnosed with POTS 3 years ago (challenging enough) but symptoms have progressively gotten worse and more varied and random - things that I can't attribute to just POTS, pain, weakness, heavy fatigue, confusion, difficulty thinking, speech errors, vision problems, hair loss, genital pain, urinary issues, constipation, chest & rib area discomfort, low abdominal pain - along with the POTS stuff of lightheadedness, heart palpitations - and some schizophrenic behavior (doctors want to put him on an antipsychotic). He still has been able to work and do things, but the symptoms, depression, anxiety cover so much of his life, that he hasn't really been able to start life yet. This began just weeks past his high school graduation - turned 22 yesterday.
-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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posted
Wowww. I guess there's no question he has Lyme. Although I knew I'd be surprised if he didn't, it is just taking awhile to sink in. So I'm still not sure what the ** 34kDa +++ really means for him.
-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
ZachsMom. As the mother of a child about the same age as yours, my heart goes out to you. The journey you have ahead is a tough one. Pull up your bootstraps and don't let hope slip away. Give him a gentle hug.
Posts: 2903 | From AZ | Registered: Feb 2006
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-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Has he started treatment yet? Does he have chronic pain?
Even our doctor admitted yesterday that undergoing the treatment for this disease is very similar to the treatment for cancer.
Most get worse before they get better.
Posts: 2903 | From AZ | Registered: Feb 2006
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
FYI...the head doctor at IGENEX has said it can take a year for bands 31 and 34 to show up. So he's had it for a while.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
Zachsmom... Print the explanation out so you can refer to it over and over. Also, read the "replies" to the initial explanation. LOTS of good info there too!!
Make sure he gets tested for bartonella and babesiosis.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Kelmo, No he hasn't started treatment yet because we just got the labs back. What confuses the issue a little is that he has Postural Orthostatic Tachycardia Syndrome (diagnosed in July 2008) and so up until the last 5 or so months, all symptoms matched that. Since then, other symptoms that I mentioned above. I feel I'm in a time crunch now to find the right doctor. So much has been put off because of mental diagnoses and just getting through managing POTS. I know we're in for a long haul.
Re time of tick bite? A week or 2 before the awful POTS trigger in July 2008 (2 ER visits within 16 hours - he's never been the same since that day), he was tent camping for 5 or so days in NE Ohio. He did that for 3 years previously. He had lots dehydration issues prior to 7/08, heat/cold intolerance, one unbelievable stomach flu bout that year, but not daily illness, thinking he's going to die all the time. He came home from medical leave 2 1/2 months after he began college.
-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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posted
Thx, Lymetoo. Will do! A very good read for sure!
-------------------- "In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus Posts: 24 | From Mentor, OH | Registered: Sep 2011
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